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BodiMojo app: Patient Engagement for Self-Management Elizabeth Donovan, Ph.D., CEO and Founder Tara Cousineau, Ph.D., Director of Research and Evaluation New England Genetics Collaborative Annual Meeting Confidential, BodiMojo Inc. 2014 Agenda


  1. BodiMojo app: Patient Engagement for Self-Management Elizabeth Donovan, Ph.D., CEO and Founder Tara Cousineau, Ph.D., Director of Research and Evaluation New England Genetics Collaborative Annual Meeting Confidential, BodiMojo Inc. 2014

  2. Agenda • Pilot study: self-compassion intervention • Brainstorm: how could this be adapted for young people with metabolic disorders? New England Genetics Collaborative Annual Meeting Confidential, BodiMojo Inc. 2014

  3. Figg video

  4. The use of mobile technology to deliver a self-compassion and mindfulness-based intervention to underserved youth. Elizabeth Donovan, Ph.D. Tara Cousineau, Ph.D. Debra Franko, Ph.D. Rachel Rodgers, Ph.D. Kayla McGowan, B.A. Funded by NIDDK, grant # 2 R44 DK 85748 02 Confidential, BodiMojo Inc. 2014

  5. Aim To test the feasibility of using mobile technology to deliver a self- compassion and mindfulness- based intervention to underserved youth Confidential, BodiMojo Inc. 2014

  6. Why mobile? About three in four (74%) teens ages 12-17 are “mobile internet users” (Pew, 2014) Mobile-based interventions are effective at changing a range of health behaviors (Free, Phillips, Watson, Felix, Edwards, Patel & Haines, 2013) Confidential, BodiMojo Inc. 2014

  7. Self compassion Self-kindness Common humanity Mindfulness (Neff, 2003a, 2003b) Confidential, BodiMojo Inc. 2014

  8. Hypotheses Primary Confidential, BodiMojo Inc. 2014

  9. Hypotheses Confidential, BodiMojo Inc. 2014

  10. Mission: to bridge economic, social and racial divisions by providing underserved youth with the keys to self-sufficiency through paid employment in the arts Developed with funding from the National Institutes of Health (NIDDK), Small Business Innovative Research Program (Phase II). Confidential, BodiMojo Inc. 2014

  11. Overview of user-centered development November, 2013  feedback on wireframes April, 2014  feedback on partially- functioning app October-November, 2014  pilot test with fully-functioning app Confidential, BodiMojo Inc. 2014

  12. User testing: Round 1 • Goal: to gather feedback on content, features, designs and storyboard • Participants: 1 male, 1 female, age 17 years Confidential, BodiMojo Inc. 2014

  13. User testing: Round 2 • Goal: to gather feedback on content, features, designs and storyboard • Participants: 4 males, 4 females, age 15-21 Confidential, BodiMojo Inc. 2014

  14. Fully-functioning app and dashboard Confidential, BodiMojo Inc. 2014

  15. Create an account

  16. Create an account

  17. Home page Show me how strongly you ’ re feeling! Shake me up!. The whiter the screen the stronger your feeling.

  18. Feelings tracker

  19. Mood Cloud Now take a few deep breaths to those areas. Ready?

  20. Feedback from virtual coach Don ’ t worry, this feeling Don ’ t worry. Those are some strong will pass! This feeling will pass! feelings! Confidential, BodiMojo Inc. 2014

  21. Feedback from virtual coach, cont. Where are your feelings Now take a few deep located in your body – can breaths you feel them in your head, to those areas. Ready? throat, chest, stomach, gut? Confidential, BodiMojo Inc. 2014

  22. Home page Show me how strongly you ’ re feeling! Shake me up!. The whiter the screen the stronger your feeling.

  23. Boosts “ Place your hands over your heart. “ Shhh. I'm visualizing myself on a Skin to skin. Feel the warmth. warm beach. Breathe in and out Notice your heart beating. Breathe slowly. Makes you feel more deeply and say something kind: relaxed, doesn't it? ” “ Dude, you rock... ” or ” I love you, man... “ “ Show Up. Sometimes the hardest thing in life is “ When life gives to just be there. Do it you lemons, anyway, even if it scares make lemonade. you. What are you going Corny, but true. to show up for today? Be How optimistic there . ” are you? Take this quiz to find out! ”

  24. Pilot study: Goals 1. Assess use of the mobile app 2. Assess satisfaction with the mobile app 3. Explore changes in self- compassion and mindfulness Confidential, BodiMojo Inc. 2014

