The UK perspective on health research prioritisation Matt Westmore, NIHR Evaluation, Trials and Studies Coordinating Centre @matt_westmore matthew.westmore@nihr.ac.uk
What is priority setting? @matt_westmore matthew.westmore@nihr.ac.uk
Research community specify Organisation and the research programme remits question Long term strategic themes and challenges Short-medium term themed calls Targeted and specific calls Funder specifies the research question Long term priority Short term priority => Portfolio of studies => Small number of projects @matt_westmore matthew.westmore@nihr.ac.uk
Why you should NOT set priorities? @matt_westmore matthew.westmore@nihr.ac.uk
Is dying of cancer worse than dying of cystic fibrosis? @matt_westmore matthew.westmore@nihr.ac.uk
How quickly the research community will react Money available @matt_westmore matthew.westmore@nihr.ac.uk
Why you should set priorities? @matt_westmore matthew.westmore@nihr.ac.uk
Health related research matters
85% of Health Research Funding is wasted avoidably Sir Iain Chalmers and Paul Glasziou ‘Avoidable waste in the production and reporting of research evidence’, The Lancet, Volume 374, Issue 9683, Pages 86 - 89, 4 July 2009, @matt_westmore matthew.westmore@nihr.ac.uk
www.ensuringvalueinresearch.org Principle 1 : Health-related research agendas and priorities should be set with the meaningful involvement of those who will use and be affected by health-related research. @matt_westmore matthew.westmore@nihr.ac.uk
How to set priorities @matt_westmore matthew.westmore@nihr.ac.uk
@matt_westmore matthew.westmore@nihr.ac.uk
@matt_westmore matthew.westmore@nihr.ac.uk
Research community specify Organisation and the research programme remits question Long term strategic themes and challenges Short-medium term themed calls Targeted and specific Funder specifies the calls research question Long term priority Short term priority => Portfolio of studies => Small number of projects
https://www.rand.org/pubs/research_reports/RR2147.html
Research community specify Organisation and the research programme remits question Long term strategic themes and challenges Short-medium term themed calls Targeted and specific Funder specifies the calls research question Long term priority Short term priority => Portfolio of studies => Small number of projects
https://www.nihr.ac.uk/funding-and-support/themed-calls/
Research community specify Organisation and the research programme remits question Long term strategic themes and challenges Short-medium term themed calls Targeted and specific Funder specifies the calls research question Long term priority Short term priority => Portfolio of studies => Small number of projects
Beyond the obvious? @matt_westmore matthew.westmore@nihr.ac.uk
The (possible) future @matt_westmore matthew.westmore@nihr.ac.uk
Jordan’s story Health research platform (Distant future) Research users Tool developers Funders and providers Patients and Regulators public Database Health providers and Researchers data experts @matt_westmore matthew.westmore@nihr.ac.uk
Thank you @matt_westmore matthew.westmore@nihr.ac.uk
Spare slides @matt_westmore matthew.westmore@nihr.ac.uk
85% of Health Research Funding is wasted avoidably Sir Iain Chalmers and Paul Glasziou ‘Avoidable waste in the production and reporting of research evidence’, The Lancet, Volume 374, Issue 9683, Pages 86 - 89, 4 July 2009,
Adding Value in Research framework
Th Themed Calls alls Priority themes specified and boards determine importance of research led proposals to NHS, scientific quality feasibility and value for money. • Multiple Morbidities (2015) • Long Term Conditions in Children and Young people (2014) • Antimicrobial Resistance (2013) • Primary Care Interventions (2013) • Applied Health Research in Surgery (2012) • Applied Health Research in Dementia (2011) • Pandemic Flu2 (2011) • Obesity (2009) & Pandemic Flu (2009) • Diagnostic tests and test technologies (2009) • Emergency Medicine, Pre-hospital Care and Trauma (2008) • Health Care Associated Infection (2007) • Medicines for Children (2005)
NIHR Health Technology Assessment Programme Health Technology Assessment in the UK, Raftery J, Powell J, The Lancet Volume 382, No. 9900, p1278–1285, 12 October 2013
Pa Pane nel criteria for asse ssessi ssing ng impo portanc nce • What are the benefits from in terms of reduced uncertainty? (e.g. outcomes for patients and carers, costs effectiveness to the NHS) • How long before benefits could be realised? Bearing in mind the time needed to perform the technology assessment and to bring about change in practice • Would the assessment offer value for money • How important is early assessment? • Other factors which might have a bearing on importance (e.g national priorities and policy considerations, prevalence of the disease/conditions, social/ethical considerations)
Identification of potential topics (priorities)
Adding Value in Research framework Support the Evidence Based Research Network www.ebrnetwork.org Lau 1992 (i.v. streptokinase)
Completed Partnerships Asthma Lyme disease Urinary incontinence Pressure ulcers Vitiligo Sight loss and vision Prostate cancer Dementia Schizophrenia Dialysis Type 1 diabetes Multiple sclerosis ENT aspects of balance Hidradenitis suppurativa Life after stroke Acne Eczema Pre-term birth Tinnitus Childhood disability Evaluation, Trials and Studies Coordinating Centre Cleft lip and palate
Current Partnerships Anaesthesia Alopecia Depression Renal Transplantation Hip and knee replacement Surgical Treatment for Early for osteoarthritis Hip and Knee Osteoarthritis Inflammatory bowel disease Endometrial Cancer Intensive care Teenage and Young Adult Late stillbirth cancer Mesothelioma Mild to moderate hearing Neuro-oncology loss Palliative and end of life care Alcohol related liver disease Parkinson’s disease Non alcohol related liver and Evaluation, Trials and Studies Coordinating Centre Spinal cord injury gall bladder diseases Common Shoulder problems Cavernoma
Priority setting
UK Health Research Analysis 2009/10 – UK Clinical Research Collaboration 2012
Research community specify Organisation and the research programme remits question Long term strategic themes and challenges Short-medium term themed calls Targeted and specific Funder specifies the calls research question Long term priority Short term priority => Portfolio of studies => Small number of projects
Research community specify Organisation and the research programme remits question Long term strategic themes and challenges Short-medium term themed calls Targeted and specific Funder specifies the calls research question Long term priority Short term priority => Portfolio of studies => Small number of projects
“This issue has been a challenge for my organization” Coalescing competing views Ensuring meaningful engagement Research culture Resource limitations Differences in terminology Determining sufficient input Identifying appropriate people 0 2 4 6 8 10 12 14 Agree Neutral Disagree @matt_westmore matthew.westmore@nihr.ac.uk
Tallon, D. et al. (2000) ‘Relation between agendas of the research community and the research consumer’, The Lancet, Vol. 355. pp. 2037-40 @matt_westmore matthew.westmore@nihr.ac.uk
@matt_westmore matthew.westmore@nihr.ac.uk
Working with National bodies @matt_westmore matthew.westmore@nihr.ac.uk
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