The role of the Scottish Dementia Clinical Research Network John - PDF document

02/07/2014 The role of the Scottish Dementia Clinical Research Network John Starr Joint Director What are important research advances?  A new cause  A new treatment  A new method  A new resource 1

02/07/2014 Resources for research Need to piece resources together Research Networks 2

02/07/2014 Network aims  Support existing clinical dementia research in Scotland  Build dementia research capacity – Researchers’ training & linking – Direct support of studies – Register of potential participants Network structure  All mainland Scottish Health Boards  Each has clinical lead  Each has clinical research officer(s)  Overall network manager & database manager  Advisory board with SDWG, Alzheimer Scotland etc 3

02/07/2014 Direct support of studies  Adopt existing studies – Clinical research – Includes NHS staff, patients or facilities  Provide help when applying for new studies – Provision of participants – Training – Direct involvement of staff  Pilot studies The Register 4

02/07/2014 Scottish Dementia Research Interest Register  Register for people with dementia or related cognitive disorder  Register for carers  MREC & R&D approved  Secure server database  3,000+ recruited so far across Scotland  Allows – Details to be recorded for future contact – Linkage to other health-related databases Carer register  Name  Address  Telephone number  Date of birth  Often consent along with person with dementia, but not necessary to do so – e.g. can have bereaved carers 5

02/07/2014 Person with dementia or related cognitive disorder register  Personal details  Consent details  Diagnosis  Comorbidities & Medication  Sensory impairments  Communication difficulties  Assessments – Cognitive, functional, behavioural 6

02/07/2014 No SDCRN studies of music so far  Current belief that it is a “good thing” – Playlist for Life – Singing for the Brain  Current literature – 295 Medline articles Dementia/AD AND Music/ Musical therapy – 25 RCTs – Most for agitation – Some for mood – A few for cognition What musical genres?  Big Band - 1  Classical – 3 (2 Baroque)  Participant chosen – 3  Percussion & Rhythmic - 2  Singalong - 2  Unspecified – 12  Live music more effective than recorded 7

02/07/2014 The future of music in dementia research in Scotland? Thank you  Please contact John Starr for further information – jstarr@staffmail.ed.ac.uk – 0131 650 4340 8