Ministry of Health and Long-Term Care x Aphasia Institute Projects
People with aphasia need to have critical conversations about their own healthcare. Aphasia Institute 40 years of giving hope to people with aphasia
Funding Provided! • The Ministry of Health and Long-Term Care has provided one time funding of $1.2 million over three years (2017-2020) for the spread of Supported Conversation for Adults with Aphasia (SCA TM ) to health care professionals across Ontario.
With the Ontario Ministry of Health’s generous support, key internationally recognized tools and training developed by the Aphasia Institute can be free in Ontario. This crucial funding aimed enable health care providers to offer more accessible and equitable care for those with aphasia.
WHY THIS MATTERS • Health care system costs • Negative health-related quality of life • Social costs related to the impact of aphasia on identity and family relationships
A SOLUTION FOR ONTARIO The funding granted to the Aphasia Institute will enable those in Ontario to access a select range of vital free resources and tools related to the evidence-based method called Supported Conversation for Adults with Aphasia (SCA™), including: • Information about aphasia in an accessible pictographic format • A large searchable database of pictographic images relevant to aphasia • A basic eLearning module • On-site basic SCA™ training spots • An online quality improvement measure for institutions treating stroke patients
What is Aphasia? • A resource booklet for patients providing information about aphasia in a pictographic format. • Now free for healthcare providers in Ontario
“1,000 Booklets to be Distributed” 2,970 English Booklets have been distributed 276 French Booklets have been distributed
ParticiPics • A searchable database of pictographic images designed to facilitate conversations. • Now free Internationally
Templates I want to talk about… Template Event Template
Progress
Introduction to SCA TM eLearning • Intro to SCA ™ eLearning is a FREE, short, (under 60 minutes) online introduction to Supported Conversation for Adults with Aphasia (SCA ™) • This eLearning provides the basic concepts of SCA™ to assist healthcare practitioners in making healthcare conversations possible for those who have a communication barrier like aphasia.
Who can take SCA TM eLearning • Any healthcare practitioner can take SCA™ eLearning. • It is highly recommended for those working in the area of stroke and aphasia. • Includes practical and video examples of concrete techniques.
Participants Learn: • how aphasia affects patient communication and • what can be done to decrease language barriers and improve access to healthcare for individuals with aphasia
• This eLearning prepares participants for other Aphasia Institute training should you desire to learn more - it is a prerequisite for other Aphasia Institute trainings. • Time to Complete SCA™ eLearning is under 60 minutes.
Community Hub • The Intro to SCA TM eLearning is hosted on Community Hub • We are currently working on adding the ability to register for professional training within the Aphasia Institute
• In the near future, the Community Hub will enable health care providers to join online interactive webinars, discuss training experiences through an online social platform, and store material in an online personal library.
Our Reach Since July • Launched eLearning and Community Hub end of July – internationally free • Now have 940+ people registered on Community Hub • 330+ people have completed eLearning through Community Hub
Training • Free spots in the Core Training Courses for healthcare providers in Ontario available at the Aphasia Institute • Off-site trainings within Ontario
Training • Onsite (at the Aphasia Institute) • Kingston • Sudbury • ThunderBay • Hamilton • We anticipate we’ll have trained 200 HCPs in two years.
CAMS • Communicative Access Measures for Stroke (CAMS) • An on-line Quality Improvement tool for stroke services and/or organizations to help evaluate communicative access for patients. • Free Internationally
CAMS Organizational and/or system- CAMS1 Administrator level policies and procedures Attitudes and practices of CAMS2 Staff service providers Experiences with CAMS3 Patient/Client communication access
Results are shared in an anonymized and aggregated fashion. This allows institutions to compare with pooled data of other CAMS users
Results Can Be Used For: • Assessing and developing health equity plans • Accreditation Planning • Service quality improvement initiatives • Continuing education needs
CAMS 1
CAMS 2
CAMS 3
Example of Report • External Comparison
Gift of Conversation Box
What’s included in the ‘Gift of Conversation’ Package • What is Aphasia? Booklet • Ring of wipeable laminated pictographs for healthcare conversations. • USB preloaded with free online resources and links. • Patient ID cards • Conversation “loot bags” for HCP colleagues • Other communication resources
250 Boxes Made
IMPACT
What Is Aphasia Booklets “ I have used it with new clients whenever they join my groups. We work through the booklet, ensuring that everyone understands aphasia and has a chance to share what it means to them---all facilitated by this resource. I always marvel at how my long time clients lead the conversation with the new members, finding new things to talk about and providing some hope with the “Aphasia and the Good News” pages. The booklet seems to cover every essential aspect that both new and old clients need to talk about! ”
What Is Aphasia Booklets “ Last week I used this resource with a woman who has been living with aphasia for almost 10 months, and her daughter. During the conversation both of them were moved to tears and both of them had many questions to ask. The most disturbing of which was “why is it that no one has been able to help me and my mom understand that what she is living with is called aphasia and what it means -- in almost a year, when all it would have taken is to sit down with us and use something as simple as this book ”? ”
ParticiPics
eLearning “ I’ve just completed the training and agree it is excellent with really clear messages and examples. Thank you! I will add this to our stroke therapy team induction plan and integrate into our student conversation partner training ” Twitter
Training “ I attended SCA workshops and found this learning opportunity very enriching. I feel more enthusiastic about providing supported communication to people with aphasia as a means of including patients in social conversations, and a possible “ramp” for enabling deeper conversations as the patient needs them. So I feel more able to tackle deeper issues as they may arise. ”
Training “ Inspirational. Not only in becoming a better CDA with those who have aphasia, but also pursuing my passion as an advocate for those with aphasia. ”
Training “ Exceptionally useful. I was engaged for the entirety of the course and feel far more confident about my ability to advocate for communication access for my patients, their families and my community. I would encourage all health professionals and anyone who cares for someone with aphasia to learn the SCA approach. ”
Using CAMS for Training Impact
Using CAMS for Training Impact
Gift of Conversation • We have delivered 200/250 packages since July. “ Just received “The gift of conversation” package and wanted to say THANK YOU! I love the small yes/no cards and I know the rest of the resources will come in handy in our facility with not only our team, but our patients and their families. ”
THANK YOU! Questions?
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