CLAHRC East of England Patient and Public Involvement in Research (PPI) “embedded, comprehensive and active?” Co-leads Fiona Poland (University of East Anglia) & Elspeth Mathie (University of Hertfordshire) Graham Rhodes (PPI contributor, Co-chair of CLAHRC EoE PPI Co-ordinating Committee) Peter Beresford (University of Essex and Shaping Our Lives) Collaboration for Leadership in Applied Health Research and Care East of England
14% Do you know … of CLAHRC EoE publications over a 3 year period, mention PPI Patient and Public Involvement in Research Theme
IMPACT ON RESEARCH Patient and Public Involvement in Research Theme
IMPACT ON COMMUNITIES Patient and Public Involvement in Research Theme
IMPROVING IMPACT PRACTICE Patient and Public Involvement in Research Theme
WHERE NEXT? Patient and Public Involvement in Research Theme
Projects: • Fiona Poland - IMPRESS: Implementing PPI in an NHS Research Programme: Evaluating the PPI contribution to CLAHRC research implementation. Julia Rimmer, Anna Varley, Helena Wythe , Mary Ledgard, Patricia Wilson, Penny Vicary, Sylvia Bailey, Rebecca Harmston, Julian Ashton. • Marie Da Silva Gane - PIPPIN: Patients as Partners to Improve Long Term Conditions Services. Sue Marks, Jane Smiddy, Julia Jones, Carol Mumford, Linda Lee, Kirit Modi, Sandy Lines, Diane Munday, Ken Farringdon, Vilar Enric, Jonathan Boote. Many thanks to • Anne Killett- RReACH: Residents Research Active in Care Homes. Adina Burt, Andrea Kenkmann, Ann Kar, Betty Wharf, Bridget Penhale, Conway Thomas, Fiona Poland, Hilda Bullen, Kathleen Lane & Tamara Backhouse. all those PPI • Elspeth Mathie - Impact of PPI: Completing the Feedback Cycle. Helen Wythe, Diane Munday, Paul Millac, Graham Rhodes, Nick Roberts, Penny Vicary, Amander Wellings, Sarah Rae, Kathy Jones, Nat Barden, Jean Simpson. contributors, • Jeanette Cossar- Supporting LGBTQ Young People in Care: Co-devising research-led training materials for multi- professional practice. Penny Sorensen, Pippa Beldersen & young researchers: Candice Luke, Jack Smith, Brett Service, researchers, Mo Cherkouai, Fey Dougan, Sherelle Garwood. • Julia Jones - Evaluation of PPI in research in the CLAHRC East of England. Sue Marks, Tony McAllister, Marion Cowe, PhDs, fellows Alex Mendoza and Public Involvement in Research Group (PIRg) at University of Hertfordshire. PhDs who have • Harriet Cooper: Rights-based Rehabilitation - a qualitative research project co-produced with disabled people. • Rachel Sharpe: Dementia and suicide. contributed to Fellowships our PPI in • J. Smith: Perspectives on the development of Peer support workers in mental health services. • Research Theme I. Watmough: Supporting carers of stroke patients. • I. Rokkou: Involving Experts by Experience in identifying mental health research topics and priorities. • J. West: Involving people with dementia in the design and delivery of research and service improvement. • A. Eleftheriades: Investigating the psychological impact of engaging HIV-service users in mental health research And several other projects, Phds and Fellowships that are associated with other themes Patient and Public Involvement in E.g. Developing training materials for care staff of residents with moderate to severe dementia. H Crooks, CLAHRC PhD Research Theme
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