Msconnection.org Online Group Training
Today’s Discussion • Setting up online groups – Why? – Things to think about first – How? – Things to consider as you move forward • Resources • Support • Q & A
Why set up an online group? • Provide an additional option for group activity – Group members can seek support in between group meetings • Faster communication to more group members – Changes in schedule – Research updates – Resource links • Accommodates members who can’t attend in person • Include a wider geographical area
MSconnection.org
Online Community Why MSconnection.org? • We control the platform and can make changes to improve quality and functionality • Brings together people with common experiences in a trusted, safe place • Ability to connect people affected by MS to many other facets of our online resources (Ask an MSNavigator, other support options)
Online Groups Things to think about first: • Establish joint leadership • Establish clear title and audience of the group • Most groups should be private, but not hidden
How? Online Group Creation
Online Groups Managing Conversations • Make regular posts to keep it fresh and engaging • Moderate discussion, remove anything offensive • Welcome new members • Set ground rules
Online Groups Ground Rules • Be sensitive and respectful to others • Use a meaningful subject line • Respect confidentiality • Be careful about religious posts • No soliciting • Share medical experiences, not advice • Inserting links from external websites requires pre-approval
Q & A • Questions and Comments
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