Third Periodic Review Dissemina(on and training ac(vi(es Edwin - PowerPoint PPT Presentation

Third Periodic Review Dissemina(on and training ac(vi(es Edwin Morley-Fletcher - WP18 Brussels, 12 th May 2016

Dissemina(on Objec(ves of Y3 All forecasted objec?ves have been achieved: • Dissemina(on objects: six video-clips have been created and uploaded on MD-Paedigree’s Youtube channel • Ac?ve par(cipa(on in major dissemina(on events : • Exhibi?on Booth and a Networking Session within the ICT2015 conference in Lisbon • Speakers Corner at ehealth Week in Riga • Various other networking events, especially in rela?on to Big Data in health. • The annual NewsleKer (special issue 4-5) was published, and is available online, as pdf to be downloaded, and on printed version. • D18.3 Training event was ?mely submiUed on M30. Brussels, 12 th May 2016

Dissemina(on Objects • Six video-clips intended to present in a concise way the MD-Paedigree’s areas. • All relevant partners were involved in the crea?on of the various video clips Brussels, 12 th May 2016

ICT2015 (1) • MD-Paedigree took part in “ICT 2015: Innovate, Connect, Transform: 20th -22nd October 2015, Lisbon”, with a booth jointly organized in coopera?on with GÉANT and Cardioproof Brussels, 12 th May 2016

ICT2015 (2) • The booth was visited by Commissioner Carlos Moedas and the Portugues Minister of Educa(on and Science Nuno Crato . Brussels, 12 th May 2016

Our presence at ICT2015 (3) MD-Paedigree also had a Networking Session where a discussion paper on “Enhanced Consent: a vision for Pa?ent Data Protec?on and Data Management” was successfully presented. Brussels, 12 th May 2016

md-paedigree.eu Regularly updated and op?mised: • A new video sec?on was created, embedding the videos published on the YouTube channel. • New banners were designed for the homepage • A cookie consent module was implemented in compliance with the EC’s latest guidelines Brussels, 12 th May 2016

md-paedigree.eu (2) • The website is regularly visited, with 57,8% of online sessions from new visitors from all over the world • In total, around 3,000 sessions were recorded on md-paedigree.eu from March 2015 to February 2016, with altogether over 8,000 page views. Brussels, 12 th May 2016

Social Media • A social network strategy has been implemented to reinforce public outreach. • MD-Paedigree’s TwiUer account has been regularly updated and counts now around 100 followers (with 24,000 tweet visualisa(ons , 2,000 profile visits , and 100 men(ons ). • Successful interac?ons have taken place with eHealth- and Big Data in healthcare- related accounts. Brussels, 12 th May 2016

Seminars, Workshops and Concerta(on Ac(vi(es (1) Workshop on Clinical Data Management and Sustainability (in concerta?on VPH-Share and pMedicine), • March 17-18th 2015, Barcelona (Spain) E-health week 2015(WoHIT/HIMSS), 11 th -13 th May 2015, Riga (Latvia): Speakers Corner • Bio-Techno-Prac?ce Workshop on “In Silico Medicine: philosophical founda?ons and biomedical • applica?ons”, June 3rd, 2015, Barcelona (Spain) HIMSS Privacy & Security Forum, 29 June-1 July 2015, Chicago-Ill. (USA) • RDA (Research Data Alliance) 6 th Plenary Session, 23 rd September 2015 Paris (France) • ENISA Annual Privacy Forum, 8 th October 2015, Luxembourg: Invita?on to Edwin Morley-Fletcher to • aUend as speaker the Panel on Big Data ICT 2015, MD-Paedigree joint booth with Géant and Cardioproof, 20 th -22 nd October 2015, Lisbon • (Portugal). Joint booth with Cardioproof and Géant, Networking Session on Pa?ent Data Privacy and Enhanced Consent. European Data Forum, 16 th -17 th November 2015, Luxembourg • EC round-table on personal informa?on management, 27 th November 2015, Brussels (Belgium) • RDA 7° Plenary Session, 29th February-3rd March, 2016 – Tokyo (Japan): Dedicated presenta?on for the • proposal of a ‘Health Data’ Intrerest Group. Brussels, 12 th May 2016

Seminars, Workshops and Concerta(on Ac(vi(es (2) • 24th Euromirco Interna?onal Conference on Parallel, Distributed, and Network-Based Processing, Heraklion Crete, Greece, 2016. • E-health day, June 11 th 2015, Sierre, Switzerland • 19th IEEE High Performance Extreme Compu?ng Conference, Waltham, MA, USA, Sept. 15-17, 2015 • 37th Annual Inter. Conf. of the IEEE Engineering in Medicine & Biology Society - EMBC 2015, Milano, August 25 th -29 th , 2015 • Func%onal Imaging and Modeling of the Heart, 8th Interna?onal Conference, FIMH 2015, Maastricht, The Netherlands, June 2015 • STACOM 2015 (Sta?s?cal Atlases and Computa?onal Models of the Heart. Imaging and Modelling Challenges) workshop, Munich Germany, Sept 2015 • MICCAI 2015 (Medical Image Compu?ng and Computer-Assisted Interven?on) conference, Munich, Germany, Sept 2015 Brussels – 6-7 May 2014

