Engaging w ith M.E. Engaging w ith M.E. Prof. Malcolm Hooper Emeritus Professor of Medicinal Chemistry University of Sunderland Sparshalt College 14 November 2005 Arranged by Invest in M.E. in conjunction with Eastleigh & Winchester M.E. Support Group ester M.E. Support Group Arranged by Invest in M.E. in conjunction with Eastleigh & Winch
VACCINES N A P S OPs IoM 2000 >40 MAJOR EXPOSURES Carb OCs Pyreth THE MOST TOXIC WAR IN WESTERN MILITARY HISTORY DEET Jan. 16 - Feb. 28 1991- [Hooper 2000] CWs N M E U R S V T E A A R g D B A T S USA-UK CONGRESS-PARLIAMENTARY HEARINGS 2000,2002, 2004 (LLOYD REPORT Nov 2004)
SYNDROMES OF UNCERTAIN ORIGINS Merck Manual 1999, 17 th Edition GULF WAR SYNDROME MULTIPLE OPs GWS/I CHEMICAL MILITARY ME SENSITIVITY ME-CFS FMS NEUROLOGICAL- ANS, PNS, CNS “Considering the extent of the patients’ CARDIOVASCULAR complaints and disability, the results of IMMUNE SYSTEM ROUTINE laboratory tests were GASTROINTESTINAL strikingly NORMAL” S Straus RESPIRATORY ENDOCRINE SYSTEM SOMATISATION- PSYCHIATRIC- IN THE MIND
Evidence from Garth Nicolson, 1996. There is a close coincidence between the 30 symptoms of GWS and ME-CFS.
S Y M P T O M S O P s G W S M C S F M S C F I D S M S A I D S J O I N T P A I N + + + a r o u n d + + + j o i n t a r e a F A T I G U E + + + + + + + H E A D A C H E + + + + + + + M E M O R Y + + + + + + + P R O B L E M S S L E E P + + + + + ? ? d u e t o + D I S T U R B E D m e d i c in e s S K I N + + + + + b u r n in g + P R O B L E M S s k i n P R O B L E M S + + + + + + + C O N C E N T R N D E P R E S S I O N + + + + + + + M U S C L E P A I N + + + + + + + D I Z Z I N E S S + + + + + + + G .I . - I r r . B o w . + + + + + + + P E R I P H + + + + + + + P A R E S T H E S / T I N G L I N G C H E M / E N V I R + + + + + R e p o r t e d _ S E N S I T I V I T Y E Y E + + + + + + + P R O B L E M S A N X I E T Y + + + + + + + T A C H Y & / O R + + + + + + + C H E S T P A I N B R E A T H I N G + + + R e p o r t e d + + + P R O B L E M S L I G H T + / - + + R e p o r t e d + + _ S E N S I T I V I T Y + L it e r a t u r e . R e p o r t e d = A n e c d o t a l A d a p t e d f r o m J a c k i e B u r k h e a d LINKS TO MODERN CHRONIC LITTLE-UNDERSTOOD ILLNESSES.
Very substantial progress has been made on Gulf War related illnesses…….the most telling feature being that they are PRIMARILY PSYCHOLOGICAL DYSFUNCTIONS….. Recorded since at least the American Civil War NOT UNIQUE TO GULF CONFLICT NO ILLNESSES SPECIFIC TO PARTICIPATION IN OPERATION GRANBY HE HAS A PSYCHIATRIC ILLNESS I hope he will not waste his TIME, ENERGY, ASPIRATIONS chasing after NON-EXISTENT ORGANIC EXPLANATIONS THAT WILL NEVER BE FOUND Letter from MAP to GP responsible for care of GWV-2001
Wessely et al BMJ 2002;325;576-9 MOST VETERANS DO NOT HAVE A FORMAL PSYCHIATRIC DISORDER THERE IS NOT AN EXCESS OF PTSD AMONG GWVs ~ 1-3% EXPLANATION - 1 WAR SYNDROMES - CRIMEA, BOER AND AMERICAN CIVIL WAR Hyams KC, et al Annals Internal Med. 1996;125:398-405. Jones E, et al. BMJ 2002;324:324-4 . Hooper M. 2002. http://bmj.com/cgi/eletters/324/7333/321. NON-SENSE- 4.5 x VIETNAM WAR EXPLANATION - 2 SOMATISATION! ILLNESS DRIVEN BY A DISTURBED PSYCHE NO ORGANIC CAUSE(S) LINK WITH OTHER CHRONIC ILLNESSES ESPECIALLY ME-CFS, MCS, OPs etc Hooper M http://bmj.com/cgi/eletters/325/7364/576
FUNCTIONAL SOMATIC SYNDROMES: ONE OR MANY? Wessely et al Lancet 1999;354:936-9 CANNOT EXPLAIN Gastroenterology – IBS, Non-ulcer dyspepsia BY CONVENTIONAL PARADIGMS Gynaecology – PMS, chronic pelvic pain Rheumatology – Fibromyalgia CONVENTIONAL THERAPY INEFFECTIVE Cardiology – Atypical or non-cardiac pain Respiratory medicine – hyperventilation MORE COMON IN Infectious Disease – PVFS- ME-CFS WOMEN THAN MEN Neurology – Tension headache SHARE NON-SPECIFIC Dentistry – TMJ dysfunction, Atypical facial pain SYMPTOMS ENT – Globus syndrome ALLERGY - MCS CLAIMED ALL THESE SYNDROMES RESPOND TO SAME THERAPIES, CBT/GRE.
