Big Data for Health Policy in Early Childhood: The TARGet Kids! Network The Applied Research Group for Kids! Cory Borkhoff PhD Research Associate, Department of Pediatric Medicine, The Hospital for Sick Children Assistant Professor, iHPME, University of Toronto
Critical Gaps in Population Surveillance on Children in the Early Years Canadian Community Health Survey (CCHS) Target Population - Canadians aged 12 and over Canadian Health Measures Survey (CHMS) Target Population - between 3 and 79 years Minimal data on children 3 – 5 years Ontario Health Study (OHS) does not include children TARGet Kids! is filling this gap
The Applied Research Group for Kids! Targeting Child Health: improving health outcomes for Canadians through preventive healthcare in early childhood Co-Leads: Dr. Patricia Parkin Dr. Catherine Birken Dr. Jonathon Maguire
Child Health Research Network Embedded in Primary Care Practices Largest cohort of healthy preschool-aged children • (from birth to 5 years) recruited in Canada 9 group practices (each with at least 3 MDs), > 50 physicians • 7000 children enrolled through primary care doctor’s offices • during Well-Child visits and followed up yearly Longitudinal dataset recruited since 2008; >50% with repeated • visits www.targetkids.ca
Steering Committee Overall design and conduct of the TARGet Kids! Study Principal Investigators Clinical Experts Primary Care Practice Site Methods Centre Writing Committee Patient Enrollment Day-to-day coordination of the TARGet Kids! Study Manuscript Preparation Data Collection ≥ 3 Site Investigators Principal Investigators Principal Investigators Research Coordinators Project Manager Postdoctoral Fellow Phlebotomist Research Coordinators Graduate Students Research Assistants Applied Health Research Centre (AHRC) Primary Care Secure web-based data management, statistical analysis “Future” Practice Site Statisticians Practice Site Patient Enrollment Data Manager Patient Enrollment Data Collection ≥ 3 Site Investigators Data Collection ≥ 3 Site Investigators Research Coordinators Research Coordinators Phlebotomist Phlebotomist Central Laboratory Services Lab test analysis, lab test reporting to study physicians, Primary Care “Future” lab data linking to central database, blood sample storage Practice Site Practice Site Laboratory test analysts Patient Enrollment Patient Enrollment Data Collection Data Collection ≥ 3 Site Investigators ≥ 3 Site Investigators Research Coordinators Research Coordinators Phlebotomist Phlebotomist Primary Care “Future” Practice Site Primary Care Primary Care Practice Site Patient Enrollment Practice Site Practice Site Data Collection Patient Enrollment Patient Enrollment Patient Enrollment ≥ 3 Site Investigators Data Collection Data Collection Data Collection ≥ 3 Site Investigators Research Coordinators ≥ 3 Site Investigators ≥ 3 Site Investigators Research Coordinators Phlebotomist Research Coordinators Research Coordinators Phlebotomist Phlebotomist Phlebotomist
Acknowledgments TARGet Kids! Leads Dr. Eddy Lau Research Manager: Scientific Committee and Dr. Patricia Parkin Dr. Fok-Han Leung Dalah Mason Trainees: Dr. Catherine Birken Dr. Jennifer Loo Dr. Kawsari Abdullah Research Coordinator: Dr. Jonathon Maguire Dr. Sarah Mahmoud Dr. Laura Anderson Kanthi Kavikondala Dr. Rosemary Moodie Dr. Cornelia Borkhoff Site Investigators: Biostatistician: Dr. Julia Morinis Sarah Carsley Dr. Jillian Baker Yang Chen Dr. Sharon Naymark Dr. Mikael Katz-Lavigne Dr. Tony Barozzino Dr. Patricia Neelands Christine Koroshegyi Research Assistants: Dr. Nicholas Blanchette Dr. James Owen Grace Jieun Lee Kathleen Abreo Dr. Joey Bonifacio Dr. Michael Peer Jessica Omand Tarandeep Malhi Dr. Douglas Campbell Dr. Marty Perlmutar Dr. Navindra Persaud Antonietta Pugliese Dr. Sohail Cheema Dr. Navindra Persaud Dr. Meta van den Heuvel Megan Smith Dr. Brian Chisamore Dr. Andrew Pinto Shelley Vanderhout Laurie Thompson Dr. Karoon Danayan Dr. Michelle Porepa Dharma Dalwadi Dr. Paul Das Dr. Nasreen Ramji Thank you to all participating Dr. Mary Beth Derocher Steering Committee: Dr. Noor Ramji families for their time and Dr. Anh Do Dr. Tony Barozzino Dr. Alana Rosenthal involvement in TARGet Kids! Dr. Michael Dorey Dr. Brian Chisamore Dr. Janet Saunderson Dr. Sloane Freeman Dr. Mark Feldman Dr. Rahul Saxena Dr. Keewai Fung Dr. Moshe Ipp Dr. Michael Sgro Dr. Donna Goldenberg Dr. Hafiz Shuja Applied Health Research Dr. Charlie Guiang Dr. Susan Shepherd Centre: Dr. Curtis Handford Dr. Barbara Smiltnieks Dr. Gerald Lebovic Dr. Hailey Hatch Dr. Carolyn Taylor Dr. Muhammad Mamdani Dr. Sheila Jacobson Dr. Thea Weisdors Magda Melo Dr. Lukasz Jagiello Dr. Sheila Wijayasinghe Patricia Nguyen Dr. Tara Kiran Dr. Peter Wong Kevin Thorpe Dr. Holly Knowles Dr. Ethel Ying Dr. Bruce Kwok Mount Sinai Services Lab: Dr. Elizabeth Young Dr. Sheila Lakhoo Dr. Azar Azad Dr. Michael Zajdman Dr. Margarita Lam-Antoniades
www.targetkids.ca
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