Digital Child Health and Maternity Update Briefing – 15 May 2017
Agenda 14:00 – 14:30 Digital Child Health overview 14:30 – 15:15 Child Health Information Standard and Events Catalogue 15:15 – 15:30 Break 15:30 – 16:00 Alpha phase 16:00 – 16:30 Maternity 16:30 – 17:00 Questions
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Digital Child Health – National overview Presented by Thomas Burnett Digital Child Health Programme Manager
Background to programmes Healthy Children: Transforming Child Health Information , a strategy commissioned by NHS England September 2015, delivered July 2016, published November 2016. NHS Digital work began July 2016 (Discovery) Maternity Transformation Programme , formed on the back of the National Maternity Review (Feb 2016). 9 Workstreams, 2 dedicated to information services and technology. NHS Digital handed remit for a Discovery period for Workstream 7: Harnessing Digital Technology in September 2016.
Healthy Children – strategy vision ‘Knowing where every child is and how healthy they are’ ‘ Appropriate access to information for all involved in the care of children’
A number of current challenges National Personal Child Health Record (PCHR) still on paper Limited capability to manage children unregistered to GPs and offer them preventative services Deficiencies in managing local populations highlighted by National Incident Team report, children at risk of missing out on preventative services Healthcare professionals don’t have access to a core summary of child health information, records are fragmented across systems Services still very paper driven and manually intensive
Directors of Public Public Health Public Health & Children’s Health Commissioners Research & Policy England Services Maternity CAMHs National Audit CYP Dataset GPES Dataset Dataset Emergency & Mental Health Voluntary Services Education Services Acute Services Services Delivery of all other care services (Some Children) Community Neonatal Services Social Services Justice Services Professional Health Services Midwifery Health Visiting Primary Care School Nursing Delivery of Healthy Child Programme Maternity Screening Primary Care (All Children) SCR Information Systems Information Systems Systems CHIS / CHIS / CHIS / CHIS / CHIS / CHIS / 90 CHRD CHRD CHRD CHRD CHRD CHRD CHRDs School Entry Chk 8/12/16 wk Imms 12/13 mth Imms 4-5yr eyesight 6-8 Week Exam 2/2.5 yr Integ 3yr 4mth Imms Year 6 Check 12 mth Review Year 8 HPV Bloodspot New Baby Booster Personal Health Hearing Review check Review NIPE Imms PCHR 4y 0d 5d 8d 11d 7w 9w 12m 13m 24m 40m 5y
Healthy Children – where do we start? With the basic building blocks: • A first layer of essential child health information for exchange • A first phase of systems exchanging that information - Maternity, Child Health GP systems and Personal Child Health Records • A roadmap for growing the scope and sophistication of the information exchange • Adding in new services as they become available, for example, national Failsafe for Healthy Child Programme
How it works Other New Services National Failsafe Citizen Management Identity Service ePCHR Relationship National Events Management Management Service Hub Events Registration Design Authority Authority National Public Health Screening Services Child Health Primary Care Records Health Visitors School Nursing Maternity 0-5 5-19
Regional support National Failsafe Citizen Management Identity Service Relationship National Events Management Management Service Hub Events Registration Design Authority Authority Local ePCHR eP(C)HR Integrated Local Events Digital care Management Public Health Record Service Local Failsafe Management Service National Screening Services Primary Care Child Health School Nursing Health Visitors Records 5-19 Maternity 0-5
Timeline touch points NEMS & FPM Key Event Programme Business Business Case Case approved by Development NEMS used by the TDIB Complete Go Live date first organisations to NFMS Business share data from the NEMS Case events catalogue and FPM Development NEMS and FPM Beta Events Alpha NFMS pilot complete Complete complete Catalogue complete NEMS and published FPM pilot NFMS used by the first by PRSB organisations to get complete failsafe alerts ISN NFMS Beta Events Catalogue NFMS Alpha Interoperabi complete development complete lity and complete FPM ePCHR available to Published first Parents/Carers/ ISN for Failsafe Children with national Published health record access 2017/18 2018/19 2019/20
Implementing the Strategy Philip M.J. Graham Health Informatics Programme Director Blackpool Teaching Hospitals
Where were we?
Tech UK – Dec 2016
Tech UK – Dec 2016
Tech UK – Dec 2016
Tech UK – Dec 2016
Tech UK – Dec 2016
Health National Partner National Personal Screening Systems Registration SCR/PDS Local IDCR / Interface Local Access Management Local failsafe Maternity management Systems GP CHIS Community Systems Systems
Where are we now?
STP Programme Mandate (Events Model)
What next?
What next? • Governance • Build on the infrastructure • Implement the phases • In partnership • To implement the Strategy
Health National Commissioning Local Registration Partner Authority SCR/PDS National Systems Personal Population Screening Management Systems Failsafe Management National events hub ePHR Local events hub Local IDCR Access Education LPRES Management Systems Maternity Systems GP CHIS Community Systems Systems
Current Strategy Supported phases Design Governance Care Pathway
Events Catalogue Presented by Silas Collinge Lead Business Analyst
We will cover • Event definition • Event content • Professional Records Standards Body (PRSB) consultation • Timelines
Where did it all start? The strategy: “Parents, families and carers will have an online record of their child’s health and development” “Professionals will have access to a core view of child health information at the point of care” But where do you start? How do you define a Core View? • Maternity Dataset v1.0 and Children and Young Persons • PCHR (Personal Child Health Record) • OBS 2015 NHS Digital created the starting point around the events that should be exchanged for Professional, Personal and Public Health
Digital Child Health approach to events • Something happens in the life of a child • It may or may not be in the Healthy Child Programme or recorded in the Red Book • We call this a clinical intervention or occurrence A visit to the GP Newborn Infant Physical Examination Birth Writing a comment in the child’s ePCHR MMR immunisation
Digital Child Health approach to events • Once this clinical intervention or occurrence has happened any number of events are produced • These are published to the National Events Management Service (NEMS) A Newborn physical examination After the clinical intervention a series of is performed – this is the clinical events may be triggered intervention HCP Clinical Intervention: Newborn Physical Examination Referral Measurement Physical Examination:NIPE
Digital Child Health approach to events Professional, Personal and Public Health will be able to see the events in the events catalogue A GP may want to see Parents may want to Public Health may only want to see to all events relating to see all events relating certain events such all children under their to their child as ‘measurements’ or care ‘immunisations ’
Example event contents Measurements Birth Details
What is an events catalogue? • One document containing all ‘events’ based on the Healthy Child Programme and the scope of the PCHR • Gives enough information for all involved in the care of children to understand the strategic direction, the current ways of working and data flows • Contains all clinical and non clinical data items broken down into each event • In future will allow public, professionals and personal health to decide which events they want to send/share/publish and what events they want to ingest/view/subscribe to • The document will be iterative and future work will continue into the Maternity and National Failsafe work
PRSB consultation • Scope split down into 3 packages to be consulted upon covering all elements of the PCHR and Healthy Child Programme • 3 large consultations planned with health professionals, parents, public health and suppliers with over 70 people attending • NHS Digital provided the starting point of what information should be exchanged • Gain agreement on what clinical data items should be shared across professional, personal and public health • PRSB to gain sign off from Academy of Royal Colleges for a Community Child Health Record structure and where each data item sits within the record
PRSB consultation
PRSB consultation
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