Sw Swed edea eampkonfer eransen en 201 2015 Amputations & & Prote tesregiste ster 10 10-11. 11. s septem ember 2 2015 15 How can w e brighten the future for amputees? - a user’s view Nils-Odd Tønnevold BA MBA Dr hc President, International Confederation of Amputee Associatons (IC2A) Chairman, the Norwegian Limbless Association Momentum Founding partner, Connectum Capital – financial & investment advisers
What wh when lif life is turned upside down wn? Swedeampkonferansen 2015 - a user's view Swedeampkonferansen 2015 - a user's view
Understanding amputation - phases of crisis and grief • Shock & disbelief • Reacting • Adjusting • Adapting The quicker we can inspire people back on their feet the better Swedeampkonferansen 2015 - a user's view
What wo would we we like? - basic needs of amputees as human beings 1. 1. Co Comfort rt - ability to wear and use the prosthesis without pain 2. 2. Stab abili lity - ability to stand and walk confidently 3. 3. En Ener ergy e effi ficiency - to carry out work & leisure activities 4. 4. Loo ooki king g good ood, n not clumsy - shape, colour & mastering limb 5. 5. Durabilit ity y & s & servi vice ce frien endlines ess – minimum ’downtime’ 6. 6. Abili ility t to t tac ackle le differ eren ent te terrain – adaptive feet, dampening of socket shocks 7. 7. Stay fi fit t – walking, running, swimming, running, jumping, skiing ... Swedeampkonferansen 2015 - a user's view
Fut uture ’ e ’Bes est P Practice’ e’ - from user’s view 1. 1. Team a m assessme ment – needs analysis & individual check list 2. 2. Rehab go goals – setting, motivating, handling expectations 3. 3. Qu Qual alit ity y – fitting & production against individual check list 4. 4. Che Check ck s sock cket – check fit, it not all else is in vain 5. 5. Speed eed – delivery within 2 days (max 5) 6. 6. Training g – physiotherapist and prosthetist working together 7. 7. Foll ollow u up – telephone, within 5-10 days – does everything work as expected? Swedeampkonferansen 2015 - a user's view
Structural i issues - key to delivery 1. 1. Special ialisation ion or or general alisation ion 2. 2. Centralisati tion or or decentral alis isation ion 3. 3. Loc ocal, n nation ional al o or i internatio ional al e educatio ion Swedeampkonferansen 2015 - a user's view
Hopes a and a aspirations 1. 1. Coher eren ent te teams – wholistic rehabilitation 2. 2. Teamwor ork k – users & professional organisations 3. 3. Cooper erati tion – nationally, regionally & internationally 4. 4. Education & & furth ther er educati tion – continuous learning 5. 5. Resea earch & & dev evel elopmen ent - innovation & rethinking Swedeampkonferansen 2015 - a user's view
What is need eeded in order to achieve this? • Ability to measure and analyse in a systematic, universal and internationally acknowledged manner… • …how rehabilitation from A to Z – from planning surgery through to prosthetic fitting and gait training – is currently performed • This provides the facts and understanding to allow conclusions and recommendations as to improvements to be made and implemented • We need a tool to collect these facts and we are interested to learn from the Swedish experience • We need change now! Swedeampkonferansen 2015 - a user's view
Presentation of Nils-Odd Tønnevold BA MBA Dr hc President, IC2A
The P e Par aris is Mee eetin ing Representatives from seven European countries – Belgium, Netherlands, France, Germany, Ireland, UK and Norway - met in Paris 25 March 2015 and decided to form an international resource group to inspire and support national amputee associations to improve the lives of amputees. 10
Founder M Member A Associations 11
Aim Founded in 2015 to inspire and enable amputees to live their lives to their fullest potential by sharing knowledge and international best practice among national amputee associations 1. Peer inspiration and information exchange through individual and group discussions 2. Motivation to increased mobility by personal example through sports, outdoor activities and social events 3. Financing of appropriate limbs and rehabilitation from A to Z 4. Limbs for sports is part of rehabilitation 5. Freedom of choice of appropriate components 6. Freedom of choice of rehabilitation centre and prosthetic fitting providers 7. Quality of socket fit, service and speed of delivery 12
Stra rategy The aim is sought achieved through: 1. Creating an efficient, delivery-orientated structure 2. Operating transparently and ethically inspiring confidence 3. Partnering with organisations with shared goals 4. Securing funding from EU and other sources to enable delivery yet retaining independence 5. Collecting and sharing information on best ideas and practices 6. Making information from member associations in a common language – English 7. Inspiring and supporting each other to achieve more for amputees, more speedily 13
Mileston ones a achiev eved Created an interim board and assigned specific responsibilities Approved Constitution ensuring transparent and ethical operation inspiring confidence Partnered with ISPO – signed Memorandum of Understanding (MoU) Key partner behind #ISPOWER international advocacy campaign for access to P&O Devices & Rehabilitation WHO wants IC2A as partner and sign MoU Momentum first member assocations to have translated all material to English Invited to establish “IC2A Lecture” at future ISPO World Conferences reaching the world of P&O Addressing Swedeamp conference 14
Inter erim B Board Dr Nils-Odd Tønnevold, President Norway Dieter Jüptner, Vice President Germany Jean Pascal Hons-Olivier, Secretary France 15
Contact det details IC2A c/o Adepa 21 rue du Brûlet 69110 Sainte-Foy-Les-Lyon France www.ic2a.eu 16
Thank y you ! Thank you ! Swedeampkonferansen 2015 - a user's view Swedeampkonferansen 2015 - a user's view
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