The State of Alaskas Title V Programs Role in Building Systems of - PowerPoint PPT Presentation

DHSS/DPH Section of Women’s Children’s and Family Health The State of Alaska’s Title V Program’s Role in Building Systems of Care for Children and Youth with Autism Spectrum Disorder & Other Developmental Disabilities

Objectives and Goals participants will learn how 1. The State of Alaska’s Title V program was an integral part of developing the 2006 State of Alaska Autism Plan 2. The State of Alaska organized autism and other developmental disabilities (DD) services as a part of the Children and Youth with Special Health Care needs programs 3. Examples of Success 4. Sustaining Activities

Division of Public Health Sections • Women’s, Children’s and Family Health (WCFH) – Children’s Health Unit – Women’s and Adolescent Health Unit – MCH Epidemiology Unit • Public Health Nursing • Chronic Disease Prevention and Health Promotion • Epidemiology • Public Health Laboratories (Anchorage & Fairbanks) • Disaster Preparedness and Emergency Medical Services • State Medical Examiner • Vital Statistics • Health Planning & Rural Health Care

Mission of WCFH • To promote optimum health outcomes for all Alaskan women, children and their families by: – Providing leadership – Coordinating with the primary and public entities with the health care system – Delivering preventive, rehabilitative and education services targeting women, children, and families – Collecting, analyzing and reporting reliable and statistically accurate information

Funding Streams for WCFH • Title V MCH Block Grant • Tile X Family Planning • Centers for Disease Control and Prevention (CDC) • Health and Human Services Resource Administration (HRSA) • Administration for Children, Youth and Families • Office of Adolescent Health • Association of Maternal Child Health Programs • Mental Health Trust Authority (MHTAAR)-State • Medicaid • State General Fund

The Governor Council on Disabilities and Special Education 2006 Alaska State Autism Plan Autism Ad Hoc Committee Medical & Health Funding & Policy Family & Child Family Support Srvs Education & Training

Alaska Autism Plan Universal Screening Diagnostic Clinic Expansion Enhance Referral and Training Workforce Training Time Limited Intensive Autism Services

Statewide Autism Resources Families Governor’s Council on Disabilities and Special Education • AK Department of Juvenile Justice • Division of Public Assistance ANCHORAGE SCHOOL DISTRICT Disability Law Center of Alaska Alaska Community Health Aide Program Public Health Nursing

Combating Autism Act Initiative CAAI State Demonstration Grant Goal #1 : In rural Alaska, develop new processes to support the system of early identification, developmental screening and diagnosis of children suspected with autism and other neurodevelopmental disorders Goal # 2: Children 0 to 3 will be successfully connected with early intervention services and a medical home, leading to earlier initiation of services Goal #3: The project will be aligned with the goals established by the Autism Alliance and the ECCS plan to assure continuity and work collaboratively on a long term sustainability plan

AK Partners as a System of Early Intervention and Care for CYSHCN Public Health Nursing Services 10 Early Intervention/Infant Learning Program

Goals of Outreach Clinic Expansion • Establish a process in rural Alaska to support PND screening clinics in hub communities to improve rural Alaskan’s access to diagnosis, earlier intervention, and treatment • Through print materials, training, and 1:1 discussions, establish practice of proper identification of appropriate patients for referral to Providence Autism Diagnostic Network • Collaborate and support rural community providers on efforts to implement EPSDT (routine screenings) for earlier identification to ensure referral to EI/ILP

Homer Dillingham Bethel Fairbanks Ketchikan Juneau Barrow Kotzebue Valdez Kodiak Nome Medical Providers: Ron Brennan, MD ; Teresa Hirst, ANP; William Walker, MD Clinic Coordinator : Kris Green Parent Navigator: Stone Soup Group

2009 – 2011 Patient Referrals (n=409) 120 100 80 2009 60 2010 2011 40 20 0 Autism/ASD Prenatal Exp Behavioral Sp, Cog, Comm, Other Neuro Follow-up concern Acad

2009 – 2011 Outcome Recommendations 33 % (n=73) rec’d recommendation for DX work -up 60 50 40 2009 30 2010 2011 20 10 0 DX workup Ref local srvs Other screens Watch

Providence Autism Diagnostic Center (PADN) • Autism Diagnosis Overview: – Multi-disciplinary neurodevelopmental assessment: • MD, Psych/Neuro Testing, OT, PT, SLP, Hearing, Vision, Early Intervention – Parent Navigator works to link family and child to community supports, resources and providers • Staff: – Pediatric Neurodevelopmental Specialists – Pediatric Advanced Practice Nurse Practitioner – SSG parent navigation staff – Ancillary: • Pediatric Therapies (OT, PT, Speech) • Pediatric Psychologists • Pediatric Neurologists State Board of Education & Early Development adds ANP to list of medical personnel that can make an autism diagnosis; accepts for service needs

Capacity Building & Workforce Development State - UCEDD Partnerships 1. Leadership & Education in Neurodevelopmental & related Disabilities (LEND) Autism “Summer Institutes” 2. 3. Board Certified Behavior Analyst (BCBA) trainees certification 4. Internet based modules 5. Online course work with Georgetown and University of Arizona for learning collaborative, degree, and certifications by both EI/ILP and UCEDD

Learn the Signs. Act Early Alaska’s 2011 Campaign 1. Identify Target Audience 2. Gather Focus Group Data 3. Plan Outreach Campaign 4. Implement Outreach Campaign 5. Evaluation and Lessons Learned

Learn the Signs. Act Early Alaska’s 2011 Campaign • Identify Target Audience – PRIMARY : Southcentral Alaska families with children ages 0-5 years – SECONDARY : Health care, Child care, Early Intervention providers in Southcentral Alaska

Learn the Signs. Act Early Alaska’s 2011 Campaign • Gather Focus Group Data – Institute of Social & Economic Research (UAA) gather focus group data from parents in target audience

Learn the Signs. Act Early Alaska’s 2011 Campaign • Plan Outreach Campaign – Partner Visits (health care providers and state agency partners) • Introduce campaign • Advise of focus group feedback • Offer materials • Gather feedback • Request engagement

Early Intervention (ILP) Partnership ILP Primary Partner Defined: Early Intervention/Infant Learning Program (aka “Part C”) – ILP supports campaign as “Child Find” activity – ILP initiates expanded scope of direct mail of materials – Radio PSA component added – www.earlyintervention.alaska.gov is born!

Learn the Signs. Act Early Alaska’s 2011 Campaign Lessons Learned – ASK and LISTEN to families… – Primary partnership with ILP developed organically during planning process and will offer sustainability beyond federal funding (annual mailing of materials planned) – Take time to inform health care community – Providers can be great partners!

The Impact of a Comprehensive Autism Plan in Alaska an enhanced statewide access to a fully developed comprehensive and culturally sensitive system of care so that Alaskans with ASD and related developmental disabilities will reach their full potential through timely and coordinated transitional planning.

Thank You Stephanie Birch & Jimael Johnson State of Alaska, Title V, Section of Women’s Children and Family Health’s Stephanie.birch@alaska.gov Jimael.johnson@alaska.gov 907.269.3400