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LETS GET PERSONAL AND PRACTICAL: EFFECTIVE SELF-MANAGED CARE FOR TODAY AND THE FUTURE INTRODUCING Tony Pilkington Jamie Eaton Managing Director Director The ADASS report & Survey The Challenge TOPICS Meaningful Information &


  1. LET’S GET PERSONAL AND PRACTICAL: EFFECTIVE SELF-MANAGED CARE FOR TODAY AND THE FUTURE

  2. INTRODUCING Tony Pilkington Jamie Eaton Managing Director Director

  3. The ADASS report & Survey The Challenge TOPICS Meaningful Information & Advice Prevention & Proactive Intervention Demand Management Ease, Fairness & Choice Empowerment, Control & Transparency Market Management & Supporting Providers What next?

  4. ADASS / YOUNIFI REPORT INTERVIEWED Colin Angel Director of Policy and Campaigns, UK Home Care Association Alex Fox Chief Executive, Shared Lives Plus Tim Gollins Lead for Self-directed Support and Personal Budgets, Think Local Act Personal Richard Humphries Assistant Director of Policy, The King’s Fund Richard Pantlin Programme Manager for Engaging Citizens Online for Care for ADASS Denise Porter Head of Adult Social Care, South Gloucestershire Council Alison Rogan External Affairs Director, Tunstall Healthcare

  5. [•] Barometer research slide Focus groups/interviews Care and support profile On-line research Currently receiving care and support 32% 30% 171 Provide care and support to a friend / family member Do not receive care and support nor provide it to others 38% Responses Age profile Undertaken in February 5% 13% and March 21% 18 - 25 years 26 - 40 years 41 - 60 years 61 - 80 years 16% 80 + years 45%

  6. [•] Highest priorities Currently receiving funded care and Not receiving care and support but Not receiving care and support nor support provide it to others provide to others 1. To remain at home for 80.0% 1. Reassurance that the care 82.0% 1. Reassurance that the care 67.4% as long as possible provided to me is safe provided to me is safe 2. Choice over how my 2. To remain at home for 2. To remain at home for 76.7% 77.5% 65.1% care and support works as long as possible as long as possible 3. Reassurance that the care 3. Choice over how my 3. Control over my daily 73.3% 69.2% 60.5% provided to me is safe care and support works life 4. Freedom to spend 4. Freedom to spend money on care and money on care and 73.3% 69.2% support in ways and at support in ways and at times that make sense times that make sense to me to me

  7. [•] Information and advice

  8. Straw poll

  9. THE CHALLENGE Financial Pressures Stretched Fragile Provider Growing Staffing Market Roles Accountable Traditional Care Technologies Increasing Statutory Demand Obligation Safeguarding Changing Legislation Integration Pressures Complex Processes

  10. Meaningful information & advice Prevention and proactive intervention Demand management Ease, fairness and choice Empowerment, control and transparency Market management & supporting providers

  11. MEANINGFUL INFORMATION & ADVICE “We need much stronger information and advice for people. This is not just about giving people a list of home care agencies and telling them to get on with it. The advice given should be as important as helping somebody investing in a pension or buying a house.” Richard Humphries, The Kings Fund

  12. MEANINGFUL INFORMATION & ADVICE Access to as much information and advice as possible 48.2% 64.1% 41.9% Currently receiving funded Not receiving care and support Not receiving care and care and support but provide it to others support nor provide to others

  13. MEANINGFUL INFORMATION & ADVICE Survey respondents saw good Information & Advice as being highly important, secondary only to having control of care funds “I would want information and advice to support me to make the right “most people don't understand the system until they are thrown in “have been awarded £50 per week but not able to talk to my social “Need to know what is out there first and for people to understand decision about my care and support. I do want the freedom to spend the middle of it” worker so I still have not used any of my allowance” what help I need” money on the right care”

  14. MEANINGFUL INFORMATION & ADVICE Information & Advice, what do I Technologies: need from it? § That meet the expectations of citizens - § To be advised of what I built around the person for the person don’t know § Giving good information and advice § To inform me of my options and enabling good decisions give me direction § That target resolution more than § To help me to help myself merely redirection § Proactive in information sharing Need to be: Achieving: Personal Helping people make informed choices § § Meaningful to the enquiry Promotion of low cost alternative solutions § § being made to aid outcomes and cost control Tailorable to support and retrieve Keeping people informed of things that § § information may help them Clear and understandable Giving Council insight into where to best § § intervene and support

  15. Meaningful information & advice Prevention and proactive intervention Demand management Ease, fairness and choice Empowerment, control and transparency Market management & supporting providers

  16. PREVENTION & PROACTIVE INTERVENTION “We need a system that focuses on “Actually social work needs to be “Technology, such as Telecare, has promoting independence and about professional intervention helped achieve significant financial prevention rather than reacting to that helps people self-manage savings, increased the number of crisis.” and service provision as a last residents not requiring further resort. Money needs to be spent services and reduced long-term on prevention and intervention residential placements.” rather than on fixing people.” Richard Humphries, The Kings Fund Tim Gollins, Think Local Act Personal Ali Rogan, Tunstall Healthcare

  17. PREVENTION & PROACTIVE INTERVENTION To remain at home for as long as possible 80.0% 77.5% 65.1% Currently receiving funded Not receiving care and support Not receiving care and care and support but provide it to others support nor provide to others

  18. PREVENTION & PROACTIVE INTERVENTION Consumer Views “We would all hope to be able to do much of the organisation ourselves; but I recognise that some of us won't be able to do so when it matters. So flexibility of approach for different user groups seems critical to me”

  19. PREVENTION & PROACTIVE INTERVENTION Need ability to : Technologies: § Identify opportunities for § To monitor behaviours and activity where proactive intervention it is wanted § Understand persons preferences § That automate the identification of of Council role opportunity and trigger response § Know intervention is wanted § Proactively share new preventative offers § Know prevention is appropriate Need to have: Achieving: Rich information to highlight Helping People stay out of the system § § opportunities Helping people maximise lower cost § Preventative and low cost offers means of meeting needs § to divert people to Helping more people through lower § Workforce that promote cost means § prevention & needs led Targeted resource and effort to where § intervention most effective

  20. Meaningful information & advice Prevention and proactive intervention Demand management Ease, fairness and choice Empowerment, control and transparency Market management & supporting providers

  21. DEMAND MANAGEMENT “More and more people are finding themselves “Actually social work needs to be about self-funding their own care. Over half of care professional intervention that helps people self- home income comes from private individuals manage and service provision as a last resort. themselves. The system has not kept pace with Money needs to be spent on prevention and that.” intervention rather than on fixing people.” Richard Humphries, The Kings Fund Tim Gollins, Think Local Act Personal

  22. DEMAND MANAGEMENT Need ability to see and plan for Technologies: future demand: § Meeting todays expectations § Where is it coming from? § Built around the person § How do we change its trajectory/ § That target resolution more than § What services do we need? merely redirection § Demand on what funds? § Promoting of preferred options § Providing insight at the person level Need to have: Achieving: Rich information gathered from Helping People stay out of the system § § that emerging demand Helping people maximise lower cost § Ability to quantify where best to means of meeting needs § put our resources and skills Helping more people through lower § Workforce that promote self help cost means § and help people help themselves BI to inform planning § Targeted resource and effort to where § most effective

  23. Meaningful information & advice Prevention and proactive intervention Demand management Ease, fairness and choice Empowerment, control and transparency Market management & supporting providers

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