SOMATIC MEDICINE ABUSES PSYCHIATRY – AND NEGLECTS CAUSES An almost TOTAL lack of SCIENTIFIC support Reclassifying BODILY symptoms as MENTAL problems…where CONVENTIONAL medicine is at a loss for an explanation. LACK OF firm KNOWLEDGE is converted into SPECULATIVE ASSERTIONS without any CRITICAL voices being heard. Causal explanation for illnesses .. go with predominantly somatic symptoms [that] lack any basic similarity to known mental disorders. An evasive argument…with its lamentably poor record of research into causes, particularly where environmental factors are concerned. Industrial interests are actively influencing the course of what is ostensibly a scientific discussion. What makes an individual human being ill cannot be determined by statistics Lack of knowledge is a considerable handicap in the treatment of chronic diseases Per Dalen (Psychiatrist) http:art-bin.com/art/dalen_en.html Mercury, Lyme’s disease, placebo effect, toxicology, epidemiology
DR JOHN DIAMOND- FORMER PSYCHIATRIST “I AM NO LONGER A PSYCHIATRIST. I RENOUNCE IT BECAUSE I BELIEVE CRUELTY IS AT THE CORE OF THE PROFESSION (AND ) I BELIEVE THAT THERE IS SOMETHING INHERENT IN THE PROFESSION THAT TENDS TO BRING OUT ANY CRUELTY LURKING WITHIN. I HAVE LONG WONDERED WHY THIS PROFESSION……WHICH OUGHT TO BE SO COMPASSIONATE …HAS IT SEEMS TO ME, TURNED ITS BACK ON HUMANITY” Facets of Diamond, 2003 Quoted in Mental Health Movement: Persecution of Patients? Hooper et al 2003
DEFINITIONS AND NAMES ARE CRITICAL PROGRESSIVELY ME HAS COME TO BE DEFINED AS CHRONIC FATIGUE SYNDROME WHICH IS A DIAGNOSIS OF EXCLUSION AND CRUCIALLY DEPENDS ON FATIGUE OF > 6 MONTHS ALL PHYSICAL SYMPTOMS AND BIOCHEMICAL MARKERS HAVE BEEN GRADUALLY REMOVED AND EVERYTHING DIRECTED TOWARDS A PSYCHIATRIC DEFINITION MANY DIFFERENT ILLNESSES AND CONDITIONS ARE ASSOCIATED WITH SIGNIFICANT FATIGUE- SO A CONFUSING “RAG BAG” OF ILL DEFINED PATIENTS HAVE BECOME LABELLED WITH FATIGUE WHO - ICD 10 - G93.3 IS CLEAR MYALGIC ENCEPHALOMYELITIS IS A NEUROLOGICAL DISORDER ALLOWED ALTERNATIVE NAMES POST-VIRAL FATIGUE SYNDROME, PVFS, CHRONIC FATIGUE SYNDROME, CFS
CANDIAN DEFINITION INSERT 1000 COPIES SOLD. http://www.meactionuk.org.uk/What_Is_ME_What_Is_CFS.htm
MY ATTEMPT TO MAKE SENSE OF OVERLAPPING SYNDROMES AND OFFER A COMPREHENSIVE UNDERSTANDING OF PRICE £4-00 p&p THESE COMPLEX CHRONIC ILLNESSES
DIRTY TRICKS AND DECEPTIONS! PSYCHIATRIC HEGEMONY AND THE MANUFACTURE OF MENTAL ILLNESS ONE SIMPLE STEP FROM NEUROLOGY TO MENTAL DISORDERS ICD-10 G93.3 TO ICD-10 F.48 SOMATISATION - MUNCHAUSEN MBP Slingshot Publications, 2003 ISBN 0-9519646-4-X. £12-OO
