Customising daily recordings using Patient Centred Outcomes in unexplained illnesses: BioMarkers for CFS/ME Daniel Dahdah – St Jude's Clinic, Sydney
’Cause and Effect’ model to affect Form AND Function
Whole systems = Interconnectedness = Diversity of symptoms Where and when does my body come under my conscious control and yet is inextricably connected to influential areas that are supposedly beyond my control?
How do we? More ? Visualise simultaneous and dramatic symptom reductions across multiple systems? Paradigms Detect the early signs of success? frame Distinguish between genuine improvements questions and natural history remissions? Establish a link between CFS/ME and other comorbidities? Predict time frames for recovery and who likely responders may be?
Symptoms into PCO’s = Valued BioMarker Link to Vanessa Patrick – Mick – role of Niki – The need – Success and Movement to antidepressantsi for Baselines Longevity self care Accountability tool, Building Trust in Practitioner, Assessing Effectiveness, Restoring Hope in future recovery, Creating perspective, Enhanced discussion with practitioner
1. Safe and effective 2. Logical and easy to understand 3. Empowering and practical self-help strategies 4. Easily accessible recording with features built in Patient 5. Provides a broader perspective – trends/contextualizes flare-ups/crashes Centered 6. Values driven – meaningful moments for clients / practitioners / researchers Healthcare – 7. Autonomy and interdependence healthcare 8. Collaborates with healthcare workers globally Criteria Pooled data, Replicated and Leveraged 9. Time-saving Intake questionnaires >> Prepopulated Excel templates 10.Cost effective with a decreasing cost scale due to permanency of results
Guide to speed of response No adverse Reaction Reactions to Medication/s to Medications Known Habits 1 3 Unknown Habits 4 2 Frequency of visit and distance travelled, Medications used and Skype sessions influenced outcomes.
• Whole Systems – Habit Driven Health Macroscopic and Microscopic Finding the right balance
Somatosensory Afferentation & Dysafferentation
L Sequence Gaining voluntary control of the CNS - ANS and Somatic System? Disclaimer: This is an introduction to the type of care offered and the examples given do not constitute professional advice for individual application. BioSequences + BioRecommendations = BioSystem. BioMarkers used as DoS
Rotational induced Dysautonomia / Penumbra? Zhand et al in Neurological Research 2012 VOL. 34 NO. 5 501 VAD >> was the only predictor to BA deformation to the weaker side >> haemodynamic changes to the brainstem and increased sus ceptibility to 1 thrombosis, 2. microembolization, 3. stretched cranial nerves, and 4. brainstem compression
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