(CFSAC) Webinar Meeting June 20, 2018 Admiral Brett P. Giroir, - PowerPoint PPT Presentation

OFFICE OF THE ASSISTANT SECRETARY FOR HEALTH Chronic Fatigue Syndrome Advisory Committee (CFSAC) Webinar Meeting June 20, 2018

Admiral Brett P. Giroir, M.D. Assistant Secretary for Health O F F I C E O F T H E A S S I S T A N T S E C R E T A R Y F O R H E A L T H

Nicole Greene Acting Director Office on Women’s Health O F F I C E O F T H E A S S I S T A N T S E C R E T A R Y F O R H E A L T H

OFFICE OF THE ASSISTANT SECRETARY FOR HEALTH Updates on implementation of recommendations from last Chronic Fatigue Syndrome Advisory Committee meeting Commander Gustavo Ceinos Designated Federal Officer

Recommendations 1. Continue school health and pediatric myalgic encephalomyelitis and chronic fatigue syndrome(ME/CFS) educational initiatives as recommended during January 12-13, 2017 in person CFSAC meeting. • The Pediatric Education workgroup will continue in 2018. • The last meeting of the workgroup was held on May 14, 2018. 2. CFSAC endorses the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis proposal for changes to the International Classification of Diseases- 10-Clinical Modification coding for ME/CFS. • The Designated Federal Officer has been in contact with CDC’s National Center for Health Statistics (NCHS). They are working on the best approach to address this recommendation. • This process is not solely driven by NCHS. NCHS must consult with clinical groups and other stakeholders, and work with the World Health Organization in order to change or assign a new code for any condition. O F F I C E O F T H E A S S I S T A N T S E C R E T A R Y F O R H E A L T H

Recommendations 3. CFSAC recommends that the Centers for Medicare and Medicaid Services (CMS) be added as an ex-officio when the charter is renewed in 2018. • The Designated Federal Officer has been in contact with the last ex-officio representative from CMS. CMS will be added back as a CFSAC ex-officio member if the charter is renewed by the HHS Secretary. O F F I C E O F T H E A S S I S T A N T S E C R E T A R Y F O R H E A L T H

CFSAC Membership Status - June 2018 • Federal Register Notice - Published: March 22, 2018 - Nominations Deadline: April 23, 2018 - Applications are under review and the HHS Secretary will make final appointments. O F F I C E O F T H E A S S I S T A N T S E C R E T A R Y F O R H E A L T H

CFSAC Membership Status - June 2018 Health Care Delivery or Patient/ Committee Members Membership Start Date End Date Org Concerned with Researcher Geo Location Care Giver ME/CFS Faith Newton, Ed.D Voting/SGE 07/01/2014 01/02/2019 X DE Alisa Koch, M.D. Voting/SGE 06/16/2014 12/16/2018 X NY Donna Pearson Voting/SGE 06/16/2014 12/17/2018 X FL Jose Montoya, M.D. Voting/SGE 06/16/2014 12/17/2018 X CA Lucinda Bateman, M.D. Voting/SGE 12/13/2017 12/12/2021 X UT Gudrun Lange, PhD Voting/SGE 12/13/2017 12/12/2021 X NY Amrit Shahzad, MBA Voting/SGE 12/13/2017 12/12/2021 X CA VACANT X VACANT X VACANT X VACANT X VACANT X VACANT X Leah Williams** Non voting 06/29/2017 06/29/2019 MA Courtney Miller** Non voting 06/29/2017 06/29/2019 NV Ben HsuBorger** Non voting 06/29/2017 06/29/2019 NJ O F F I C E O F T H E A S S I S T A N T S E C R E T A R Y F O R H E A L T H