MENTAL HEALTH MOVEMENT : PERSECUTION OF PATIENTS? Briefing paper for Countess of Mar House of Lords Debate 22-1-04 House of Commons Select Committee on Health DOCUMENT: http://www.satori-5.co.uk/ word_articles/me_prof_hooper_3.html DEBATE : http://listserv.nodak.edu/scripts/wa.exe?A2=ind0401d&1=co- cure&F=&S+&P+1313
IN THE DEBATE IT WAS CLAIMED THAT IT WAS ACCEPTABLE FOR ME-CFS TO BE PLACED IN TWO DIFFERENT CLASSIFICATIONS IN ICD- 10 NEUROLOGY , G.93.3 AND MENTAL AND BEHAVIOURAL, F.48.0 THE W.H.O. STATED CATEGORICALLY THAT THIS WAS NOT POSSIBLE OR ACCEPTABLE ACCORDINGLY- LORD NORMAN WARNER, PARLIAMENTARY UNDER SECRETARY OF STATE FOR HEALTH, WROTE TO THE COUNTESS OF MAR ON 11 FEBRUARY 2004 “THE UK ACCEPTS ICD-10, AND THEREFORE AFTER IT WAS POINTED OUT THAT THE RELATIVELY NEW TERM CHRONIC FATIGUE SYNDROME HAS BEEN INDEXED TO THE NEUROLOGY CHAPTER, CORRESPONDING ADJUSTMENTS WERE MADE TO THE WEB VERSION OF THE FIRST EDITION OF THE GUIDELINES, AND AN ERRATUM NOTE HAS BEEN PLACED ON THE RSM WEBSITE.” “THE SECOND EDITION OF THE WHO GUIDE TO MENTAL HEALTH AND NEUROLOGY IN PRIMARY CARE WILL HAVE ONLY ONE ICD-10 CODE FOR CFS- THIS IS G93.3
STILL IT GOES ON! MISREPRESENTATION AND WORSE FITNESS FOR WORK - OUP-2004 REPRINT £50-00 IN ASSOCIATION WITH RCP FACULTY OF OCCUPATIONAL MEDICINE WESSELY et al p.132 - incl, Maurice LIPSEDGE Consultant Psychiatrist KCL. BRIEF INFECTION (USUALLY VIRAL) >>> VULNERABLE PERFECTIONIST PERSONALITY + PRESSURE AT WORK EMPLOYEE SICKNESS ABSENCES>>> FATIGUE >>>> PROLONGED BED REST >>>> MALADAPTIVE BELIEFS >>> CHRONIC INVALIDISM>>> TERMINATION OF SERVICE ON MEDICAL GROUNDS. ALL LAZY CHILDREN - INACTIVE >>>> +/- PENSION ! STEPHEN RALPH -12/6/04 www.meactionuk.co.uk
SAME COMBINING OF ME-CFS & FMS SAME OBSCURANTIST LANGUAGE OF VARIOUS COMBINED FUNCTIONAL SOMATIC SYNDROMES - USED IN ME, GWS, IBS, PMS - ALL ARE DISTURBED MENTAL & BEHAVIOURAL STATES. CLASSED UNDER WHO F.48.0 ALL CAN BE TREATED BY CBT, GET, PACING WITH ANTIDEPRESSANTS -Family Magazine Mar 2004 p.1-4 ALL PUT BLAME ON PATIENT AND REDUCE INSURANCE CLAIMS FOR BENEFITS AND SUPPORT
THE BATTLE CONTINUES ! Psychoneuroendocrinology 2005;30:990-5 The theory is supported by recent research and may result in better handling of patients … DO NOT LISTEN TO YOUR OWN BODY’S SIGNALS DO NOT TRUST YOUR FEELINGS DO NOT TRUST YOUR THOUGHTS CURRENT CLINICS STILL WEIGHTED TOWARDS PSYCHIATRIC THEORIES AND PACING, CBT, GET WITH PSYCHIATRISTS IN CHARGE AT MENTAL HOSPITALS.
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