Pediatric Oncology Care Southern Nevada Ala n Ike d a MD CMO, - PowerPoint PPT Presentation

Pediatric Oncology Care Southern Nevada Ala n Ike d a MD CMO, Cure 4 T he K id s F o und a tio n Inte rim Cha ir o f Pe d ia tric s, Summe rlin Ho spita l Me d ic a l Ce nte r 16 SE P 2019

Objectives Pro vide a b e tte r unde rsta nding o f pe dia tric c a nc e r • se rvic e s c urre ntly a va ila b le in So uthe rn Ne va da Pro vide a b e tte r unde rsta nding o f spe c ific fa c to rs • tha t mig ht dic ta te re fe rra ls o utside the sta te . Pro vide a b e tte r unde rsta nding o f a dva nc e s • a va ila b le to pro vide tre a tme nt lo c a lly

Cure 4 The Kids Foundation No n-pro fit o rg a niza tio n who se missio n a nd visio n in • sho rt: is to a dva nc e c ure s a nd pro vide a c c e ss to q ua lity me dic a l c a re fo r pa tie nts with c o mple x dise a se s with a fo c us o n pe dia tric he ma to lo g y a nd o nc o lo g y At o ur fa c ility, we pro vide o utpa tie nt c a re . We • c o lla b o ra te with ho spita ls to dire c t inpa tie nt c a re fo r pa tie nts with o nc o lo g ic diso rde rs, a s we ll a s he ma to lo g y a nd rhe uma to lo g y Summe rlin a nd Sunrise Ho spita l • T he re is no lo ng e r c o mpre he nsive Pe dia tric He ma to lo g y/ Onc o lo g y o se rvic e s a t St. Ro se Sie na no r Unive rsity Me dic a l Ce nte r (UMC)

Cure 4 The Kids Staff and Services Appro xima te ly 90 e mplo ye e s • No n-o nc o lo g ic se rvic e s inc lude b o ne ma rro w fa ilure • syndro me s, c o ng e nita l c yto pe nia s, he mo philia , thro mb o philia , me ta b o lic g e ne tic dia g no stic s a nd infusio ns, rhe uma to lo g y, sic kle c e ll dise a se , e tc . Co mpre he nsive Multidisc iplina ry Se rvic e s • L o ng -T e rm F o llo w-Up, Sic kle Ce ll, Ble e ding a nd Clo tting • Diso rde rs Me d ic a l, Nursing , So c ia l Wo rk, E d uc a tio n, Physic a l T he ra py, Be ha vio ra l He a lth o T umo r Bo a rd • On-site : Onc o lo g y, Ra d -Onc , Pe d s Surg , Pe d s Pa th, UCL A Pe d s Nsg (re mo te ) o Re mo te : UCL A Muskulo ske le ta l T umo r Bo a rd o

Behavioral Health Bo a rd-Ce rtifie d Pe dia tric Ne uro psyc ho lo g y • Ne uro psyc h te sting o Psyc ho lo g y, Re g iste re d Pla y T he ra pist • Anxie ty, fa milia l stre ss o Child L ife Spe c ia list • De c re a se stre ss a t a ppo intme nts, a t first me e ting / sha ring o f o dia g no sis/ prio r to sta rting the ra py MSW • Assist with fina nc ia l to xic itie s tha t is o fte n a so urc e o f stre ss o

Physicians and NP’s Ab dul-Ra shid, Nik M.D. • Co mple te d F e llo wship a t Mo nte fio re , Alb e rt E inste in Co lle g e o f Me d ic ine NY o Pra c tic ing in So uthe rn Ne va d a o ve r 10 ye a rs, Jo ine d us 2014 o Dire c to r o f Sic kle Ce ll Dise a se Pro g ra m o Pa rt o f the Pa c ific Sic kle Ce ll Re g io na l Co lla b o ra tive • Alhushki, Wa se e m M.D. • Co mple te d F e llo wship a t CHL A o Jo ine d us 2013 o L e a d Clinic ia n fo r L T F U o Ayya na r, K a nya la kshmi M.D. • Co mple te d F e llo wship a t Mo nte fio re , Alb e rt E inste in Co lle g e o f Me d ic ine NY. o Jo ine d us in 2015 o F o rme r Dire c to r o f Pe d ia tric Ne uro -Onc o lo g y a t the Unive rsity o f L o uisville , K Y. o Dire c to r o f Onc o lo g y

