Introducing Parent Carer Forums & LPCF’s Parent Mentoring Service BR EAKIN G D OW N BAR R IER S 19 SEPTEMBER 2018 BIR M IN GHAM K U L WIN D E R BO L A C HAIR - L U T O N PAR E N T C AR E R F O R U M & E AST O F E N GL AN D PC F
About LPCF... W HO AR E W E, AN D W HAT W E D O W HY S ET U P A M EN TOR IN G S ER VICE? THE IM P ACT OF OU R W OR K AN D W HER E TO N EXT
Who are we, and what we do Luton VCS 150 11 Forums 1 Forum Forums in the East in Luton in England Education of England 430 across 9 3,500+ members Forums work regions – members in Co- 82,000+ Health members production Social Care
Why set up a mentoring service? As a Qualitative Researcher, I became aware that the need of mothers with children that had complex needs were not being met… Case accounts – from two mothers Mother A Bengali – Aged 25-30, born in the UK – first child WS560090.WMA Mother B Polish – Aged 35-40 born outside the UK WS560082.WMA All the mothers said the same thing – that it would have been good to have someone to talk to, someone who could understand their worries…
The impact of our work and where to next? What do these case studies tell us? • That the needs of mothers are often missed – because the focus is quiet rightly on the baby with complex needs ▪ Extreme prematurity ▪ Hydrocephalus What’s the impact of our work so far? ▪ VP shunt • By highlighting the mothers need for emotional support we have influenced PNMH ▪ Chronic lung disease pathways - locally and regionally (East of England), to be mindful of this cohort ▪ Retinopathy of prematurity • LPCF’s work has helped to empower mothers to support other mothers who are at the start ▪ Myopia and squint of their child’s SEND journey ▪ Reflux ▪ Sensory issues What next? ▪ Cerebral palsy • To role out a targeted workshops with a view to inform decision making, prevention and ▪ Autism early intervention relating to high risk relationships and complex genetics conditions ▪ Learning difficulties • To use our evidence to support commissioners to buy in more Psychological Wellbeing Practitioners (PWPs) who can support this cohort better sooner.
ERPCF Any Questions? Chair@lutonforum.org.uk
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