The Hoosier Dementia Dilemma: Let’s Just Do SOMETHING!! Dustin Ziegler DementiaFriendsIndiana.org CICOA Aging & In-Home Solutions February 11, 2019
Pick an Issue; Any Issue….. • No cure or disease modifying agent available • Over 5 million affected, but probably higher – Projected to rise 15 to 16 million over coming decades • Over 16 million family caregivers provided unpaid care valued at $18.4 billion – Mortality rates of caregiver spouses exceeding those of person with dementia • Alzheimer’s and other dementias cost nation $277 billion in 2018 with projections of $1.1 trillion by 2050 – Cost of this condition single handily on track to bankrupt Medicaid The Hoosier Dementia Dilemma ISNA Policy Conference
More Fun Facts….. • Declared by CDC, NIH, and WHO as having epidemic status; we’ve only just begun • Passed cancer a few years ago as being most feared disease among Americans – This includes Americans of ALL ages; not just older adults • Those with dementia are more likely than those without dementia to have other chronic conditions – People with dementia have twice as many hospital stays and much longer average length of stay per year as other older adults • Only disease in the top 10 whose mortality rates have increased over the years; mortality rates of the other 9 diseases have decreased – Alzheimer’s disease 6 th leading cause of death; likely higher than that (as high as 3 rd ) The Hoosier Dementia Dilemma ISNA Policy Conference
Indiana • Projected increase of 18.2% in number of Hoosiers age 65 and older with Alzheimer’s by 2025 • $981 million dollars in Medicaid costs in 2018 – Projected to increase 23.4% by 2025 • 19.6% readmission rate for people with dementia • 338,000 Hoosier caregivers providing unpaid care The Hoosier Dementia Dilemma ISNA Policy Conference
On cruise control at 10 mph heading for a cliff…
Our response to the condition has been as insidious as the disease itself……
The Good News… There is Hope! We DO have ability to manage this unique condition, but it will take calculated efforts that requires actions and fundamental change to our culture. The Hoosier Dementia Dilemma ISNA Policy Conference
So What Do We Do?? Examples of current focus areas to addressing dementia include: 1. Education and Understanding 2. Earlier detection and diagnosis 3. New and innovative models for providing intervention The Hoosier Dementia Dilemma ISNA Policy Conference
The Hoosier Dementia Dilemma ISNA Policy Conference
The Dementia Friends Indiana movement aims to advance education and awareness of dementia, reduce the stigma associated with the condition, and create community environments that are welcoming and conducive for those living with dementia to experience and navigate. The Hoosier Dementia Dilemma ISNA Policy Conference
Dementia Friends Indiana: The Pathway for A Dementia Friendly Hoosier State 2 Main Areas of Focus 1. Education and Understanding Online and In-Person Workshops 2. Community Action and Awareness Positive Community Environmental Changes The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
Education and Understanding Become a Dementia Friend via…….. Online Info Sessions • • 10-15 minutes 45-60 minutes • • Overview video of dementia More thorough than online • • Must watch at least 3 sector specific videos May be public or private • Can be requested at places of businesses, churches, etc The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
What is Dementia Friendly? Dementia Friendly: an environment dedicated to dementia understanding and awareness where those living with dementia feel supported and welcomed by their community members and among all community sectors. The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
The Caregivers A dementia friendly model is about the caregiver as much as it is about the person living with the actual disease. – Twice as many caregivers of those with dementia indicate substantial emotional, financial and physical difficulties – Family caregivers for Alzheimer’s disease and other dementias have an increased risk for anxiety, depression, and poor qualit y of life than family caregivers of any other conditions – 1 in 6 millennials, at an average age of 28, are caring for someone with dementia and report mental, physical, and financial hardships as a result of this role – Spousal caregivers of individuals with dementia aged 66 to 96 have a 63% increase in mortality rates than non-caregivers of those with dementia in the same age range, commonly resulting in the passing of the caregiver before the person in which they are providing care – Isolation and withdraw from communities, and even family and friends, is a common consequence of dementia The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
Isolation Equivalent to Smoking 15 Cigarettes a Day -Brigham Young University; Utah gg The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
Now that you’re a Dementia Friend, take action!!! All community sectors and individual citizens can take small and large Dementia Friends actions. Just some examples may include: • Talking about dementia and engaging Dementia Friends Indiana among your personal and professional networks • Liking and sharing Dementia Friends Indiana on social media • Connecting businesses, churches, government, etc to the Dementia Friends Indiana movement • Engaging a friend or neighbor with dementia or a caregiver for someone with dementia • Hosting info sessions in your communities or exhibiting info at health fairs, community events, farmers markets, etc • Presenting info at your place of work, social clubs, etc The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
You Tell Me!!!!!! We have reached a position where we are gaining the attention of influential government leaders at various levels and departments. If you have an idea or suggestion involving policy or other changes related to the increasing dementia crisis, let me know. Now’s the time! dziegler@cicoa.org Consider this a call to action!!!! The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
Dementia Friends Indiana In Action The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
Dementia Friends Indiana In Action The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
The Hoosier Dementia Dilemma DementiaFriendsIndiana.org
/DementiaFriendsIndiana @DFIndiana /showcase/dementia-friends-indiana @DementiaFriendsIndiana Let’s get social! DementiaFriendsIndiana.org
State Administrator: Help spread the movement by telling friends and family or your station that you are a Dementia Friend! Thank you! DementiaFriendsIndiana.org
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