Physicians and NP’s Jo se ph L a sky I I I • Co mple te d F e llo wship a t UCL A o Jo ine d us in 2017 o F o rme r Dire c to r o f Pe dia tric Ne uro -Onc o lo g y a t UCL A a nd Chie f o f o Ha rb o r-UCL A Divisio n o f Pe dia tric He ma to lo g y Onc o lo g y. Dire c to r o f Ble e ding a nd Clo tting Diso rde rs Co mpre he nsive Clinic Be rg , Ang e la DNP, APRN, CPNP • Ac hie ve d DNP fro m Unive rsity o f Uta h o Dire c to r o f Spe c ia lty Se rvic e s a nd Pe dia tric Pa llia tive Ca re Pro g ra m o Buitra g o , Je nnife r APRN • Ac hie ve d APRN fro m UCL A o I nte rim Chie f Nursing Offic e r o

Patients Appro xima te ly 35,000 pa tie nt visits pe r ye a r • Almo st 4,000 ne w pa tie nts se e n pe r ye a r • 100-120 ne w o nc o lo g y pa tie nts se e n pe r ye a r • L e uke mia & L ympho ma , Bra in T umo rs, So lid T umo rs (no n-b ra in) o L o sing so me a b ility to e nume ra te d ue to Pe d ia tric Ne uro surg e ry o Pa tie nt a nd pro g ra mma tic suppo rt: • Ca nd le lig hte rs Child ho o d Ca nc e r F o und a tio n o f Ne va d a , Ag a ssi F o und a tio n, o Ama nd a Ho pe Ra inb o w Ang e ls, Ame ric a n Ca nc e r So c ie ty, And y Be ld y’ s E le c tric Stud io , Chris Ang e l, Cla rk Co unty Sc ho o l Distric t, Critic a l Ca re Co mic s, Do msky Gla ss, Gwe n Ste fa ni, Hyund a i Ho pe o n Whe e ls, Justin Avila , K e lly F e rtitta , K ya ’ s Smile s, Ma ke A Wish F o und a tio n, NCCF , Summe rlin Ho spita l Me d ic a l Ce nte r, T yle r Ro b inso n F o und a tio n, ve g a s Wish, a nd ma ny o the rs Ove r ha lf-millio n do lla rs pe r ye a r thro ug h o ur Cha rity • Ca re Pro g ra m a nd write -o ffs De spite b e ing no n-fo r-pro fit, le ss tha n 2% o f Cure 4 T he K id s F o und a tio n o fina nc ia l e xpe nd iture s a re thro ug h phila nthro py

Cure 4 The Kids T he Jo int Co mmissio n a c c re dite d • Almo st 40,000 sq ft • Dire c t pa tie nt a c tivity o n to p flo o r • 15 pa tie nt ro o ms • 18 I nfusio n re c line rs with a t le a st o ne c ha ir fo r • a c c o mpa nying fa mily me mb e r 2 Priva te suite s fo r lo ng infusio ns fo r iso la tio n • pa tie nts 3 pro c e dure ro o ms • Se da tio n fo r BM a sp a nd b x, L P, I T me ds, Jo int a sp, Skin b io psie s o

Upcoming at Cure 4 the Kids F urthe r b uilding o ur pa tie nt na vig a tio n pro g ra m • Cla ssro o m a nd c urric ula • F ACT a c c re dita tio n fo r HSCT • Auto ’ s, the n a llo ’ s o T o inc lude c e llula r the ra pie s, a s this will b e pa rt o f upfro nt the ra py in COG o tria l fo r HR B AL L Allo g e ne ic HSCT L T F U Clinic • Sub spe c ia lists in multidisc iplina ry c linic s •

