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A Peer Researcher Perspective Sonya Ballentine Program Manager Twitter Handle: @chgoair September 19, 2019 Sonya Ballentine Currently co-I on PCORI Eugene Washington Award 2 Mission To prepare patients and community stakeholders in


  1. A Peer Researcher Perspective Sonya Ballentine Program Manager Twitter Handle: @chgoair September 19, 2019

  2. Sonya Ballentine • Currently co-I on PCORI Eugene Washington Award 2

  3. Mission • To prepare patients and community stakeholders in leading research projects and guiding research efforts that will improve individuals’ quality of life and healthcare decisions. 3

  4. Purpose • Underrepresented individuals should be involved in research to help reduce unfair barriers. • That is where community-based participatory research (CBPR) comes in with an added enhancement for patient researchers 4

  5. Inspiring Change 5

  6. Inspiring Change Curriculum • Chapter 1: Getting Started • Chapter 2: Introduction to CBPR • Chapter 3: Working Together • Chapters 4-6: Understanding a Problem, Testing a Solution, Designing a Solution • Chapter 7: Research Ethics • Chapter 8: Collecting Data • Chapter 9: Sustainability • Chapter 10: Understanding Results • Chapter 11: Sharing Results and Taking Action 6

  7. Inspiring Change Model 7

  8. Working Together 8

  9. Engaging the Team 9

  10. Reasonable Accommodations Reasonable accommodation for disability, religion or other special circumstances • Adjustments to allow maximum participation (based on individual needs) • Examples • Breaks • Meeting room locations • Written materials in alternate form • Private meetings to go over material 10

  11. Dual Relationships When team members have a personal or different professional relationship outside the research team 11

  12. Leadership Advisory Board 12

  13. Patient Research Leader • Project Management • Meeting Facilitation • Liaison between team, organization and/or agency • Research Recruitment • Data Collection 13

  14. Learn More • www.pcori.org • info@pcori.org • #PCORI2019 • Chicago Health Disparities Center 14

  15. Questions? 15

  16. Thank You! Sonya Ballentine Peer Researcher @chgoair September 19, 2019 16

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