List of publica(ons for year 3 (1) Noninvasive hemodynamic assessment, treatment outcome predic(on and follow-up of aor(c • coarcta(on from MR imaging . Ralovich K, Itu L, Vitanovski D, Sharma P, Ionasec R, Mihalef V, Krawtschuk W, Zheng Y, EvereU A, Pongiglione G, Leonardi B, Ringel R, Navab N, Heimann T, Comaniciu D. Med Phys. 2015 May Gut Microbiota Dysbiosis as Risk and Premorbid Factors of IBD and IBS Along the Childhood– • Adulthood Transi(on , Lorenza Pu?gnani, Federica Del Chierico, Pamela Vernocchi, Michele Cicala, Salvatore Cucchiara, and Bruno Dallapiccola. Dysbiotrack Study Group, Inflamm Bowel Dis 2015 Applying machine learning to gait analysis data for disease iden(fica(on . Joyseeree R, Abou • Sabha R, Mueller H. Stud Health Technol Inform. 2015. A Pa(ent-Specific Foot Model for the Es(mate of Ankle Joint Forces in Pa(ents with Juvenile • Idiopathic Arthri(s . Prinold JA, Mazzà C, Di Marco R, Hannah I, Malaqa C, Magni-Manzoni S, Petrarca M, Roncheq AB, Tanturri de Hora?o L, van Dijkhuizen EH, Wesarg S, Vicecon? M; MD- PAEDIGREE Consor?um. Ann Biomed Eng. 2016 Jan Delinea(ng the applica(on of ultrasound in detec(ng synovial abnormali(es of subtalar joint in • juvenile idiopathic arthri(s. Lanni S, Bovis F, Ravelli A, Viola S, Magnaguagno F, Pistorio A, Magnano GM, Mar?ni A, Malaqa C. Arthri?s Care Res (Hoboken). 2016 Jan 27 Expert consensus on dynamics of laboratory tests for diagnosis of macrophage ac(va(on • syndrome complica(ng systemic juvenile idiopathic arthri(s . A.Mar?ni et al. RMD Open. 2016 Jan 19;2(1):e000161. doi: 10.1136/rmdopen-2015-000161. eCollec?on 2016. Reviewer acknowledgement 2015 . Mar?ni A, Spencer C. Pediatr Rheumatol Online J. 2016 Feb 1 • Rela(ons between muscle endurance and subjec(vely reported fa(gue, walking capacity, and • par(cipa(on in mildly affected adolescents with cerebral palsy . Eken MM, Houdijk H, Doorenbosch CA, Kiezebrink FE, van Bennekom CA, Harlaar J, Dallmeijer AJ. Dev Med Child Neurol. 2016 Feb 24. Brussels, 12 th May 2016

List of publica(ons for year 3 (2) • Energy Balance-Related Behaviors, Perinatal, Sociodemographic, and Parental Risk Factors Associated with Obesity in Italian Preschoolers . Shashaj B, Graziani MP, Contoli B, Ciuffo C, Cives C, Facciolini S, Rigoni ML, Spaterna S, Taucci M, Raponi M, Manco M. J Am Coll Nutr. 2016 Mar 2 • Autoimmune disease-associated gene expression is reduced by BET-inhibi(on . Peeters JG, Vervoort SJ, Mijnheer G, de Roock S, Vastert SJ, Nieuwenhuis EE, van Wijk F, Prakken BJ, Mokry M, van Loosdregt Genom Data. 2015 Nov 7;7:14-7. doi: 10.1016/ j.gdata.2015.11.004. eCollec?on 2016 Mar. • Disease ac(vity accounts for long-term efficacy of IL-1 blockers in pyogenic sterile arthri(s pyoderma gangrenosum and severe acne syndrome . Omeneq A, Carta S, Caorsi R, Fineq M, MaroUo D, LaUanzi B, Jorini M, Delfino L, Penco F, Picco P, Buoncompagni A, Mar?ni A, Rubartelli A, GaUorno M. Rheumatology (Oxford). 2016 Mar 17 • 2016 Classifica(on Criteria for Macrophage Ac(va(on Syndrome Complica(ng Systemic Juvenile Idiopathic Arthri(s: A European League Against Rheuma(sm/American College of Rheumatology/Paediatric Rheumatology Interna(onal Trials Organisa(on Collabora(ve Ini(a(ve . A. Mar?ni et al. Ann Rheum Dis. 2016 Mar • Gut microbiota profiling of pediatric NAFLD and obese pa(ents unveiled by an integrated meta-omics based approach . Del Chierico F, Nobili V, Vernocchi P, Russo A, De Stefanis C, Gnani D, Furlanello C, Zandonà A, Paci P, Capuani G, Dallapiccola B, Miccheli A, Alisi A, Pu?gnani L. Hepatology. 2016 Mar 29 • A Pa(ent-Specific Foot Model for the Es(mate of Ankle Joint Forces in Pa(ents with Juvenile Idiopathic Arthri(s . Prinold, J. I., Mazzà, C., Di Marco, R., Hannah, I., Malaqa, C., Magni-Manzoni, S., Petrarca, M., Roncheq, A., Tanturri de Hora?o, L., van Dijkhuizen, E. H. P., Wesarg, S. and Vicecon?, M., 2016. Annals of biomedical engineering 44, 247-257. • Comprehensive Assessment of the Global and Regional Vascular Responses to Food Inges(on in Humans Using Novel Rapid MRI . JA Hauser, V Muthurangu, JA Steeden, AM Taylor, A Jones. American Journal of Physiology - Regulatory, Integra?ve and Compara?ve Physiology. Jan 2016 10.1152/ajpregu.00454.2015 Brussels, 12 th May 2016