National Gender Identity Clinical Network Scotland (NGICNS) Annual - PowerPoint PPT Presentation

National Gender Identity Clinical Network Scotland (NGICNS) Annual Review 2015-2016

NGICNS 1. Welcome, shape and purpose of the session 2. Presentation – the work of the Gender Identity Network in 2015-2016, ongoing work and future priorities 3. Annual report: circulated for discussion 4. Plenary Q&A 5. Scottish Government Perspective 6. Work group session • Has the network progressed the right issues? • What are the areas which the network needs to focus on for 2016/17? • Is the network engaging effectively with patients? • Has the website developed in a way which is helpful to patients? • Any other issues the group wants to raise? 7. Feedback from workgroups 8. Thanks and Close

What is NGICNS anyway? Definition of a Clinical Network ‘linked groups of health professionals working across organisational, geographical and professional boundaries to ensure equitable provision of high quality, clinically effective services… not about creating additional structures… about working differently and getting things done’* Aims to delivers service improvement *Scottish Government (MEL (1999) 10)

NGICNS • Established in 2014 • What we do ‘With the primary aim of supporting people undergoing their medical transition, NGICNS aims to work with gender identity clinics, gender reassignment surgical providers, primary care, patient and third sector representation to achieve timely, coordinated, service provision and equitable access to planned gender identity clinical services across Scotland’ • How we do it Service user engagement – meetings, patient events  Sharing good practice  Service planning and development  Training  Development of national standards of acceptable care 

NGICNS What we did in 2015-16 You said “Are there policies in place to help reduce waiting times?” Gender clinics have increased the number of staff – with four additional staff being taken on at Sandyford, extra sessions being provided in Highland, a new staff member in Lothian and plans to recruit additional staff in Grampian. GICs are considering new models of service delivery. There is a lot more to do, as more people are accessing the services – the data we have had from GICs suggest an overall caseload of 1202 at May ’15, in Feb 2016 this was noted as in excess of 1592 – an increase of 30% in six months - likely to be conservative. You asked “What is being done for non -binary identifying people who wish to seek surgery without hormones?” NSD are holding a meeting between the surgical service GIC referrers and NSD who approve the funding, to ensure there is complete clarity on all the criteria.

NGICNS What we did in 2015-16 You asked “Is it possible for individuals to receive prescription wigs through the GIC?” NGICNS issued a letter to all Boards with recommendation that provision should be made, and are in contact with Scottish Government to ask that the wording of the information on wigs be amended to explicitly include provision for transgender people. You asked “What information is being sent to GPs regarding Transgender issues and Gender Dysphoria ?” We have attended a CPD event for 120 GPs in Glasgow to raise awareness about the network, to signpost to what training that does exist, and ask GPs about their learning needs. In response, we have put a collection of resources on the ‘for professionals’ page on the website and are due to present to 120 GPs in Grampian in 2017. We are working to make the case to the GP training organisation that more needs to be done in terms of education for GPs and practice staff.

NGICNS What we did in 2015-16 You said “Please talk with front facing staff in GICs regarding the need to use gender neutral pronouns when addressing people from the Community” We have agreed to fund and work with STA to provide a training session for GIC staff on gender neutral pronouns and the issues faced by non- binary service users. You said “Provide more information regarding surgeries available on the NHS on the NGICNS website” We have an updated leaflet from St Peter’s now on the site, and included more information from Pennine Acute Trust. We now have a website working group and have an ongoing list of information to update. You said “Can you consider how access to hormone services could be enabled” We have written to all Boards to clarify the requirements around prescribing, are updating the endocrinology guidelines, and will provide training in these for endocrinologists.

NGICNS What we did in 2015-16 You asked for more information on access to hair removal and assisted conception services NGICNS have issued a letter to all Boards, asking that provision be made for service users across Scotland. You asked for more information on treatment pathways NGICNS Explanatory Notes for GRP and the NGICNS Endocrine Management of Adult Transgender Service users were completed in 15- 16 and were hosted on the NGICNS website. The endocrinology guidelines are in the process of being further updated and will be re- issued in 16-17. You asked what we were doing to reduce waiting times in Children and Young people’s services? Much more requires to be done, but Sandyford has now taken on two new members of staff – to help deliver this service. The network is working with Sandyford on providing better information about services for children and young people.

NGICNS What else we did in 2015-16 • Information sessions with GICs and other partner organisations - engaged with approx 170 service users; over 100 people attended the Glasgow event, with 48 registering in Tayside and Highland, and 18 attending the Lothian session. • Nominated in the ‘Public Body of the Year’ category at the Scottish LGBTI Awards, Glasgow, September 2015. • Steering group - Widened representation from 2016 – parent groups, young people’s groups. Linked with Scottish Government justice and equalities departments to try and influence policy.

NGICNS Ongoing Work and Plans for 2016-17 • Continue to respond to an increase in patient numbers • More work required on pathways, including facial feminisation surgery • Working groups Non-binary - Gaining the views of NB service users to understand barriers to accessing service, and put in place actions to improve services - met first in August Leaflets - Working with Scottish Transgender Alliance, clinicians, TansparenTsees, Health Scotland and practice nurses on two leaflets, one relating to young people and their carers, the other for adults, to be made available through all networks and on NGICNS website Website ( www.ngicns.nhs.net) - Working with members of the Steering Group and GIC staff to improve the NGICNS website – will focus test with members of the Trans community in 16-17

NGICNS Ongoing Work and Plans for 2016-17 • Surgery More work will be carried out with the GICs and surgical providers in to ensure that the referral process for surgery is clear and consistent and that referrals are managed with the minimum of delay to patients • Waiting times More will be done in 2016-17 to ensure that GIC data re. numbers of service users and waiting times is collected consistently. This will be used to inform delivery of services • Education and Training NGICNS will provide training in 2016-17 to Endocrinologists re. hormone prescribing for Trans patients NGICNS is working with partners to offer training around the needs of service users to NHS staff

NGICNS Thank you for listening!

NGICNS 1. Welcome, shape and purpose of the session 2. Presentation – the work of the Gender Identity Network in 2015-2016, ongoing work and future priorities 3. Annual report: circulated for discussion 4. Plenary Q&A 5. Scottish Government Perspective 6. Work group session • Has the network progressed the right issues? • What are the areas which the network needs to focus on for 2016/17? • Is the network engaging effectively with patients? • Has the website developed in a way which is helpful to patients? • Any other issues the group wants to raise? 7. Feedback from workgroups 8. Thanks and Close