Thank you Sponsors & Exhibitors Sponsored by Exhibitors Corporate Sponsors
Agenda • Annual Meeting -Highlights of 2018 -2019: A Look Ahead • Research Update • A Story of Hope • Awards Celebration
Mission Our mission is to save lives and provide support to those affected by lung cancer through research, education, awareness and access programs across North Carolina.
Vision Organizational Vision Our vision is to improve life for those affected by lung cancer Three-Year Strategic Vision To reach and impact every county in the state of NC by 2019
Our Staff Michelle McLean Megan Snowdowne Paige Humble Executive Director Operations Manager of Marketing Administrator Courtney Freeman Jenni Danai Lynne Hicks Programs Coordinator Director of Programs Director of Finance Sandy Oehler Director of Special Events
Our Board of Directors Hiren Mehta, MD Amy Cipau, MBA, Shirley Sulick, President UNC REX Pulmonary Survivor Advocate Specialists Jennifer Garst, MD, Board Justin Brian Nicholson, Chairman Jared Weiss, MD Survivor Duke Cancer Institute at UNC Lineberger Sterling Capital Duke Raleigh Cancer Center Comprehensive Emily Parks, Advocate Jeremy Holden, Advocate Cancer Center Chief Strategy Officer, Organize for Success, Clean Design LLC Chad Pecot, MD UNC Lineberger Chris Rallis, JD Comprehensive Liz Hynson, Advocate Cancer Center Pappas Ventures Jim Sheegog, Advocate Edward S. Kim, MD Rowhill Consulting Levine Cancer Institute Group Carolinas Healthcare System
Amy Cipau Founder & President, Lung Cancer Initiative
A Celebration of Survivorship!
Since 2008 we have funded $1.7 Million in lung cancer research with over half of that in North Carolina!
2018 Highlights
Research: Fueling Medical Discovery The amount secured in lung $450,000 cancer research for North Carolina in 2018. The number of researchers being 7 funded in 2018 at five leading cancer centers across NC. “For the first time in my career as an The total amount we $1.7 oncologist, somebody has entrusted me to have raised in lung carry out my own ideas to advance our Million cancer research. knowledge of lung cancer.” --Mike Soike, MD, Wake Forest Baptist Health, 2018 LCI Fellow
Access: Easing the Burden “The gas card program lets patients know that there are good people that do not know them personally attempting to lessen their burden in some small way. The gas cards are appreciated as much as a huge hospital bill being paid as it is a form of sincere , thoughtful, and intentional support. Showing compassion is what helps many patients continue to survive day to day. It is received with much gratitude.” - Hospital Patient Advocate 309,000+ 460 $30,000 Estimated miles Number of $50 gas Amount funded in traveled through cards given in 2018 Access Grants in the gas card to patients in 58 2018. program in 2018. counties in 2018.
2018 Access Grants
Awareness 43 85 3,000+ The number of The total number of Individuals reached survivors at 2018 health fairs and across North Carolina LUNGe Forward 5K through fundraising community races. presentations in 2018. and awareness events
Education: Changing the Conversation 243 47 151 The number of The number of providers and people educated at oncologists educated our 2018 Expert through ASCO Update Speaker Series with dinners. six cancer centers.
Stories of Hope
2018 Development For more than ten years, LCI has benefitted from the generous support of our donors who also share our mission to save lives and provide support to those affected by lung cancer across NC. In recognition of many of our sustaining donors, LCI launched The Giving Hope Society: • Members contribute a minimum of $1,000 annually • Donations can be in memory or in honor of a loved one, made toward a specific LCI event or specifically directed to LCI • VIP reception at the 2019 EOH Gala
LCI Events: Hope in Action Charlotte LUNGe Forward Raleigh LUNGe Forward Triad LUNGe Forward Collectively raised almost $567,000 Evening of Hope
Grassroots Events
Grassroots Events 2018 UnitedHealth Group Golf Tournament Beneficiary • $304,000 • Annual Campaign Mailer • Video Production In memory of Vicky Amidon
-2019- A Look Ahead
Only 10 more to go… We have reached individuals in 90 out of 100 Counties since 2017.
