FHA PFE Learning Collaborative Patient and Family Advisors: Onboarding and Expanding Opportunities for Involvement August 25, 2017
Today’s Agenda • Welcome and Introductions • Moffitt Cancer Center: Patient and Family Advisory Program: Cultivating and Sustaining Partnerships • Questions • Resource Overview • Closing
ReadyTalk Webinar Platform Overview
FHA Team Introductions • Allison Sandera Project Manager, FHA allisons@fha.org • Sari Siegel, Ph.D., CPHQ FHA Consultant, Senior Study Director, Westat sarisiegel@westat.com
First Annual FHA PFE Summit Highlights Powerful Partnerships: Improving Quality and Outcomes – July 21, 2017 Speakers: • Beverley Johnson, President and CEO, Institute for Patient- and Family-Centered Care (IPFCC) • Thomas Workman, PhD, Principal Researcher, American Institutes for Research (AIR) • Julia Lanham, Patient Advocate, Carolinas Health System • Sari Siegel, PhD, Senior Study Director, Westat Panelists: • H. Lee Moffitt Cancer Center & Research Institute • Health Central Hospital • Memorial Health System Access the agenda and slide presentations here
Patient and Family Advisory Program: Cultivating and Sustaining Partnerships Kim Amtmann-Buettner, Manager Patient Advisory & Executive Patient Program Christine Healy, LCSW, Oncology Social Worker
Moffitt Cancer Center • Third busiest cancer center in U.S. • Patient visits per year: – 350,000 outpatient visits – 19,000 new patients – 9,600 surgical cases – 9,300 admissions • The only Florida-based National Center Institute Comprehensive Cancer Center.
Patient & Family Advisory Program Infinity Partnerships Discovery Peer Visitors Support Growth Social Work Commitment Recruiting Advisors The Beginning Creation of PFAC - 2005
Advisor Overall Involvement Committee Activity 2014-2017 80 70 60 50 40 Utilization of Advisors' Time FY 17 30 20 10 14% 0 Input 2014 2015 2016 2017 39% Committees 13% Events/Marketing Training 34%
Recruitment • Staff /Faculty • Volunteer Department • Advisors/Peer Visitors • Digital Signs • Website • Social Media • Events • PARTNERS
Recruitment Process • Telephone conversation to discuss program and interests Initial • 2 staff members interview individual regarding program, personal experiences and motivation Interview • Moffitt Volunteer application and general process • PFAP Training • Orientation for PFAP Onboarding • Patient and Family Orientation • Coffee Connection (for peer visitors)
Characteristics of a Potential Patient/Family Advisor • Shares insight and information about their experiences in ways that allows others with different perspectives to learn from them. • Sees beyond their own personal experiences. • Respects the perspectives of others. • Interacts well with others. • Articulates ideas clearly. • Asks questions. • Listens well and respects the opinions of others. • Works in partnership with others.
Self Selection Natural Encouraged • Overwhelmed with • In denial about readiness to volunteer requirements interact in cancer setting • Overwhelmed with • Poor listening skills emotions evoked during • Inappropriate or displaced interview anger • Realizing they won’t be able • Recognizing they have a to promote self-interests personal agenda
Statistics of Advisors Introduced to the Program (7/1/15 – 6/30/16) Individuals Referred to the Program and Contacted (phone or e-mail) 37 Advisors Interviewed for Program 27 New Advisors to Program 12 Advisors who left Program (PFAC term limits, health, work, etc.) 8 Total number of Advisors who participated in PFAP during FY16 45
Advisor Training • LCSW provides 2 hour orientation – Understanding role as a committee member – Working on committees in a clinical setting – Mindful delivery of message/input • Active listening, boundaries, confidentiality • Compassion fatigue • Cultivating their individual skill set
Ongoing Training/Support • Monthly Meeting / R&R (reflect & recharge) – Meetings include “business” and presentations • Input from advisors – R&R include opportunity to reflect and provide support • Offer optional meditation • Informal drop-in checks / chats • Education offered through Moffitt
Team Approach • Recognizing strengths and interests of advisors/peer visitors. • Learning the unique characteristics of each unit/clinic and determining their specific needs. • Partnerships with nurse managers, nurses, social workers in carving out the role of the advisor in each setting. • Education of all staff on the advisors’ role. – Committee members or as Peer Visitors
Introducing to the Team
Introducing to the Team
“Training” for staff A Guide for Staff • Assist staff with working with advisors on committees • Provides background of program • Process for requesting advisors • Tips for working with advisors
Ongoing Challenges • Recruitment and screening. • Staff buy-in. • Handling delicate situations (progressive illness or death). • Helping advisors to recognize when they are becoming stressed. • They are unpaid and need lots and lots and lots of support, kudos, hugs and thanks.
