Improving Acute Stroke Services by Co- Creating Patient Centred - PowerPoint PPT Presentation

Improving Acute Stroke Services by Co- Creating Patient Centred Research CIHR/SPOR Patient Engagement Collaboration Grant Noreen Kamal April 4, 2016 Calgary, AB

CIHR/SPOR Patient Engagement Collaboration Grant Funded by CIHR (Canadian Institutes for Health Research) • Sponsored by SPOR (Strategy for Patient-Oriented Research) • The objective is to: • – Identify and implement inclusive engagement mechanisms, processes and approaches that value patient perspectives, experiences and skills throughout the research process; and – Facilitate opportunities for researchers and knowledge users, including patients, to work together to identify problems and gaps, set priorities for research, and produce and implement solutions.

Our Submission • “Improving Acute Stroke Services by Co-Creating Patient CentredResearch” – PI: Dr. Michael Hill – Principal Applicant: Dr. Noreen Kamal – Knowledge User: Kelly Mrklas – Collaborators: Drs. Nancy Marlett and Svetlana Shklarov • Ranked 2 nd /35 applicants (top 4.3 percentile) – Top 11 were funded (31%)

“Improving Acute Stroke Services by Co-Creating Patient CentredResearch” Goals : 1. To train and support stroke patients in conducting patient-oriented research in their roles as patient researchers with the intent of improve acute stroke services 2. To share research findings and support patient researchers in the sharing of research findings with patients, clinicians, researchers, health service teams and NGOs

“Improving Acute Stroke Services by Co-Creating Patient CentredResearch” • The partnership: – QuICR (Quality Improvement and Clinical Research) – Alberta Stroke Program – PaCER (Patient and Community Engagement Research) – CvH&S SCN (Cardiovascular Health and Stroke Strategic Clinical Network)

“Improving Acute Stroke Services by Co-Creating Patient CentredResearch” • Strategy – An integrated, participatory, and patient-centred approach to stroke research will be realized by training patient researchers through the PaCER program, – embedding patient-focused research within QuICR’s research program and the CvHS SCN to facilitate and accelerate its uptake and use to improve stroke services.

Planned Activities 1. Recruiting adequate stroke patients 2. Training patients in theory and methods 3. Providing support in designing patient engagement research 4. Providing an internship to conduct patient engagement Research

Planned Activities • QuICR worked through its clinical resources within the CSP to recruit patients that would be willing to be a part of the PaCER internship • PaCER provided training of patients, but also an internship, where they conducted research – Patient engagement research by patients

Planned Activities • Student stroke PaCERs conduct the research – Includes full ethics approval – Full aspects of research (e.g. participant recruitment, facilitating focus groups, data collection, data analysis etc.) – Learn more about the methods and results in next session

Knowledge Exchange • Use an integrated Knowledge Translation approach (iKT) • Disseminate findings to end users – Heart & Stroke Foundation (public awareness) – CvH&S SCN: Health System – Stroke Clinicians – Together with the research participants and patient researchers • What this Dinner Event is all about!

Objective and Outcomes • Co-develop tangible next steps from the finding from the research