Exploring the Eugene Washington PCORI Engagement Award Program Dial one of the following access numbers from any touch tone phone: 1 (866) 640-4044 (Toll-Free (US & Canada)) +1 (678) 302-3554 (International Dial-in (Toll)) When prompted, enter 479652# Press *0 for technical assistance November 19, 2014 1
Agenda Welcome and Introductions About PCORI and Engagement About Engagement Award Program Application Process Award Spotlight: Franciscan Helps Families Connect Award Spotlight: Integrating Patient-Centered Outcomes Research into Hospital CHNAs 2
Welcome and Introductions Jean Slutsky, PA, MSPH , Chief Engagement and Dissemination Officer and Program Director for Communication and Dissemination Research Lia Hotchkiss, MPH , Director, Engagement Award Program Shivonne Laird, PhD , MPH, Program Officer, Engagement Award Program Rachel Benz , Contracts Administrator, Contracts Management Jane O'Brien, MD , Chief Medical Officer, Franciscan Hospital for Children Carol Nash, MS , Director of Research Operations, Franciscan Hospital for Children Marie Cleary-Fishman, BSN, MS, MBA, CHCQM , Health Research and Educational Trust 3
Questions and Comments We welcome your questions and comments; use the chat function on the right side of your screen. We welcome your comments via Twitter to @PCORI and #PCORI. An archive of this webinar will be posted to http://www.pcori.org/get-involved/pcori-in-practice/ following this event. 4
About PCORI 5
About PCORI An independent research institute authorized by Congress through the Patient Protection and Affordable Care Act Funds comparative clinical effectiveness research (CER) that engages patients and other stakeholders throughout the research process Seeks answers to real-world questions about what works best for patients based on their circumstances and concerns 6
PCORI Mission PCORI helps people make informed healthcare decisions and improves healthcare delivery and outcomes by producing and promoting high-integrity, evidence-based information that comes from research guided by patients, caregivers, and the broader healthcare community . 7 7
Patient and Stakeholder Engagement Engages patients and other stakeholders from across the entire healthcare enterprise and involves them meaningfully in the entire research process—from the development of our research priorities to the dissemination of research findings Patients are partners in research, not just “subjects” Active and meaningful engagement among scientists, patients, and other stakeholders Engagement as a tool to advance research 8
Engagement as a Path to Useful, High-Quality Research Proposal Review; Topic Selection Design and and Research Conduct of Prioritization Research PCORI Stakeholders Patients Caregivers Advocacy Organizations Clinicians Researchers Purchasers Payers Industry Hospitals and Health Systems Policy Makers Training Institutions Evaluation Evaluation Dissemination and Implementation of Results 9
About Engagement Award Program 10
Engagement Goals Build a patient-centered outcomes research (PCOR) community Engage the PCOR community in research Promote dissemination and implementation of PCOR research findings 11
Eugene Washington PCORI Engagement Award Program Launched in February 2014 Provides support for projects that lead to better integration of patients and other stakeholders in the healthcare research process A programmatic funding opportunity not research awards Program budget $15.5 million (FY 2015) Awards up to 2 years in duration; $250,000 total costs Fund awards through contracts rather than grants; PCORI programmatic involvement with the awardees is expected throughout the post-award process 12
Engagement Award Categories Knowledge Awards : Increase knowledge about how consumers of healthcare information view, receive, and make use of patient-centered outcomes research (PCOR) and clinical comparative effectiveness research (CER) Training & Development Awards : Build capacity for participating in PCOR and CER and create ways to connect patients, caregivers, and other stakeholders with the research community Dissemination Awards : Develop and strengthen channels for disseminating and implementing PCOR and CER findings 13
Engagement Award Initiative Notice (EAIN) Provides support for meetings and conferences to facilitate expansion of PCOR and CER Examples of conference themes eligible for funding: • Research design and methodology • Research development • Dissemination and implementation 14
Our Growing Engagement Award Portfolio 20 unique projects awarded*; many more applications in the pipeline under review Focus on a variety of PCORI stakeholder groups: patients, caregivers, clinicians, hospitals and health systems, researchers, policy makers Will produce information that is useful to awardees, PCORI, and the broader PCOR community for increasing patient and stakeholder engagement in PCOR and CER We are committed to sharing and using this information *as of November 17, 2014 15
Sample Project Deliverables A landscape review of programs used by policy makers to leverage PCOR and CER, and a roadmap to guide them in the use of PCOR and CER An enhanced year-long training curriculum designed to educate and engage health center teams including patients and clinical and administrative staff in PCOR An openly accessible, web-based portal with resources about engagement for both patients and researchers A conference summary that defines the academic approaches to PCOR and CER training 16
Not Intended to Support Small research grants Planning grants/pilot studies Evaluations of interventions Tool validation Development of decision aids or clinical practice guidelines Meetings that are business as usual, without focus on PCOR or CER Career development awards 17
Our Application Process 18
Who Can Apply Private Sector • Nonprofit and for-profit research organizations Public Sector • Universities and colleges; hospitals and healthcare systems; laboratories and manufacturers; units of state, local, or federal government. U.S. Organizations • Must be recognized by the Internal Revenue Service Foreign Organizations and Nondomestic Components of U.S. Organizations • May apply if here is demonstrable benefit to the U.S. healthcare system; U.S. efforts in the area of patient-centered research can be clearly shown Individuals • Not permitted to apply 19
How to Submit http://www.pcori.org/funding/opportunities 20
Review Process Submit If Invited, Decision PCORI PCORI Letter of Submit to Review Review Inquiry Proposal Award/Not (40 days) (20 days) (LOI) (40 days) Award • If applying for meeting/conference support, you do not need to submit an LOI. Applicants proceed directly to submitting a full proposal. • LOIs and proposals for meeting/conference support accepted on an ongoing basis, but reviewed quarterly beginning on January 2, April 1, July 1, and October 1 . • Applications are reviewed by at least 3 members of PCORI’s Engagement Team, Contracts Management and Administration, and other internal staff, as needed. 21
Merit Review Criteria Applications are reviewed against six criteria: 1. Program Fit 2. Project Plan and Timeline 3. Qualifications of Project Lead 4. Personnel and Collaborators 5. Past Performance 6. Budget/Cost Proposal 22 22
Allowable vs. Unallowable Costs 23
Franciscan Helps Families Connect 24
Franciscan Helps Families Connect Dr. Jane O’Brien Chief Medical Officer, Franciscan Hospital for Children Carol Nash Director of Research Operations, Franciscan Hospital for Children November 19, 2014
Franciscan Helps Families Connect: Project Team Franciscan Hospital for Children, Brighton, MA Project Team: Jane O’Brien, MD: Project Lead Carol Nash, MS: Project Manager 3 Parent Partners
Franciscan Helps Families Connect: Issue Addressed Children with medical complexity (CMC) represent a growing percentage of the pediatric population and have a high medical resource utilization. Identifying opportunities to improve care coordination for this fragile group of children from their parents’ perspectives is a unique opportunity that will need to be embraced by healthcare providers across the continuum of care.
Franciscan Helps Families Connect: Key Stakeholders Our key stakeholders fall into two groups: Parents stakeholders Parents of children with chronic, complex medical conditions in Massachusetts. Healthcare providers Professionals from different areas who are involved in the delivery of care or management of services to children with complex medical conditions.
Franciscan Helps Families Connect: Goals & Objectives Create a network for communication of parent-identified issues related to the care of their CMC. Identify the common barriers parents encounter while trying to ensure the best care for their CMC. By giving parents a united voice and establishing an effective partnership between parents and healthcare providers, we expect to develop collaborations and solutions through research and other activities.
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