Social networking platforms Social media refers to the means of - PDF document

4/30/2013 * a)I don’t really know what Social Media means b) None (but I know what Social Media means) # c) 1 Social Media Network d) 2 Social Media Networks @Seth Bokser, MD, MPH Associate Clinical Professor, UCSF Medical School e) 3 or more Social Media Networks Medical Director for IT , UCSF Benioff Children’s Hospital • What is Social Media? • Learn how Social Media is being applied in healthcare today • Connect: Consider the Opportunities and Challenges Privacy • Professionalism • -Bosslet GT , et. al. The Patient–Doctor Relationship and Online Social Networks: Results of a National Survey. J Gen Intern Accuracy of health information Med. 2011 October; 26(10): 1168–1174 • -Marcio von Muhlen, Lucila Ohno-Machado Brief communication: Reviewing social media use by clinicians J Am Med Inform Assoc 2012; 19 :5 777-781 Published Online First: 3 July 2012doi:10.1136/amiajnl-2012-000990 Social networking platforms Social media refers to the means of interactions among people in which they create, share, and exchange information and ideas in virtual communities and networks. 1

4/30/2013 Blogs and Wikis Today, I find t hat more people know me from my blog writ ings t han from my 200 peer-reviewed art icles and six books, and t hat I receive more direct feedback about my blog post s t han about virt ually any of my writ ings in more t radit ional media . -Bob Wachter, MD * Micro-blogging (Twitter) a) 0-20% ≤ 140 character “tweets” (blurbs) commonly with links b) 21-40% to other sites c) 41-60% Users include Hashtags (# signs) in tweets about a particular topic so users can more easily find them and follow topics. A method of categorization. What’s d) 61-80% trending? Users include @ signs followed by usernames to mention or reply to other users e) 81-100% 2

4/30/2013 72% of internet users say they looked • Web 1.0 online for health information of one kind or another within the past year. 35% of U.S. Adults “Online Diagnosers” • Web 2.0 * I sort of look up t o t hem and say ‘ If t hey can do it , maybe I can do it ’ . - Teenager in Ontario Hospital speaking of finding other teenage hockey players with his diagnosis Hmm somet imes we do, like about doct ors and st uff like he has a funny hairdo or like medicat ion or st uff like t hat like we compare you know oh did you t ake like what happened when you did t hat . We kind of compare but apart from t hat we don't say like oh yeah I am going for surgery for nanana, it is not like professional, it is j ust for fun. - Hospitalized teenager in Ontario Hospital speaking of how pediatric inpatients interact on Facebook Van der Velden M, El Emam K. “ Not all my friends need t o know” : a qualitative study of teenage patients, privacy, and social media. J Am Med Inform Assoc 2013;20:16-24 doi:10.1136/amiajnl- 2012-000949 Maintain Connect Opportunities Challenges professionalism Connect Maintain professionalism and trust and trust Engage patients where Respect patients’ privacy they live Leverage the masses to Protect patients from empower, educate, and inaccurate, anxiety problem solve provoking, and dangerous health info online *Gartner Research. Forecast: Social Media Revenue, Worldwide, 2011-2016 http://www.gartner.com/newsroom/id/2092217. Accessed March 25, 2013 3

4/30/2013 * * A) I use at least one social platform, and I have received a friend or “connection” request from a patient. B) I use at least one social platform, and I have not received a friend request from a patient. Bosslet GT , et. al. The Patient–Doctor Relationship and Online Social Networks: Results of a National Survey. J Gen Intern Med. 2011 October; 26(10): 1168–1174 US Medical Schools Reporting Unprofessional Content Posted by Students using Social Media 60% 50% • 96% percent of medical students used Facebook* 40% 30% • 19% accepted friend requests from people they did not 20% know* 10% • 52% admitted that there were photos of themselves on 0% Facebook that they found “embarrassing.*” • 60% (47/78) of U.S. medical schools reported incidents of students posting unprofessional online content** * Garner J, O'Sullivan H. Facebook and the professional behaviours of undergraduate medical students. ClinTeach 2010;7:112–15 JAMA. 2009;302(12):1309-1315. doi:10.1001/jama.2009.1387 **JAMA. 2009;302(12):1309-1315. doi:10.1001/jama.2009.1387 4

4/30/2013 2013 1996 2009 Engage Respect patients where patients’ they live privacy • Protected Health Information (PHI): 18 unique patient data elements - “All elements of dates” - “Any unique identifying number, characteristic or code” • Covered Entities = All healthcare providers and employees • Treatment, Payment, or Authorization. Any other use requires the express permission of the patient. 1996 2009 2013 • Patients must separately authorize release of PHI for marketing purposes • Business Associate (BA) = one who on behalf of a covered entity, creates, receives, maintains or transmits PHI on behalf of the covered entity BAs are regulated directly under HIPAA and the BA Agreement • with the covered entity Recent ly, we suspended a user who regist ered as a pat ient in t he Mood communit y. This user was not a pat ient , but rat her a comput er program t hat scrapes (i.e. reads and st ores) forum informat ion. Our syst em, which alert s us when an account has looked at t oo many post s or t oo many pat ient profiles wit hin a specified t ime int erval, det ect ed t he user. We have verified t he account was linked t o a maj or media monit oring company, and we have since sent a cease and desist let t er t o it s execut ives. http://blog.patientslikeme.com/2010/05/20/bentransparencymessage/ * 5

4/30/2013 Separate personal and professional personas • Do not use text messaging for medical interaction • Establish a professional online profile so that it • http://www.aap.org/en-us/my-aap/Documents/SocialMedia_guidelines.pdf appear first in Google search “ S ocial media comes down t o t his Golden Rule: If it applies t o t radit ional Develop educational programs to prevent trainees media or t he Int ernet , it probably applies t o most public social media • plat forms t oo” from harming their future careers JM Farnan, et al. Online Medical Professionalism: Patient and Public Relationships: Policy Statement From the American College of Physicians and the Federation of State Medical Boards. Annals of Internal Medicine. 2013 Apr;158(8):620-627. Empowering, Validity of Health Educating, Crowd Information Sourcing Set personal account privacy settings • to High Do not discuss specific patients in • social media forums - Avoid: “I saw a patient today with DKA” - Okay: “Children with DKA typically present with nausea. . .” Crowd + Outsourcing = Crowdsourcing The practice of obtaining needed services, ideas, or content by soliciting contributions from a large group of people, and especially from an online community, rather than from traditional employees or suppliers. Scientific/Healthcare Context = Crowdsourcing is an online, distributed problem-solving and production model.* *Brabham, Daren (2008), "Crowdsourcing as a Model for Problem Solving: An Introduction and Cases", Convergence: The Int ernat ional Journal of Research int o New Media Technologies 14 (1): 75–90 6

4/30/2013 #Pro-ana #Pro-mia #Thinspiration San Francisco, CA “ I was a few pounds overweight and needed support . I found a great sit e where everyone gave each ot her weight -loss t ips.” “ I shared a phot o of myself and got 47 comment s most ly saying how fat I was.” “ It really mot ivat ed me. I lost 3 st one wit h t he help of t hat sit e.” - 14-year-old female with anorexia http://www.huffingtonpost.co.uk/2012/10/12/social-media-anorexia-bulimia-young-people_n_1962730.html 20 th Century 21 st Century 7

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