The Lanterman Developmental Disabilities Services Act (Lanterman Act) Update on California’s Developmental Disabilities System The Lanterman Developmental Disabilities Services Act passed in 1969. This California law states that people with developmental disabilities and their families have a right to get the services and supports needed to live UCSF Presentation like people without disabilities. March 2, 2017 Last year marked the 50 th Anniversary of Supporting Consumers in the Community. Nancy Bargmann, Director California Department of Developmental Services Sacramento, CA System Structure Department of Developmental Services Mission Governor’s Office Governor’s Office The Department of Developmental Services (DDS) is California Health California Health committed to providing leadership that results in quality and Human Services and Human Services Agency Agency services to the people of California and assures the Department of Department of opportunity for individuals with developmental disabilities to contract Developmental Developmental 21 Regional Centers 21 Regional Centers vendoriz Service Providers Service Providers s with Services Services e exercise their right to make choices Vision local case direct services and management Developmental Developmental supports Centers Centers “Building Partnerships, Supporting Choices” State Operated State Operated Community Facility Community Facility Consumers Consumers
Consumer Population System Structure As of December 2016 • DDS contracts with 21 regional centers (RCs) throughout California 304,000 to serve over 300,000 individuals who have a developmental 249,500 disability (consumers) 214,000 • RCs work with approximately 45,000 vendors who provide direct 183,000 services and supports to consumers • We work with a system of partners (other organizations, stakeholder groups, individuals and families) to implement the vision of the Lanterman Act 2006 2011 2016 2002 Consumer Population by Age Regional Center Consumer Population As of December 2016 As of December 2016 2002 2006 2011 2016 Inland 35,000 31,300 38% 37% 36% 36% 36% 34% 34% 30,000 33% 25,000 20,000 Average 14,400 15,000 13% 12% 12% 11% 10,000 10% 10% 9% 9% 8% 8% 8% 7% 5,000 Redwood Coast 3,600 - Infants (0 to 2) Children (3 to 17) Young Adults (18 to 21) Adults (22 to 51) Seniors (52 and Older)
Consumer Population by Diagnosis* Consumer Population by Living Arrangement As of December 2016 As of December 2016 2006 2011 2016 2006 2011 2016 1.3% Developmental Center 0.7% 0.3% 69% 0.7% 62% Skilled Nursing Facility 0.5% 0.4% 55% 0.7% Other 0.6% 0.6% 3% Intermediate Care Facility 3% 34% 2% 9% 25% Independent Living 9% 8% 20% 18% 18% 17% 16% 15% 14% 12% 11% Community Care 11% 10% 10% 10% 73% Home of Parent/Guardian 75% 78% Autism Cerebral Palsy Epilepsy Intellectual Disability Other * A consumer is counted under multiple categories if he/she has more than one diagnosis Population of Developmental Centers and State-Operated DDS Proposed Budget Community Facilities FY 16/17 – Updated- Proposed FY 17/18 – Proposed • Community Services • Community Services $ 5.8 bil $ 6.4 bil • Developmental Centers • Developmental Centers $ 0.5 bil $ 0.4 bil • Headquarters Support • Headquarters Support $ 0.1 bil $ 0.1 bil • Total DDS • Total DDS $ 6.4 bil $ 6.9 bil
Federal Funding Who we serve Regional Center Funding for FY 2016-17 General/State Funds $ 3,561,875 California's Population by Ethnicity Regional Center Consumers by Ethnicity (per 2017-18 Governor's Proposed Budget) Asian, 13% Asian, 9% Medicaid Reimbursements $ 2,235,910 Black/Africa Black/Africa n American, Other Federal Funds $ 214,233 n American, 9% 6% White, 32% 3% 1% White, 40% Early Start/Part C Grant $ 52,895 Total $ 6,064,913 * Values in thousands 37% General/State Funds 59% General Fund (GF) is the main operating fund of the state. Medicaid Medicaid Reimbursements provide funding for services Reimbursements and activities such as: Other Federal Funds • Services for eligible individuals who live in their communities. Pacific Islander, 0% • Regional Center activities such as Case Management Pacific • Administrative Functions associated with Medicaid programs. Islander, 0% Early Start/Part C Hispanic/Lat Hispanic/Lat Grant Other, 13% ino, 38% Other Federal Funds: Native Native ino, 38% Other, 3% American, American, • Funds services and activities to support individuals who live in 0% 1% their communities. Sources: DDS consumers: FY 2014-15 Client Master File; California: U.S. Census Bureau, 2010 decennial census. Note: “Other” includes multiple and unreported ethnicity. Who we serve Services Authorization and Utilization $25,000 Consumer Population by Ethnicity 2006 2011 2016 $20,000 0.2% Polynesian 0.2% 0.2% 0.4% $15,000 Native American 0.4% 0.3% 2% Filipino 2% 2% $10,000 6% Asian 6% 7% $5,000 10% Black/African American 10% 9% 8% Other 10% $0 11% White American Indian or Black/African Asian Native Hawaiian or Hispanic/Latino Hispanic Other Ethnicity or Alaska Native American Other Pacific Islander Race 41% White 36% 32% Budgeted Authorized Used Utilized 33% Hispanic 35% Source: Research Section analysis of Client Master File and RC iSeries data, for Fiscal Year 2014-15, Statewide – based per Capita 38%
Recent Changes Services Authorized and Utilization 100% • Restoration of the Early Start Program 95% • 90% Restoration of prior service provider payment reductions 85% 84% 83% • Rate increases for specific service types and to provide additional 81% 81% 81% 79% 80% compensation for direct service providers 77% 75% • Additional funding for a paid internship program and service provider 70% placement incentive funding for competitive integrated employment 65% • White American Indian Black/African Asian Native Hawaiian Hispanic Other Ethnicity or Hispanic/Lati Additional funding to RC to address purchase of service disparities for Source: Research Section analysis of Client Master File and RC iSeries data, for Fiscal Year 2014-15, Statewide or Alaska Native American or Other Pacific Race no Islander the underserved population Source: Research Section analysis of Client Master File and RC iSeries data, for Fiscal Year 2014-15, Statewide DDS Priorities & Initiatives Recent Changes • Increased funding to address statewide minimum wage increases • New Legislation and Funding • Home and Community-Based Settings • Increased funding to facilitate development of community resources for • New Community Service Models individuals transitioning from DCs and to meet challenging service needs • Self-Determination Program • Increase funding for RC Operations • Reduce Inequity/Disparities in Our System • Reduce Caseload Ratios • Reporting on Regional Centers • New Positions • Developmental Center Closures / Transition Activities • Community Development
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