Transition to Adulthood Learning Collaborative (TALC) FY20 Quarter 3 Meeting May 13, 2020
Agenda Welcome & Housekeeping Presentation “Personal Networks: Enriching Life in the Present and Providing for the Future” CSHCN Systems Development Group Updates Current & Upcoming Events TALC Member Updates & Events Resources & Publications Next Meeting Date & Adjourn
Housekeeping All lines are in listen only mode During the Q & As, click the RAISE HAND icon and we’ll unmute your line If your computer does not have a mic, please use the phone for audio (phone is preferred) Use the Chat Box to: Communicate with us Ask the speaker a question Get help with technical difficulties You will not be unmuted if you comment in the chat box Agenda, PowerPoint slides, and handouts are in the Handouts section Today’s call will be recorded and posted on our website at https://bit.ly/2Kc1tke
Words of Wisdom: Insights from a Self-Advocate “Our parents are used to rolling with the punches, but we’re not. In some ways we are moving backwards now and forced to rely more on our parents. It’s important for parents to know that if transition timelines have to be moved back, they need to tell their son’s/daughter’s that it’s temporary. The new timeline is not a reflection on our abilities- it’s the current circumstances which are temporary. This needs to be a discussion. It needs to be reinforced repeatedly.” - Amy Litzinger
Personal Networks: Enriching Life in the Present and Providing for the Future Denise Sonleitner, Lead Facilitator Texas Network Connections Project/Texas Parent to Parent
Personal Networks: Enriching Life in the Present and Providing for the Future TEXAS NETWORK CONNECTIONS Creating Community for People with Disabilities
How are we, as parents, going to make sure that our son or daughter with a disability has a good life, both now and after we die? Who will make sure that the plans we have arranged and the services we have secured are implemented and functioning well after we are gone? How do we make sure our child is not lonely, isolated or neglected? How do we give caring friends and family an opportunity to have a fulfilling relationship with our child? How am I, a person with a disability, going to achieve these goals for myself?
Not Alone! MavMen--2010 Network Group Photograph
What We’ll Cover Today • What is a personal network? • History of networks • Texas Network Connections (TxNC) • Key components of networks • Networks in action! • Starting a network • Q & A
What is a Personal Network? Lucas’ Lineup—2019 Network Group Photograph
What is a Personal Network? A personal network is an intentional community of friends, family members and acquaintances who assist and collaborate with a person at risk of isolation and his/her family. Personal networks promote planning and social opportunities, assist with decision-making and goal setting, and work with the person at the center to be a sustainable resource after parents can no longer be available.
History of Personal Networks
TEXAS NETWORK CONNECTIONS (TxNC) Creating Community for People with Disabilities • Network facilitation services • Do-it-Yourself (DIY) Manual on Starting a Personal Network • DIY Workshops & TAGs • Introductory Presentations • TxP2P Transition Center of Central Texas
Networks in Action! Just for Jaclyn—2014 Network Group Photograph
Networks in Action! The Gift Keepers—2018 Network Group Photographs
Networks in Action! Elana’s Rose Garden—2015 Network Group Photographs and Network Activities
Networks In Action! Photograph of Two Network Members
Five Key Components of Networks #1 Relationships are the key to a good life and the foundation of networks #2 No disability precludes relationship #3 Successful networks are directed by individuals and/or families #4 Networks focus on contribution #5 Everyone benefits -- community
Starting a Network Naruto Network—2018 Network Group Photograph
Starting a Network Start Young! Photograph of Person at Center of the Network
The Three Phases of Network Development: Invitation, Development & Maintenance Photograph of Two Network Members
Phase One: Invitation Network Group Photograph
Invitation: Who do I Invite? Identify people in your life: • Immediate and extended family • Neighbors, family friends, church members • Professionals who have worked with you, • your son, or daughter (school, attendants, therapists, etc) People who you want to get to know better, • but have never known how to People who share common interests with you •
Siblings Love Networks! Photographs of Siblings in Networks
Invitation: Is it easy? Photograph of Two Network Members
Or is it hard? Asking is the #1 challenge to starting a network
Invitation: Host an Invitation Meeting • Snacks and socializing • Welcomes and Introductions. How do you know the person at the center? • What is a personal network? • Why are we starting a personal network? • What are the commitments of network members? • The Ask: To join or not join the network?
Phase Two: Development The Journey Begins: Network Meetings SNAPshots—2014 Network Group Photograph
Development: Network Meetings Socializing and Eating! Photographs of Network Members and Network Activities
Development: Network Meetings Taking Care of Business AGENDA Introductions. What’s new with members? Getting started: Develop the Network • Think about a name • List and assign roles • Communication tool: Email? Text? Website? Facebook? • Decide when to meet, how often, where, etc… Getting to know Maverick and his supports, part 1: Activity Calendar: • Deadlines • Appointments • celebrations Next Meeting Adjourn
Development: Network Meetings Format & Goals Photographs of Network Members and Network Activities
Development: What Do Networks Do? Meet for two hours, 3-4 times per year Provide social opportunities Help person at center to identify and articulate his or her needs from the network Offer guidance and mentorship Assist with goal setting Monitor services Learn about disability issues Explore employment options Eat good food and drink Have fun!
Network Meetings: Just Do It! Rebecca’s Network—2018 Network Group Photograph
Phase Three: Maintenance and Sustainability The Waco’s—2018 Network Group Photograph
Maintenance and Sustainability: SNAPshots Celebrates Another Year And Overcomes Network Hurdles! Photograph of Three Network Members
Just for Jaclyn Launches in 2015 Photographs of Network Members and Network Activities
Just 4 Jaclyn in 2019 Photographs of Network Members and Network Activities
Maintenance and Sustainability: The Wacos Take Charge in 2018! Network Group Photograph and Network Selfie
Maintenance and Sustainability: The Cavern Club Keeps on Rockin! Cavern Club—2009 Photographs of Network Members and Network Activities
Developing a Photograph of Network Members and healthy, Network Activity sustainable network takes years And…that’s okay. Networks are a work in progress!
Network Group Photograph Over time, as networks mature, relationships deepen and members become more invested in each other’s lives Colter’s Intelligence Agency (CIA)-–2017
Texas Network Connections https://www.txp2p.org/services/texas-network-connections Pathways to Adulthood https://www.txp2p.org/services-for-parents-pathway-to-adulthood Transition Center of Central Texas https://www.txp2p.org/services/services-for-parents-pathway-to- adulthood/transition-center For more information about these and other TxP2P programs, contact Cynda Green at 737-484-9045 or cynda.green@txp2p.org
CSHCN Systems Development Group Updates
CSHCN Resource Guide: Now Available in Spanish New program brochure includes general health care and family support resources for CSHCN and their families. Order brochures here: https: / / bit.ly/ 38t2cYo
Current & Upcoming Events
2020 Census – Help Get the Word Out! • As of April 28, less than 49 percent of Texas households had completed the survey, compared to almost 54 percent nationally. A 1% undercount could result in a loss of at least $300 million of federal funding per year. Census Bureau has resources available in English and 59 other languages For more Census info, visit 2020census.gov
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