S oc i al Context and Communi ty E ngagement Panel Mo de ra to rs: I fe o ma C. Udo h, PhD & She ri We ise r, MD, MPH Spe a ke rs: Cynthia Go me z; Nic ho la s Alva ra do ; Ma rg ue rita L ig htfo o t; Da nie lle Go rdo n; Amina Yuse f; Susa n K e g e le s
E ng a g ing Co mmunity Co nte xt o f HI V/ AI DS Pro g ra mming is unde rg o ing ye t a no the r c ritic a l e vo lutio n: Po lic y: Na tio na l AI DS Stra te g y Pre ve ntio n de finitio ns shifting ? : iPRE X a nd PRE P pre ve ntio n o nwa rds vs. ne w infe c tio ns? Re -e ne rg ize d fo c us o n b io me dic a l inte rve ntio ns He a lth Ca re re fo rm impa c ting tre a tme nt a c c e ssib ility (i.e . c ha ng e s to Rya n White , ADAP, e tc .)
Ro le o f Co mmunity in Addre ssing Dispa ritie s
Critic a l q ue stio ns Ho w do we b ring kno wle dg e fro m the inte rna tio na l c o nte xt to do me stic c o mmunity c e nte re d a ppro a c he s to HI V/ AI DS pro g ra mming ? Ho w do we g e t the kno wle dg e tha t is kno wn in the c o mmunity disse mina te d a t the hig he st le ve ls in o rde r to pro mo te rig o ro us e va lua tio n a nd do c ume nt e ffe c tive ne ss? Wha t a re the le ve ls- individua l, struc tura l, institutio na l/ syste ms le ve l c o nside ra tio ns fo r c o mmunity a nd a c a de mic pa rtne rships? Wha t a re b e st pra c tic e a ppro a c he s to inte g ra tio n…a nd no t le a ving c o mmunity b a se d se tting s “o ut”?
Ca sc a de o f E ng a g e me nt in HI V Ca re a nd T re a tme nt Ga rdne r e t a l. (2011) Clinic a l I nfe c tio us Dise a se s
Ba rrie rs to E ng a g e me nt in Ca re Ada pte d fro m E c o lo g ic a l Syste ms T he o ry (Co e tze e , 2011; WHO, 2010; Bro nfe nb re nne r, 1975) Me nta l illne ss/ drug a b use PL WHA Distrust o f me dic a l syste m (I ndividua l) L a ng ua g e b a rrie rs F o o d inse c urity F ina nc ia l diffic ultie s/ lo w e duc a tio n Pa rtne r / F a mily Ho using insta b ility (I nte rpe rso na l) HI V-re la te d stig ma / disc rimina tio n Co mmunity (So c ia l) L a c k o f ta sk shifting Unde r-re so urc e d a g e nc ie s I na c c e ssib le te sting a nd tre a tme nt Clinic & CBOs (I nstitutio na l) SE S/ g e o g ra phic dispa ritie s Ge nde r dispa ritie s Ra c ia l dispa ritie s/ ra c ism So c ie ty (Struc tura l) Ho mo pho b ia
Stra te g ie s to I mpro ve E ng a g e me nt in Ca re F ina nc ia l inc e ntive s L inka g e to ho using / fo o d se rvic e s PL WHA (I ndividua l) Co -tre a tme nt o f sub sta nc e a b use a nd me nta l illne ss Pa rtne r / F a mily Pe e r te sting / re c ruitme nt (I nte rpe rso na l) So c ia l ne two rk HI V te sting Addre ssing so c ia l stig ma Suppo rt g ro ups (e x: a dhe re nc e ) Co mmunity (So c ia l) Outre a c h tra ining Stro ng c a se ma na g e me nt Clinic & CBOs (I nstitutio na l) Multidisc iplina ry a ppro a c h Ra pid dia g no stic s T a rg e ting disc rimina tio n So c ie ty (Struc tura l) He a lth c a re re fo rm
Clie nt Pe rspe c tive : T hinking Ac ro ss L e ve ls PL WHA (I ndividua l) Why is it c ha lle ng ing to Pa rtne r / F a mily e ng a g e in HI V (I nte rpe rso na l) c a re ? Co mmunity (So c ia l) Clinic & CBOs (I nstitutio na l) So c ie ty (Struc tura l)
Org a niza tio na l Pe rspe c tive : T hinking Ove r T ime a nd Ac ro ss Se c to rs PL WHA (I ndividua l) Pa rtne r / F a mily Ho w c a n re se a rc h (I nte rpe rso na l) le a rn fro m c o mmunitie s? Co mmunity (So c ia l) Ho w c a n HI V se rvic e nic & CBOs (I nstitutio na l) pro vide rs b e linke d to o ne a no the r? Ho w c a n this wo rk So c ie ty (Struc tura l) b e susta ine d?
HOW c a n c o mmunity- a c a de mia pa rtne rships se rve WHAT g a ps e xist in o ur a s a mo de l fo r this wo rk? unde rsta nding o f HI V e ng a g e me nt? WHY? HOW c a n the se stra te g ie s b e susta ine d a nd a pplie d e lse whe re ? HOW?
F o r c o nside ra tio n… I s it impo rta nt to disting uish the ro le o f CBOs a nd the ir impa c t in c o mmunity se tting s? Ho w do we a c c ura te ly de sc rib e this? And if so , ho w c a n we mo ve pa st the se distinc tio ns to e nsure tha t a ll unde rse rve d c o mmunitie s a re a ddre sse d using multi-pro ng e d a ppro a c he s?
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