My Journey I took 18 months to conceive my first child Had - PowerPoint PPT Presentation

My Journey  I took 18 months to conceive my first child  Had Gestational Diabetes  No continuity of care  Only saw my consultant once  Told not to worry about stillbirth risks

Aidan  Aidan James Eldridge was stillborn weighing 5lb 4oz  His death is marked as unexplained on the post-mortem  Was told his death was ‘just one of those things’  Later realised Aidan was growth restricted Aidan’s Ted  Was promised better care in a future pregnancy  Never get over the shock and devastation of loosing a child

If only...  I had been told to monitor Aidan's movements. I may have noticed a reduction and been assessed  My trust had been running the GAP programme. A customised growth chart may have detected Aidan's lack of growth  I had been empowered with information and thought to call my midwife to report a sharp pain I had felt two days prior to his death Hold those thoughts!

My Journey Cont.... • Miscarried at 9 weeks • Received specialist dietry advice & prescribed Metformin • Tobiah Lysanias arrived safely in 2010 • In 2012 I suffered an ectopic pregnancy • Tilly May arrived safely in 2013 – spent the week in NICU • The end of my pregnancy journey!

Tobiah & Tilly 

Stillbirth & Neonatal Deaths  The UK has one of the worst stillbirth rates in the whole of the developed world  Over 5700 babies die in the UK every year, that's 100 every week  The majority of stillbirths are preventable  By breaking the stigma that nothing can be done, discussing complications with mothers and supporting midwives, these shocking statistics could be halved

Stillbirth In the News  Jeremy Hunt's pledge to halve stillbirths by 2030, November 2015  RCOG's Each Baby Counts, 2015  MBRRACE Report, November 2015  The Lancet Report, January 2016  National Maternity Review, February 2016  NHS Saving Babies Lives Care Bundle, March 2016

MBRRACE • Testing for GDM was not performed in about 2/3 of women • with risk factors – screening may have prevented the stillbirth. • In 2/3 of stillbirths – guidance for moitoring growth was not followed. • Included failure to perform SFH or plot measurements, failure to respond • to abnormal measurements and failure to arrange serial assessment of • growth with other risk factors. • Half of reported RFM – missed opportunities to prevent stillbirth. • ¾ stillbirths – no local reviews & ones that were carried out were of • poor quality • Lessons not learnt and same mistakes occuring.

MBRRACE • Thorough investigations of baby deaths are key to learning any potential lessons to prevent similar tragedies • SCORE by The Perinatal Institute. Sands Perinatal Mortality Tool coming soon • Over half of baby deaths being classed as unknown • ELHT found only 17% of stillbirths should have been classed as unexplained rather than 49% stated on certificates • Extensive guide for using CODAC on MBRRACE system • Your trusts statistics can be accessed via the MBRRACE website incl. comparables • Every trust should strive to reduce stillbirth no matter how well they • are performing as EVERY BABY MATTERS

Back to basics • Do your colleagues know how many babies die in the UK? • Does your trust believe nothing can be done? • What is on your risk register? • - Can you be part of the solution? • How many stillbirths did your trust have last year? • Could any have been avoided? • What investigations took place? • What were the outcomes? • What changes were made?

Innovations Taunton and Somerset reducing stillbirths by: • Placing cigarette stickers on GROW charts • Celebrate 100 days without a stillbirth • Communicate baby deaths with whole team • Childs voice activated outside maternity unit Visit our Innovations page for more details

Our Charity Aims to help babies arrive safely by:  Empowering parents with vital knowledge and education on health in pregnancy and when to call their maternity team for advice  Supporting healthcare professionals by keeping them up to date with the latest practices, guidelines and research to provide consistent maternity care including stillbirth prevention presentations  Raising awareness of baby loss and the UK's statistics

Our Partners l Our website is accredited by Royal College of Midwives (RCM)  We work in partnership with NHS England, Department of Health (DH) and are members of the International Stillbirth Alliance  We are working with the London Ambulance Service on exemplar resources for paramedics and community/independent midwives which may be rolled out across the country  Collaborating with RCM on a training module for midwives  Stakeholders within DH safer pregnancy messaging and NHS Saving Babies Lives care bundle

Our website – for midwives  Skill refreshers  - training video on accurately measuring SFH  Current research and guidelines  Study days  Midwifery news  Join our mailing list

Our website – for mums • Positive about pregnancy • Essential information – no gimmicks • When to call the midwife • Babies movements • Antenatal notes explained • Awareness on conditions such as diabetes • Health information such as smoking • Delayed cord clamping • Postnatal Depression • Breastfeeding

GAP The steady increase in number of Trusts which have implemented GAP has been mirrored by a year on year drop in ONS stillbirth rates in England

Made to Measure Campaign  By the end of 2017, 90% of trusts  will be signed up to GAP  Part of the NHS Saving Babies Lives Care Bundle.  It's estimated that if all trusts run GAP 1000 babies lives could be saved every year  Continuing to push for all trusts to adopt GAP to better detect growth restriction and save babies lives - Is your trust fully implementing GAP?

MAMA Leaflets • Essential information for mums-to-be • Free to all UK trusts • Download it in other languages • Pictorial poster on symptoms to report • In line with Safer Pregnancy Messaging • Includes info on RFM

Wellbeing Wallets l Empower mothers with key health information l wherever she goes, given to mothers by their l midwives at the first appointment l Assist midwives in discussing sensitive topics with l mums such as smoking, signs of preeclampsia and l how to monitor babies movements l Give mothers permission to call their maternity team with any l concerns and advises they should be assessed when reporting l reduced movements

Wellbeing Wallets l Information forms part of Department of Health and Sands 'Safer Pregnancy Messaging‘ l Addresses top stillbirth question by Stillbirth Priority Setting Partnership  A years pilot of 80,000 wallets within 15 trusts  reported a significant decrease in stillbirth rates

Wallet Feedback “ One mum who self-referred to hospital with fetal movement concerns had an immediate emergency c-section due to pathological CTG, reported that she had rung because she had been prompted by the message on her wallet. She felt she may not have done so if she didn’t have the constant reminder in front of her. ” Kettering Hospital February 2016

Wallet Feedback “ One woman noticed the signs when things were not going well from the information on the wallet, this prompted her to attend labour ” ward and she had pre-eclampsia. Lewisham and Greenwich NHS Trust July 2016

Wellbeing Wallets • Just 55p each + delivery • Currently distributed within • 30 trusts nationwide Collect your samples today!

MAMA Champions Are you passionate about saving babies lives? “Stillbirth Prevention Officers” in every trust to: • Disseminate current midwifery news & guidelines • Communicate national stillbirth work • Work with us on stillbirth prevention ideas • Receive our posters and leaflets Get your MAMA Champion badge today !

Your help  Join our mailing list  Follow us on social media  Write articles for our website  Display our posters  Distribute our leaflets  Raise funds for Wellbeing Wallets  Raise awareness of stillbirth prevention  Keep saving babies lives

Get in touch www.mamaacademy.org.uk /mamaacademy @mamaacademy heidi@mamaacademy.org.uk