Welcome National Conference on Engaging, Patients, Families and Communities in all Phases of Translational Research to Improve Health
Logistics ONSITE DUKE STAFF Lloyd Michener Brenda Lugar Ann Lane Angie Arrington Marcie Fuson CONFERENCE BOOKLET Located at the registration table SOCIAL MEDIA Follow us on Twitter @Duke_CFM and tweet with us during the conference using #CEnR2014
RESTROOMS Located around the corner of Salon A (where we are now), if you exit Salon A- C, make a right and you’ll see the signage for the restrooms Breakfast, Lunch & Snacks (Food) Salon D • Located adjacent to Salon A-C Poster Abstracts Presentation Salon D • Poster and Presentation with informal discussions during lunch
BREAKOUT ROOM ASSIGNMENTS Salon A-C - General Session Room • Located on the lower level of the conference center, right at the bottom of the escalators Brookside A - Breakout Room • Located on the lower level of the conference center, right at the bottom of the escalators Brookside B - Breakout Room • Located on the lower level of the conference center, right at the bottom of the escalators
All Presentation Materials and Slides Will Be Posted on the Conference Website at https://www.dtmi.duke.edu/ce-workshop Presenters, Please Leave Your Materials at the Registration Desk
CONFERENCE AGENDA “Engaging Patients, Families and Communities in all Phases of Translational Research to Improve Health” August 21-22, 2014 Thursday, August 21, 2014 8:00 – 8:30 Welcome and Overview: Lloyd Michener, MD 8:30 Plenary I:Engagement of New Voices and Perspectives in all Phases of the Research Process Speaker: Christopher P. Austin, MD, Director, National Center for Advancing Translational Sciences 9:30 Keynote: “Nothing About Us Without Us:” Community Engagement in HIV Research: Judith Auerbach, PhD, Consultant and Adjunct Professor, School of Medicine, UCSF 10:30 Break 10:45 Plenary II: Engagement of New Voices and Perspectives in the Translational Research Process: The Cystic Fibrosis Story. Robert Beall, PhD, CEO and President, Cystic Fibrosis (CF) Foundation 11:45 Networking Lunch/Poster Discussions
CONFERENCE AGENDA “Engaging Patients, Families and Communities in all Phases of Translational Research to Improve Health” August 21-22, 2014 1:00 Breakouts – 2:40 Plenary III: Translational Research at the Community Level: New Perspectives, New Questions, New Solutions. Grace Damio, Director of Research and Service Initiatives, Hispanic Health Council (HHC), Hartford, CT 3:40 Break 3:50 Panel I: Methods for Engaging the Communities in Translational Research. Panelists: Breakout Group Facilitators 4:50 Closing : Lloyd Michener, MD
CONFERENCE AGENDA “Engaging Patients, Families and Communities in all Phases of Translational Research to Improve Health” August 21-22, 2014 Friday, August 22, 2014 8:00 Welcome and Introduction: Sergio Aguilar-Gaxiola, MD, PhD, University of California, Davis Speaker : Petra Kaufmann, MD, Director, Division of Clinical Innovation, National Center for Advancing Translational Sciences 8:30 Plenary IV: Partnering with Patients, Practices, and Communities in Clinical and Implementation and Dissemination Research . Ann Bonham, PhD, Chief Scientific Officer, Association of American Medical Colleges 9:40 Breakouts- 11:20 Panel II: Methods of Engaging Communities in Translational Research II. Panelists: Breakout Group Facilitators 12:20 Adjournment: Sergio Aguilar-Gaxiola, MD, PhD, University of California, Davis 12:30 Box Lunch/Poster Dismantle
2014 C E Conference Planning Committee Members MILTON “MICKEY” EDER, PHD SERGIO AGUILAR-GAXIOLA, MD, PHD Department of Family Medicine and Community Professor of Clinical Internal Medicine Health Director, Center for Reducing Health Disparities University of Minnesota University of California Davis School of Medicine WILLIAM N. ELWOOD, PHD PHILIP M. ALBERTI, PHD Opportunity Network Facilitator Senior Director Office of Behavioral and Social Sciences Health Equity Research and Policy Research(OBSSR) Association of American Medical Colleges National Institutes of Health DEBORAH COLLYAR SHEIILA FLEISCHHACKER, PHD President Senior Public Health and Science Policy Advisor Patient Advocates In Research (PAIR) NIH Division of Nutrition Research Coordination 3687 Silver Oak Place National Institutes of Health Danville, CA 94506 Department of Health and Human Services Two Democracy Plaza, Room 635 LINDA B. COTTLER, PHD, MPH 6707 Democracy Boulevard Associate Dean for Research and Planning MSC 5461 College of Public Health and Health Professions Bethesda, Maryland 20892-5461 Dean's Professor and Chair-Department of Epidemiology College of Public Health and Health Professions and College of Medicine
