What do we want from research from the local NHS perspective? Emma Sweeney MSc, BSc (Hons) RN Macmillan Head of Cancer Nursing
Is your practice informed by research or patient experience?
Healthwatch Report • 200 patients and/or carers • Survey, Focus Groups and In depth interviews with 16 • Patient Experience of Cancer Services at Colchester: • A qualitative analysis of the National Cancer Patient Experience Survey Data, 2014 • 1. Was there anything particularly good about your NHS cancer care • 2. Was there anything that could have been improved? • 3. Any other comments
Communication and Formal Education and Training opportunities in ethics • Working with our education department and St Helena Hospice to develop a local annual Advanced Communication Skills Programme to ensure all of our core MDT members are trained as per national Peer Review requirements. • Ensuring that our cancer Clinical Nurse Specialist work force undertake level 2 psychological training to support our cancer patients, their families and carers using higher level techniques • Our Macmillan Information Service is relocating to the main hospital site in February 2015 where by all ward areas will have access to trained cancer information volunteers • Providing coaching training for all of our cancer CNS’s with support from Macmillan Cancer Support • Host a ‘Cancer Conference’ in the Summer of 2015 for any staff member with the extension to our primary care colleagues. • Development of a senior cancer nursing strategy group to provide senior leadership and direction for cancer nursing across the Trust. • Develop a trust wide communication skills training programme for staff from the general wards to improve the level of skills for staff not working directly in the oncology speciality. • Work with our postgraduate medical centre to develop further programmes of education for junior medical staff in communication skills and dealing with difficult situations.
Cancer Support Group and User Engagement with existing cancer support groups • Develop a cancer user group to work in collaboration with the Trust to provide strategic direction in relation to cancer patient experience and cancer service delivery. (our first meeting is on 27 th January 2015) • Work with our Macmillan Cancer Information Service to provide a generic cancer support group which will be accessible for all cancer patient • Further development of working relationships with HealthWatch Essex to improve the User Involvement and patient experience programme .
Develop further Qualitative research programmes to better understand patients and carers lived experiences with the aim of supporting clinical teams to further develop quality improvement programmes • Work with our audit and research department to build upon our cancer research and audit profile to include robust qualitative research and analysis surrounding our cancer patient experience on an annual basis. (This will include Trust and site specific groups). • Work with the clinical teams to develop a more robust approach of gaining live cancer patient experience data.
What impact does this have on nursing practice? • Engagement • Empowerment • Embrace change • Evidence Based co-design
Barriers to taking up research • Time • Funding • Support
What else informs practice and organisation of cancer care at Colchester? • Macmillan Values Based Standards • Focused work for Cancer Support Group • Effective utilisation of volunteers • ‘In your shoes’ events • Use of technology for real time patient feedback • Feed back loop from Execs, patient facing staff and community colleagues
What research on patient experience would you like to see? • Seeing things through • Remembering how powerful the patients voice is • Working in collaboration • Supporting nurses to undertake research
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