Benefits • Fills a unique void for patients and family members seeking peer support. • Channels altruistic inclinations of survivors. • Encourages personal healing for peer visitors. • Provides patient and family perspective in clinical areas. • Promotes atmosphere of support. • Can lead to new initiatives.
Start Out Small … Put Your Toe in the Water
Contact • Kim Amtmann-Buettner – 813-745-1390 – Kim.Buettner@Moffitt.org • Christine Healy, LCSW – 813-745-7269 – Christine.Healy@Moffitt.org PatientAdvisors@Moffitt.org
Questions?
FHA PFE LEARNING COLLABORATIVE Getting Started with Advisors: Resource Overview
Steal shamelessly, implement wisely
Recruitment | Interviewing | Training |Partnering
AMA: Patient and Family Advisor Recruitment Guide and Onboarding Toolkit
BJC Health Care Patient and Family Advisory Council: Getting Started Tool Kit
Source: Guide to Patient and Family Engagement in Hospital Quality and Safety . Content last reviewed February 2017. Agency for Healthcare Research and Quality, Rockville, MD. https://www.ahrq.gov/professionals/systems/hospital/engagingfamilies/index.html
Materials you developed? • Do you have any interview questions/recruitment processes you would be willing to share with other PFE LC members? – If so, please post to Freedcamp! – Or send to Allison (allison@fha.org) and we will post it on Freedcamp so everyone can access it.
What is Freedcamp? Freedcamp is a resource sharing and collaboration website that FHA is utilizing for our PFE Learning Collaborative. Resources available include: • Events listing • Discussion board • Peer resource sharing • Articles • Evidence based resources (guides, toolkits, etc.)
Getting started with the FHA PFE Resource and Collaboration Site on Freedcamp You may see more than one project listed if you are already registered with Freedcamp for another project. Please select the ‘FHA PFE Learning Collaborative’ project.
Questions?
Upcoming Events • Sept. 7 – HRET HIIN Sepsis Virtual Event • Sept. 11 – HRET Informational Session for SNAP Sepsis • Sept. 12 – Chasing Zero Infections Webinar on Preventing Sepsis • Sept. 14 – HRET HIIN Reduce Readmissions Fishbowl • Sept. 18 – Readmissions Stakeholder Summit | Westin Lake Mary • Sept. 22- FHA PFE Learning Collaborative Webinar • Sept. 26 – TCAB Cohort 2 Nursing Unit Launch Meeting | Harry P. Leu Gardens, Orlando • Sept. 27 – TCAB Cohort 1 Mid-point Meeting | Orlando, FL • Sept. 28 – Sepsis Workshop | Orlando, FL • Nov. 7-8 – TeamSTEPPS Master Trainer Course | Vero Beach, FL (Sept. 28 Pre-meeting Informational Webinar) • Nov. 16 – Chasing Zero Infections Meeting | Davie, FL Check your MTC HIIN Upcoming Events Weekly Email for details and registration
What is Transforming Care at the Bedside? • TCAB is an international quality improvement and innovation initiative to engage the bedside staff in improving patient outcomes and nurse vitality on a nursing unit • FHA HIIN TCAB led by national expert Betsy Lee RN • TCAB focuses on improving the effectiveness of the entire bedside care team to improve quality, patient safety and engage the patient and family in their care • TCAB Collaborative is free to FHA HIIN hospitals, and provides one-on- one coaching, monthly webinars and 2 meetings TCAB Nursing Unit Launch Meeting is Sept 26 in Orlando For more information or to join TCAB, contact Sally Forsberg RN at sally@fha.org or call 407-841-6230
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