MIE2011 Workshop: Towards a Research Agenda for Social Media in Healthcare and Academia Peter J. Murray, Chris Paton, Margaret Hansen, Peter L. Elkin, Luis Fernandez-Luque Peter J. Murray IMIA Social Media Working Group
Peter J. Murray RN, PhD, MSc, CertEd, FBCS CITP CEO, IMIA Introduction/moderation of worksop and discussion; overview of social media IMIA Social Media Working Group IMIA Social Media Working Group
Introductions Short presentations Discussion Next steps? IMIA Social Media Working Group IMIA Social Media Working Group
With acknowledgements to some colleagues and collaborators who cannot be here in person ... IMIA Social Media Working Group IMIA Social Media Working Group
Goals of the workshop 1. to stimulate discussion 2. to lead to the development of a research agenda on issues in the use of social media in healthcare, health informatics, and in related academic disciplines 3. to address the twin issues of (1) research into the use of social media within healthcare and academia, and (2) the use of social media as research tools. IMIA Social Media Working Group IMIA Social Media Working Group
Issues Issues will include, but not be limited to: - Conducting evaluations of social media application use in healthcare; - Data-mining social media healthcare applications for academic research; - Using social media (e.g. blogs, video) and technologies (e.g. mobile devices such as video iPod, iPad) for education and for enabling academic research; - Developing collaboration tools and virtual organisations or researchers, and leveraging social tools for data collection; - Exploring the implications (e.g. with other IMIA, EFMI, APAMI, AMIA WGs) of the intersection of health informatics with social media; - Discussing what are the next steps for social media and academic research. IMIA Social Media Working Group IMIA Social Media Working Group
IMIA Social Media Working Group Set up at Medinfo2010 GA (Cape Town) International membership Strong Spanish-speaking membership Active in supporting IMIA's 'bridging role' to other organisations and people Help define/promote/evaluate and research IMIA's social media use IMIA Social Media Working Group IMIA Social Media Working Group
IMIA Social Media Working Group - why? Why not? - because everyone else uses it? To explore its use – does SM have potential, or is it all just empty rhetoric – the next 'bubble'? IMIA's exploration of social media use: - improve communication and interaction with members and the wider community - research the real potential - lead rather than follow - contribute to the evidence-base for use, benefit IMIA Social Media Working Group IMIA Social Media Working Group
IMIA Social Media Working Group IMIA Social Media Working Group
IMIA Social Media Working Group IMIA Social Media Working Group
IMIA Social Media Working Group IMIA Social Media Working Group
IMIA Social Media Working Group IMIA Social Media Working Group
Peter Elkin's messages Web 3.0 is coming - and this deals with semantic search and connections. The (US) FDA has decided what to regulate in terms of mobile computing which includes Usability of those applications Online teaching is now changing education as a social phenomenon. IMIA Social Media Working Group IMIA Social Media Working Group
Chris Paton BMBS BMedSci MBA FACHI Senior Clinical Research Fellow, National Institute for Health Innovation, University of Auckland, New Zealand Researching Social Media in Healthcare IMIA Social Media Working Group IMIA Social Media Working Group
What is Social Software? is it Web 2.0?...
$0 to $1,600,000,000 in 21 months
“ If you click edit and you see some Wiki syntax and some bizarre table structure - a lot of people are literally afraid . ” Jimmy Wales , Founder of Wikipedia, 2011
20 billion page views per month
Reflexive Feedback Loop
Complexity
Why does this matter in healthcare?
Lithium Experiment
Margaret Hansen Ed.D., R.N. Associate Professor Illustration of the use of video iPods, iPads, and wiki-educator in research/education. IMIA Social Media Working Group IMIA Social Media Working Group
Millennial Social Medical Intern Research Participants
Video iPods in Medical Education Pilot Randomized Controlled Trial: New Zealand Base To determine whether instructional videos via iPods regarding urinary catheterization would increase undergraduate medical students’ confidence and enhance skills competencies Pilot trainee interns; 10 control; 11 intervention ~intervention= 3 mos video iPod access ~control= no access to technology Results: Control group decline in skill competency over time; whereas, skill level remained stable for the intervention group. ~Intervention group’s confidence levels for performing female catheterization increased significantly over time
Video iPods in Nursing Education Pilot Randomized Controlled Trial: California Base To determine whether instructional videos via iPods regarding urinary catheterization would increase nursing students’ confidence and enhance skills competencies Pilot nursing students; 9 control; 7 intervention ~intervention= 2 week video iPod access ~control= no access to technology Results: Close to zero variation for skill competency for both groups; Confidence levels did not significantly change over time ~ however, anecdotal notes imply students desire to have high self confidence in performing both male and female urinary catheterizations
What do we make from all of this? ~Time-on-Learning can be tracked in the future ~Determine where and when the students view the instructional videos ~Gather information from formative evaluations ~Provide listener/viewer some sort of interactivity option with the vodcast producer to answer questions/provide appropriate feedback ~Recommend longer time with the video iPods ~Offer more than one type of skill for the learner and compare and contrast outcomes
iPad uPad? ~Voted #1 of top ten innovations and most tweeted about technology topics in 2010 ~Short time on the market, however, it is being used in healthcare, business and education ~Graduate students introduced to the iPad Fall 2010 and used it to assist them with their patient teaching project in Clinical Sites ~Research potential Annecdotal notes: ~ The iPad is visually transfixing ~ Cutting edge apps, such as Heart Pro, ECG iPocket cards, Nimble, OsiriX HD, Blausen Human Atlas
Wiki Educator Graduate students have been creating instructional projects using Wiki Educator for the past two years. They are being used in clinical setting for staff and patient teaching Here is one example: Wiki Educator: Autism Spectrum Disorders
Luis Fernandez-Luque @luisluque PhD Student, Researcher, Northern Research Institute & Tromsø Telemedicine Laboratory, Tromsø, Norway Health Videos and Social Media IMIA Social Media Working Group IMIA Social Media Working Group
• YouTube is the third most visited web in the world. • Over 3 billion videos watched daily • And...I don't watch TV • 150 years of YouTube video are watched every day on Facebook (up 2.5x year/year) IMIA Social Media Working Group
• CDC has 4M views, NHS has 7M views • More than 500 US hospital and 20K videos • Many patients are video blogging • Videos about advice (flu pandemic), awareness (diabetes day), emotional support, healthy habits. IMIA Social Media Working Group
IMIA Social Media Working Group
The jungle: • Proanorexia videos • DIY surgery • Anti-vaccination videos • Not always good information IMIA Social Media Working Group
Should we use YouTube for Public Health, TV or printed press? How effective is YouTube? Should I recommend YouTube or Vimeo? What is next? IMIA Social Media Working Group
1. Demographics: not everybody is on YouTube (but more and more are). 2. It is hard to find good videos, but there are out there. 3. In most studies, most of the videos were OK (polemic topics are worse). 4. Many good videos are poorly published (lack description, title). 5. Next: Interactive videos, 3D videos. 6. Need for more research: effectiveness, privacy, quality, information retrieval, etc. IMIA Social Media Working Group
Discussion The interactive bit – over to you ... Next steps? IMIA Social Media Working Group IMIA Social Media Working Group
For further contact: peterjmurray@gmail.com c.paton@auckland.ac.nz luis.luque@norut.no maggie2hansen@gmail.com IMIA Social Media Working Group IMIA Social Media Working Group
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