2018 Programs Audit • We heard you! Thank you for your input and for being a part the process: – Enhanced communications about programs and events happening in local communities – More opportunities for survivors to connect – Continued expansion of existing programs – More ways to connect virtually Celebrating 5 years of programs!
Community Education & Survivor Programs • • Advanced Care Planning Greenville • • Annual Lung Cancer Research Update Asheville • • Lung Cancer in Women Durham – Annual Survivor’s Day • • ASCO Updates for Patients Greensboro • • Integrative Medicine Charlotte New online library of PowerUp Series programs!
2019 Research Funding • Fund minimum of $300,000 in lung cancer research in NC – 5 $25,000 Fellows awards – $150,000 Young Investigator/Mid-Level Career – $25,000 Innovation Grant
Building Connections Join our pilot program to connect with others in the lung cancer community, engage in chat conversations, learn more about clinical trials and hear updates about LCI.
LUNGe Forward Charlotte Raleigh Greensboro Saturday, March 30 Sunday, September 29 November - TBD McAlpine Creek Park North Hills Center City Park Charlotte.LUNGeForward.org Raleigh.LUNGeForward.org Triad.LUNGeForward.org
Evening of Hope Once Upon a Time Saturday, April 27 North Ridge Country Club Silent Auction Live Auction Music by “That Nation Band” Dinner Drinks Dancing 2019 Keynote Speaker Adam Klein Winner 2016 CBS Survivor
A Magical Adventure Awaits Purchase a raffle ticket for a 1 in 100 estimated chance to win one of the following magical adventures: Fairmont's in Banff, Calgary & Lake Louise Walt Disney World Family Adventure Napa Valley Epicurean Adventure Raffle tickets cost $100 each. Proceeds go toward the Evening of Hope! one.bidpal.net/eveningofhope2019
Any Golfers Out There?! Hickory Golf Tournament Catawba Springs Country Club Friday, September 27 Triangle Golf Classic Washington Duke Monday, October 14
Get Involved! • Volunteer – Event committees – Health fairs and education booths – Office volunteer – Development, marketing and program committees • Internships • LCI ambassadors across NC
Jennifer Garst, MD Board Chair, Lung Cancer Initiative
Research Updates Jeff Petty, MD Chair, Scientific Advisory Committee
V Foundation, Co-Funded Research Jared Weiss, MD UNC Lineberger Comprehensive Cancer Center Targeting GD2 Ganglioside in Small Cell Lung Cancer “Research has made only very minor advances in the past several decades, and a cure is very rare. Clearly, new approaches are needed. These new approaches must seek not small improvements, but rather, dramatic ones, with the ultimate goal of curing a previously incurable disease .” – Dr. Weiss
Vicky Amidon Innovation in Lung Cancer Research Award Andrew C. Bishop, PhD Assistant Professor, Department of Internal Medicine Wake Forest Baptist School of Medicine Project: Identification and characterization of novel exhaled breath metabolic signatures of lung cancer “Detecting lung cancer signatures in exhaled breath would greatly impact a clinician’s ability to detect cancer earlier and with minimally invasive tests, thereby impacting patient treatment and outcomes.” – Dr. Bishop
Research Fellows Abdul Rafeh Naqash, MD Brody School of Medicine at East Carolina University Project: A pilot study aimed at assessing the role of adenosine A2A receptor in modulating the immune response in non-small cell lung cancer patients treated with immune checkpoint blockade Jacob M. Kaufman, MD, PhD Duke University Medical Center Project: Systematic characterization of pathway dependencies in LKB1 deficient lung cancer
Research Fellows Zachary L. Farmer, MD Levine Cancer Institute Project: A randomized trial of a mobile application to track symptoms reported by patients with lung cancer Emily Ray, MD, MPH University of North Carolina at Chapel Hill Project: Patterns and predictors of unplanned emergency department visits and readmissions in patients with newly diagnosed lung cancer
Research Fellows Michael H. Soike, MD Wake Forest Baptist Medical Center Project: Single Cell RNA Sequencing of lung cancer brain metastases
A Story of Hope Ashley Corn Advocate & Volunteer
In Memory To those we have lost this year, we continue the fight against lung cancer for you!
In Memory G.H. Andis Alton Altman Robert Barry Abbott Bowman Kelly Victor Plati Nicole Russell Ronald W. Tindall
A Celebration of Hope & Action
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