  25. Pilot study: Method Participants: 20 teens Design: single group, pre/post test Procedure: teens used the app for 30 days Confidential, BodiMojo Inc. 2014

  26. Pilot study results: characteristics of participants Mean age 16.95 (SD=1.27)

  27. Pilot study results: Usage Confidential, BodiMojo Inc. 2014

  28. Pilot study results: Satisfaction How much did you enjoy using the program? “Not at all” to “Very much so” (1 to 7) 6.23 Did the program help you focus on how you are feeling? “Not at all” “Very much so” to (1 to 7) 6.07 If it was available to you, would you continue to use the program? “Definitely no” to “Definitely yes” (1 to 7) 6.0 Would you recommend the program to a friend? “Definitely no” to “Definitely yes” (1 to 7) 6.07 Confidential, BodiMojo Inc. 2014

  29. Pilot study results: Need We are interested in what is currently available to you to help you manage stress in daily life. Have much have you learned from teachers or other staff members at school about how to manage stress? “Not much” to “A lot” (1 to 7) 2.43 Do you think teens could benefit from programs designed to help them to manage stress? “Not at all” to “Very much so” (1 to 7) 6.71 Confidential, BodiMojo Inc. 2014

  30. Pilot study results: Focus groups “ I was on the bus when I actually “ One day, I think the tip was ‘focus on the figured out the meditation thing…I just things around you, and like, don’t rush to pressed the button...then all of a where you’re going’…so when I was walking sudden I heard voices, but it was really back from the bus , I just stood there and cool. It was really soothing, relaxing. I looked around at like, my surroundings ” actually listened to it and started paying attention to my surroundings. It was really nice” “ It did change my mood. I started to focus more on “ I liked the mood cloud best. positive things…I could go to I felt like I was getting the app….it was the first happier.,,not happier, but I thing I’d go to ” reflected on my day ” Confidential, BodiMojo Inc. 2014

  31. Pilot study results: Focus groups What would you “ Maybe like a social kind of thing…. change? see other people’s feelings ” Maybe you could save tips, “ It would be good to include because at the moment they just short recipes, things that go away. ” take maybe five minutes and taste good. ” “ I wish his face wasn’t so straight ” Confidential, BodiMojo Inc. 2014

  32. Pilot study results: Mindfulness Lack of Mindfulness Awareness (n=14) Mindfulness Attention Awareness Scale-Adolescent (Brown, West, Loverich, & Biegel, 2011). Confidential, BodiMojo Inc. 2014

  33. Pilot study results: Self-compassion Self-compassion (n=14) Subscale Time 1 Time 2 Self-Judgment 6.64 6.28 Over-Identification 5.29 5.93 Isolation 5.71 5.79 Common Humanity 6.57 7.36 Self-Kindness 7.14 7.5 Mindfulness 7.8 8.08 Self-Compassion Scale-Short form (Raes, Pommier, Neff, & Van Gucht, 2011) Confidential, BodiMojo Inc. 2014

  34. Conclusion Confidential, BodiMojo Inc. 2014

  35. Next Steps Confidential, BodiMojo Inc. 2014

  36. Brainstorm questions Confidential, BodiMojo Inc. 2014

  37. References Brown, K. W., West, A. M., Loverich, T. M., & Biegel, G. M. (2011). Assessing adolescent mindfulness: Validation of an adapted Mindful Attention Awareness Scale in adolescent normative and psychiatric populations. Psychological Assessment, 23, 1023-1033 Free, C., Phillips, G., Galli, L., Watson, L., Felix, L., Edwards, P., Patel, V. & Haines, A. (2013). The effectiveness of mobile-health technology-based health behaviour change or disease management interventions for health care consumers: A systematic review. PLoS Medicine, 10 Neff, K.D. (2003a).The development and validation of a scale to measure self- compassion. Self and Identity, 2, 223 – 250. Neff, K. D. (2003b). Self-compassion: An alternative conceptualization of a healthy attitude toward oneself. Self and Identity, 2, 85 – 102. Raes, F., Pommier, E., Neff, K. D., & Van Gucht, D. (2011). Construction and factorial validation of a short form of the Self-Compassion Scale. Clinical Psychology & Psychotherapy. 18, 250-255 Rainie, L. (2014). Pew Internet Project: Mobile. Retrieved from: http://pewinternet.org/Commentary/2012/February/Pew-Internet- Mobile.aspx Confidential, BodiMojo Inc. 2014

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