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People with dementia living in the community what can interRAI data tell us? By Michelle Liu, Senior data analyst interRAI What is interRAI interRAI = inter national R esident A ssessment I nstrument Comprehensive clinical assessment


  1. People with dementia living in the community – what can interRAI data tell us? By Michelle Liu, Senior data analyst interRAI

  2. What is interRAI interRAI = inter national R esident A ssessment I nstrument • Comprehensive clinical assessment instruments • Best practice approach to assessing people’s needs • Standardised and designed for specific groups • Common language, common measures, common concepts • www.interRAI.co.nz 2

  3. interRAI assessments used in New Zealand In the community: In aged residential care: • Contact Assessment (CA), a basic • Long Term Care Facilities Assessment screening assessment for people (LTCF) for evaluating the needs, living in the community strengths and preferences of those in aged residential care. • Community Health Assessment (CHA) and Home Care Assessment (HC) for planning care and services in home and community-based settings • Palliative Care Assessment (PC) for community-based older adults where a palliative care focus is required. 3

  4. Collect once – use many times General information Quality Services standards Research data Metadata repository Policy standards Technical Legal standards aspects 4

  5. What interRAI tells us about people with dementia living in the community 5

  6. What we are looking at • Home Care assessments completed in 2017/18 • Assessments not clients • Demographic characteristics • Outcome measures • Outcome scales • Clinical Assessment Protocols (CAPs) 6

  7. Demographic characteristics • One in four Home Care clients had a diagnosis of Alzheimer’s disease and/or other type of dementia • 44% of diagnosed Home Care clients are between 75 to 84 years of age • Men were 12.5% more likely to be diagnosed with dementia (age adjusted) • Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) 7

  8. Cognitive performance Scales • This scale combines information on: 1. daily decision making 2. short term memory 3. making self understood 4. eating performance. • The score ranges from 0 to 6 – the higher the score, the worse the cognitive impairment. 8

  9. Other health conditions 35% 33% Dementia & CPS>=3 30% No Dementia & CPS<3 26% 25% 22% 20% 17% 14% 15% 13% 11% 10% 10% 5% 0% Coronary heart disease Diabetes mellitus Anxiety Depression 9

  10. Cognitive and mental health 70% Prevent decline 60% Facilitate improvement 50% 28% 40% 14% 15% 30% 22% 20% 34% 33% 27% 10% 6% 13% 6% 2% 2% 0% Dementia No Dementia Dementia No Dementia Dementia No Dementia & CPS>=3 & CPS<3 & CPS>=3 & CPS<3 & CPS>=3 & CPS<3 Behaviour CAP Communication CAP Mood CAP 10

  11. Activities of daily living (ADL) self-performance hierarchy scale No Dementia & CPS<3 6% 5% 5% 0% 3 - Extensive assistance required 4 - Maximal assistance required 5 - Very dependent 6 - Total dependence Dementia & CPS>=3 16% 10% 8% 2% 0% 5% 10% 15% 20% 25% 30% 35% 40% 11

  12. Family support Average hours of care and monitoring activity in 3 days No Dementia & CPS<3 Dementia & CPS>=3 0 2 4 6 8 10 12 14 16 # of hours 12

  13. Strong relationship with family Strong and supportive relationship with family No Dementia & CPS<3 88% Dementia & CPS>=3 91% 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% 13

  14. Family carers status The primary family carer expresses feelings of distress, anger, or depression No Dementia & CPS<3 16% Dementia & CPS>=3 45% 0% 5% 10% 15% 20% 25% 30% 35% 40% 45% 50% 14

  15. Family carers status – cont. The primary family carer is unable to continue in caring activities No Dementia & CPS<3 17% Dementia & CPS>=3 38% 0% 5% 10% 15% 20% 25% 30% 35% 40% 15

  16. Advance Care Plan (ACP) and Enduring Power of Attorney (EPOA) 80% Dementia & CPS>=3 No Dementia & CPS<3 67% 70% 60% 51% 50% 40% 30% 20% 10% 4% 3% 0% ACP in place EPOA in place 16

  17. Like more data? 17

  18. interRAI data visualisation: www.interRAI.co.nz/data 18

  19. www.interrai.co.nz

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