European Huntington Association Heritable neurodegenerative disease - PowerPoint PPT Presentation

European Huntington Association Heritable neurodegenerative disease 50% chance Starts normally at the age of 30-50 In Europe 50.000 patients EHA is an umbrella organisation Represented in 28 countries 30.000 members

European Huntington Association VIDEO

Cost per patient Cost per patient (UK) £ 28.000 per year per patient = £ 1.400.000.000 = Euro 1.800.000.000

Reducing costs Proper health service = reducing the cost per patient New technology = Aritficial Intelligence Dir. Martin Seychell: «Only a fragment of all the health data collected is used. The data should be standardized and accessible. Data is the resource in research.” “The Commission see research to be the main strategy to solve our future challenges. That is why we have 100 billion Euro in the next 5 year budget set aside for research. Digital solutions and infrastructure has a budget for 20 billion euro. “

Individual level Change from the expert role to a collaborative teamwork Involve the patient and their partner/relative in the desicion making will make him/her more responsable and proactive in checking out if this works for me Reducing “tons” of medicine being prescribed without any beneficial effect for the patient!

Thank you!