Cure 4 The Kids Foundation Clinic

Entry Way

Waiting Room

Waiting Room

Exam Rooms

Infusion Suite

Infusion Pod

Infusion Pod

View from Infusion Suite

Lab Space

Isolation Room

Procedure Room

Checkout

Summerlin Hospital Medical Center I npa tie nt pa rtne r: Only ho spita l who wo uld b e lie ve in us • Gre a t c o lla b o ra tio n to b uild wha t o ur c o mmunity ne e ds • 17 b e d inpa tie nt unit iso la te d fo r Pe dia tric • He ma to lo g y/ Onc o lo g y E ntire unit is HE PA filte re d • I npa tie nt c he mo the ra py, immune the ra py, COG studie s, • o utpa tie nt b lo o d pro duc t tra nsfusio ns, F &N, e tc Hig h-Do se Che mo the ra py with Auto lo g o us Ste m Ce ll • Re sc ue (a ka . HD-c he mo w/ ASCR, a uto lo g o us tra nspla nt) So me insura nc e s se nd ing pa tie nts o ut-o f-sta te d e spite lo c a l se rvic e s o T he y a ppre c ia te the d iffe re nc e s b e twe e n a llo a nd a uto , b ut d o no t ma ke • the d istinc tio n De ve lo p Pe d ia tric AYA Pro g ra m o

Current Obstacles L a c king Co mpre he nsive Onc o lo g ic Se rvic e s • Pe dia tric Ne uro surg e ry • Prima ry Child re n’ s Uta h Ne uro sc ie nc e s Pro g ra m will ha ve a Pe d ia tric • Ne uro surg e o n with suppo rt a t Sunrise Ho spita l Pe dia tric Ortho pe dic Onc o lo g y • Gre a t c o lla b o ra tio n with UCL A o Ca n ha ve a pa tie nt sta rte d o n c he mo a s so o n a s o r fa ste r tha n a t the ir • c e nte r Outpa tie nt fo llo w-up c linic a t Cure 4 T he K id s a fe w time s pe r ye a r o Ac c e ss to the ir MSK T umo r Bo a rd a nd spe c ia lists a s ne e d e d o Pe dia tric HSCT : Ce llula r the ra pie s, inc luding g e ne • the ra py MI BG T he ra py • COG Pha se I tria ls (ne a re st CHOC) •

Other Inpatient Obstacles Pe dia tric Ne uro lo g y a t Summe rlin Ho spita l • Awa iting c re de ntia ling o Pe dia tric E NT Onc o lo g y g a p a t Summe rlin a nd • Sunrise Ho spita ls Ce rvic a l No de b io psie s ha ve no t b e e n a n issue o

Other Obstacles Co lla b o ra tive e ffo rts with o utside ho spita ls • We ha ve de ve lo pe d g re a t c o lla b o ra tive te a ms o I nsura nc e s o fte n c o ntra c t b a se d o n the ir c o sts • Ma in issue ha s b e e n po o r c o mmunic a tio n o I nsura nc e s sho uld re vie w the ir c o sts a s so me pro g ra ms do no t tra nsfe r o pa tie nts b a c k to o ur pro g ra m o r ma y b e ve ry de la ye d We ’ re fine if c a re is pro vide d, b ut it is a ha rdship o n the pa tie nt a nd • the ir fa mily L o c a l ho spita l with a dult ne uro surg e ry pe rfo rming • tumo r re se c tio ns o n c hildre n do wn to pre -sc ho o l a g e s I nsura nc e a c tio ns • Ofte n will pro vide a utho riza tio n, the n no t re imb urse . T hus we ne e d to wa it o fo r L OA’ s to b e c o mple te d b y a dministra tio n o f ho spita l a nd insura nc e