2014 C E Conference Planning Committee Members CHRISTINE M. HUNTER, PHD, ABPP J. LLOYD MICHENER, MD Professor and Chair Director of Behavioral Research Department of Community and Family Medicine Division of Diabetes Director, Duke Center for Community Research National Institute of Diabetes and Digestive Duke University Medical Center and Kidney Diseases FERNANDO PINEDA-REYES IDA JOHNSON-SPRUILL, PHD, RN, LISW, CEO/CREA Results FAAN Chief Executive Officer/Promotor de Salud Associate Professor CREA Results College of Nursing (Community+Research+Education+Awareness=Results) Medical University of South Carolina MERYL SUFIAN, PHD DONNA JO McCLOSKEY, PHD, RN, FAAN Program Officer Program Director Division of Clinical Innovation Division of Extramural Science Programs National Center for Advancing Translational Sciences (DESP) (NCATS) Office of Extramural Programs (OEP) National Institutes of Health (NIH) National Institute of Nursing Research One Democracy Plaza 6701 Democracy Blvd. Bethesda, MD 20892-4874
The “hard core” committee members from 2008 on: • Sergio Aguilar-Gaxiola, MD, PhD • Donna Jo McCloskey, PhD, RN, FAAN • Lloyd Michener, MD From 2009 on: • Mickey Eder, PhD
Engaging Patients, Families and Communities in all Phases of Translational Research to Improve Health J. Lloyd Michener, MD Professor and Chair Department of Community and Family Medicine Director, Duke Center for Community Research Duke University Health System National Community Engagement Conference Bethesda, MD August 21, 2014
Community Engagement and the CTSAs A rapid walk through seven years of work 2008 2009 2010 2011 2012 2013 2014
2008 2009 2010 2011 2012 2013 2014 • Community Engagement Key Function Committee started • First face to face meeting Accelerating the Dissemination and Translation of Clinical Research into Practice - Theresa Cullen, MD, MS Indian Health Service - Joe V. Selby, MD, MPH Kaiser Permanente
2009 2008 2010 2011 2012 2013 2014 Improving Health WITH Communities: The Role of Community Engagement in Clinical and Translational Research - Joy Bramble; The Baltimore Times - Ann Macaulay, MD; McGill University, Quebec, Canada - Treena Delormier, Kahnawake Schools Diabetes Prevention Project, Quebec, Canada - Mary Wakefield, RN, PhD Health Resources and Services Administration
2010 2008 2009 2011 2012 2013 2014 Partnering to Improve Health: The Science of Community Engagement - Ida Spruill, PhD; Medical University of South Carolina - Sergio Aguilar-Gaxiola, MD, PhD; University of California, Davis
2011 2008 2009 2010 2012 2013 2014 2011 Using IT To Improve Community Health: How Health Care Reform Supports Innovation - Todd Park, Chief Technology Officer, U.S. Dept. of Health & Human Services - Lt. General Bruce Green, MD Surgeon General, U.S. Air Force
2011 2008 2009 2010 2012 2013 2014
2011 2008 2009 2010 2012 2013 2014 Follow the Principles of Community Engagement Principles of Community Engagement • On line English and Spanish: http://www.atsdr.cdc.gov/communityengagement • Print copies: www.atsdr.cdc.gov/communityengagement/pce_printcopy.html
What is a community? A group of people united by at least one common characteristic. Such characteristics could include geography, shared interests, values, experiences, or traditions. Principles of Community Engagement, 2 nd edition Clinical and Translational Science Awards Consortium Department of Health and Human Services June 2011
2012 2008 2009 2010 2011 2013 2014 Methods, Metrics and Outcomes: Evaluating the Success of Community Engaged Research - Maria C. Freire, PhD Albert and Mary Lasker Foundation - Susan Kunz, MPH, Health Promotion and Disease Prevention, Community Health Center, Nogales, Arizona - Kathy Burlew, PhD, Professor University of Cincinnati NIDA Clinical Trials Network - Leandris Liburd, PhD, MPH, MA Office of Minority Health and Health Equity, CDC
2013 2008 2009 2010 2011 2012 2014 The CTSA Program at NIH Opportunities for Advancing Clinical and Translational Research Released: June 25, 2013
Community Engagement: “the process of working collaboratively with and through groups of people affiliated by geographic proximity, special interest, or similar situations to address issues affecting the well- being of those people” The CTSA Program at NIH: Opportunities for Advancing Clinical and Translational Research Principles of Community Engagement, Second Edition. Washington, DC: U.S. Government Printing Office, 2011
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