Register & Be A Lifesaver Full presentation slide by slide guide Slides 1-22 are core slides. This means they should be delivered as part of the full R&Be presentation. Slides 23 – 33 are optional slides. These do not have to be used but are available for you to use if you want to. This suggested script takes 20 minutes to deliver. You are welcome to rephrase, as long as the key message on each slide is conveyed. Slide Suggested script Slide 1 – Title slide Hello, my name is ……” I’m from Register & Be A Lifesaver, an education programme run by blood cancer charity Anthony Nolan Every day, Anthony Nolan helps save the lives of people who are suffering from blood cancer I’m here today to explain how you too can make a difference to the lives of others Slide 2 – Could you be a lifesaver? The aim is to get the audience thinking that saving a life is something they can do…. “Take a minu te to think about the people who save lives every day – paramedics, doctors, firefighters, lifeguards. Hands up if you think you could save a life like that?” “Now, hands up if you think you could save someone’s life, just by giving a little of your time?” Slide 3 – 3 ways to save a life Saving a life doesn’t have to involve bravery or a heroic act Ordinary people save lives every day, by giving some of their time and donating something of themselves Today I’m going to give you an overview of three ways you can save a life – stem cell, blood and organ donation There’s no pressure – I just want to give you facts and encourage you to think about what you’ve heard Some people might find some of the topics difficult, so if you need to leave the room please do so Slide 4 – Adrian ’s story Adrian Sudbury was a 27 year old journalist who died of leukaemia. When he was terminally ill, he led a successful campaign to educate 16 - 18 year olds about stem cell, blood and organ donation. He believed that if young people are given the facts about what it means to be a donor, many more would join the various registers. He wanted to 'bust the myths' surrounding donation The Register and Be a Lifesaver education programme is Adrian's legacy and the reason that you are seeing this presentation today Slide 5 – My story This slide can move where you like in the presentation You can add a photo if you want It’s a place to say why you got involved and are
passionate about raising awareness Your real life story will really engage the students Slide 6 – Organ donation (intro) Registering as an organ donor shows that you’d like your organs to be used to help someone else, after you’ve died There are 10000 people in the UK who are waiting for a transplant right now Surveys show that 82% of people definitely would consider donating their organs BUT only 32% of people have taken the time to register as organ donors – and not all of them have told their family Families are always asked for consent at the time of donation so it’s really important to tell your family what your wishes are Last year in the UK, donated organs saved the lives of more than 900 people But more donors are needed – 3 people die each day waiting for a transplant Additional info (if there ’s time): There is a particular lack of donors from ethnic minority backgrounds A donor needs to be a good tissue match for a patient to give their organs You’re more likely to be a match for someone from the same ethnic background The shortage of ethnic minority donors means it is harder for some patients to get the organ they need Slide 7 – Organ donation (Caragh) Organ donation is needed by people like Caragh - a university student from Scotland She’s healthy now but when she was two, she had a life-threatening liver condition Her life was saved by a liver transplant – thanks to a stranger who’d b een on the organ donor register Slide 8 – Organ donation (who can do You can register at any age – it’s simple. You can register online or by filling in a form we’l l give it) out the end of the talk When you register, you can c hoose what you’d like to donate Remember, if you join the register, share your decision with family and friends” Additional info: If there ’s time, explore the different types of organs and tissue which can be donated (get the group to make suggestions) Slide 9 – Blood donation (intro) “Ask: can anyone tell give me an example of where / when blood is needed? (Answers: A&E, routine operations, people whose conditions mean they need regular transfusions (blood cancer, sickle cell anaemia etc) Blood cannot be stored for long and is always in demand.
6,000 people need to attend donation sessions every day to make sure there’s enough blood for those who need it We need more regular donors – in the past year, only 2.3% of people in England who could give blood actually did so* *Note: 2.3% of the eligible population, defined as people aged 17-70 in England Slide 10 – Blood donation (Henry) People like Henry rely on blood donors Henry is from London and he has sickle cell anaemia, an inherited disorder of the red blood cells which is more common in black and ethnic minority communities Regular blood transfusions are what helps Henry and others like him to stay well and live longer Slide 11 – Blood donation (who can do You can start giving blood from the age of 17, like it) Chloe. “ She ’s now a regular blood donor and says she does it because ‘it is very important for me to help other people if I would want to be helped myself. Giving blood makes me feel proud and happy because I know it could be saving somebody’s life, which is t he best gift anyone can give.’ You can register online to give blood – or take away one of our forms today Once you’ve signed up, you’ll get a letter telling you where your nearest session is – or you can book an appointment online WHAT HAPPENS ON THE DAY? You arrive at your appointment and a nurse takes you through a short medical form They’ll prick your finger and test a drop of blood to check your iron levels They may also check your height and weight, to ensure your blood volume is high enough for you to donate You’ll sit in a comfy chair and have a needle placed in one arm One unit of blood is taken – about a pint (470ml) . This part takes 5-10 minutes You get something to eat and drink and then you can go home You’ll have given an hour of your day – but your one unit of blood can save three lives Slide 12 – Stem cell donation (intro) Ask if the audience have heard of stem cell or bone marrow donation Many people haven’t heard of stem cell transplants – but 2000 people in the UK need one each year Slide 13 – Stem cell donation (facts) Stem cells are made in bone marrow, which is inside our bones They develop into other kinds of cell – including blood cells
If someone has a blood cancer, their stem cells aren’t developing properly Sometimes their only hope is to have a transplant – which means killing off their unhealthy cells and replacing them with healthy cells from a matching donor Slide 14 – Stem cell donation (Beth) Transplants are needed by people like Beth (left) Beth’s now 19 – she was diagnosed with leukaemia when she was three She had lots of treatment but, when she was 14, doctors said only a stem cell transplant would save her life There’s only a 30% chance that a brother or sister will be a matching donor – most people get their match from a stranger on the donor register Beth’s sister Jemma (right) wasn’t a match but Beth was lucky – she found a match from the register and had her transplant Beth is now studying at university (London School of Economics) S he said: ‘It feels wonderful to look forward to the future. Wi thout my donor I wouldn’t be able to get my A- Levels or go to uni. It’s thanks to them that I have all these amazing opportunities.’ Additional info (if there ’s time / if relevant): You are more likely to be a match for someone with the same ethnic background There is a shortage of donors from ethnic minority backgrounds which means it’s harder for patients from these backgrounds to find a match If you’re white, northern European, you have a 96% chance of finding a match – this drops to 60% if you’re from a BAME background Slide 15 – Stem cell donation (who You can join the Anthony Nolan stem cell donor can sign up) register if you are aged 16-30 and weigh more than 7st 12lbs (50kg) You’ll stay on until you are 60 and there’s a 1 in 900 chance that you’ll be asked to donate in the next five years. Think about it before you register. If you’re a match for someone, you might be their only match - so you need to feel confident that you’d go through with the donation if you got the call HOW DO YOU REGISTER? To sign up, you need to fill in application form. You can do that on the Anthony Nolan website (or at an event if we’re coming back to run one) You’ll be given a smal l tube and you need to spit into it and send it back to Anthony Nolan Your saliva will be tested to get your tissue type, which is put on the register with your details You’ll get a donor card in the post to confirm you’re on the register
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