Autism Services in Canada: Mapping a lifespan strategic plan Presenter(s): Michèle L. Hébert, PhD, OT Louise Burridge, BScH; BScOT; MEd Jonathan Lai, PhD CAOT Professional Issue Forum May 7, 2020 Canadian Association of Occupational Therapists Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes Association canadienne des ergothérapeutes 1
A bit about the panelists ... Michèle L. Hébert Jonathan Lai Louise Burridge Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 2
Forum Outline • Forum Objectives • 15-Minute Presentation per Panelist • Consensus Appraisal Process – Reflection Questions – Warm-up – Reflection Questions – Breakout rooms – Reflection Questions – All together • Next Steps • Questions and Comments Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 3
Forum Objectives Develop a shared pan-Canadian vision • Collect jurisdictional perspectives on OT access • Define the ideal positioning of OT in the care continuum for people with autism • Identify practice resources • Propose advocacy actions Ultimately, implement a powerful, empowering consensus strategy Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 4
Reflection Questions – Warm-Up Click on: … Mentimeter link … When you are connected to Mentimeter, give a ( is found by clicking on Participants at bottom of Zoom) Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 5
Reflection Questions – 1 of 6 1- What primary province/territory do you work in? Alberta Ontario British Columbia Prince Edward Island Manitoba Quebec New Brunswick Saskatchewan Newfoundland and Northwest Territories Labrador Nova Scotia Nunavut or Yukon Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 6
Reflection Question 2 of 6 2- What primary age group do you work with? • Infants (Birth to 12 months of age): ______ • Toddlers (13 to 36 months): ______ • School-age children (37 months to 12 years): ______ • Teens (13 years to 15 years): ______ • Youth/young adults (16 to 21 years): ______ • Adults (22 to 64 years): ______ • Elderly (65 years or more): ______ Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 7
Reflection Question 3 of 6 3- What primary setting do you practice in? • Public sector clinic setting (i.e., hospital, rehabilitation centre) : ______ • Private sector clinic setting (i.e., private clinic) : ______ • Non-profit/charity sector (i.e., community organization) : ______ • Other (please specify): ______ Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 8
Reflection Question 4 of 6 4- What type of funding source(s) cover occupational therapy services in this setting? • Public • Private • Mixed • Other (please specify): _______ Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 9
Reflection Question 5 of 6 5- How many years of occupational therapy experience working with people with autism spectrum disorder do you have (less time on leave)? 0 years 100 years Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 10
Reflection Question 6 of 6 6- Please help us learn about what funding resources or programs in your province/territory. Answer only for the province/territory in which you primarily practice (see next slides). Province + Resource/Program + Amount ($) + comments Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 11
Reflection Question 6 of 6 - Funding Province/Territory Funding Resource/Program Alberta Family Support for Children with Disabilities (FSCD) British Columbia Up to $22,000/year per child under age 6 years Up to $6,000/year per child 6 to 18 years Manitoba Children’s Disability Service under age 18 years Children’s Therapy Initiative (anyone up to the age of 21 who has a developmental concern). New Brunswick 20 hours/week of intensive intervention for preschoolers Family Support for Children with Disabilities under age 18 years Nova Scotia Early Intensive Behavioural Intervention Treatment for preschoolers - 15 hours/week for 1 st 6 months, then reduced over next 6 months Direct Family Support for Children (respite) up to $2,200/month for home caregiver 0 to 19 years Newfoundland and Intensive Applied Behavioural Analysis Program for preschoolers, Labrador up to 30 hours/week; for kindergarteners & Grades 1-3, up to 15 hours/week Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 12
Reflection Question 6 of 6 - Funding Province/Territory Funding Resource/Program Northwest Territories Autism program for therapy intervention birth to 6 years Autism program for aides & other school services over age 6 years Nunavut Income assistance through the territory’s Family Service’s department (not specific to autism) Ontario $20,000/year under age 6 years $5,000/year ages 6 to 18 years Prince Edward Island Autism Early Intervention Program for preschoolers up to 25 hours/week & $200/week for material School-based autism assistant & private one-on-one tutor for out-of-school for school-aged children Quebec Autism Action Plan ages 2 to 5 years $83 million to hire more school professionals Saskatchewan Up to $4,000/year under age 6 years Yukon Services to Children with Disabilities program for therapy, respite, childcare, medical travel and AXs - ages birth to 19 years Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 13
Evidence Across the Lifespan Michèle L. Hébert, Postdoctoral Fellow, University of Calgary • About identifying autism • State of evidence-based knowledge – Infants and toddlers – Children and teens – Youth – Adults (more from Louise) • Coordinated care and Systems navigation • Continuum of care Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 14
Identifying Autism • Is early diagnosis best? • Needs-based or diagnosis-based? • Teasing out autism, sensory processing and mental health Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 15
Evidence-Based Knowledge Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 16
Infancy and Toddlerhood Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 17
Childhood and Teens Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 18
“Supports Cliff” www. OnTracBC .com Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 19
Youth Moving Out? Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 20
Adulthood and the Elderly Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 21
Coordinated Care • National and provincial guidelines • Examples of implementation Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 22
Systems Navigation Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 23
Systems Map Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 24
Continuum of Care: Role of OT Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 25
Continuum of Care: Occupation Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 26
Acknowledgements Images • www.Burst.Shopify.com • www.Pixabay.com References • Bronfenbrenner, U. (2009). The Ecology of Human Development: Experiments by Nature and Design . Cambridge, Massachusetts: Harvard University Press. ISBN 0-674-22457-4. • Freeman, H.P., & Rodriguez, R.L. (2011). History and principles of patient navigation. Cancer, 117 (S15), 3537- 3540. • Geurts, & Vissers (2012). Elderly with Autism: Executive Functions and Memory, Journal of Autism and Developmental Disorders , 42:665 – 675 • Hodgetts, S., Zwaigenbaum, L., Nicholas, D., & McConnell, D. (2013). Connecting the Dots: Navigating Systems of Care for Young Persons with Autism Spectrum Disorder in Alberta: Final Report . Alberta Centre for Child, Family and Community Research, Edmonton, p. 4. • Lind, C. (2012). www.DurgasToolBox.com • Luke, A., Doucet, S. & Azar, R. (2018). Paediatric patient navigation models of care in Canada: An environmental scan, Paediatrics & Child Health , 23(3):e46-e55. • Wong, C., Odom, S.L., Hume, K.A., Cox, A.W. et al. (2011). Evidence-Based Practices for Children, Youth, and Young Adults with Autism Spectrum Disorder: A Comprehensive Review, Journal of Autism and Developmental Disorders , 45:1951 – 1966. Canadian Association of Occupational Therapists Association canadienne des ergothérapeutes 27
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