Collaboration for Leadership in Applied Health Research and Care East of England Enduring Disabilities and/or Disadvantages (EDD) Theme Theme Lead: Emeritus Professor Tony Holland
Our Aims ❑ To carry out inter-disciplinary research that benefits (i) children, young people, and adults with enduring cognitive, social and/or functional al difficulties and/or social disadvantages that may compromise their mental and/or physical well-being, (ii) their families, and (iii) the health and/or social services that support them; ❑ To carry out research in ways that are innovative through, for example, the use of novel approaches to PPI, the involvement of practitioner researchers and CLAHRC Fellows, charitable and other third sector organisations, and new technologies. Enduring Disabilities and/or Disadvantages (EDD) Theme
Young Trans- LD Autism people diagnostic Collaborations with Diagnosis and service users and families assessment ❑ Service user advisory group of people with ❑ Red Flags: improving the diagnosis of learning disabilities and additional mental autism spectrum conditions health and/or behavioural needs ❑ ‘Vulnerability’ in autistic people ❑ Co-producing information for families of children with ‘global developmental delay’ Interventions for Informing and/or evaluating specific groups service provision ❑ Inter-Personal Counselling for YP with ❑ The purpose, structure and functioning symptoms of depressions of CTs ❑ Supporting young people with LD and/or ❑ Physical, social and psychological needs of autism to remain ‘close to home’ C&YP with acquired brain injuries Enduring Disabilities and/or Disadvantages (EDD) Theme
Kyle’s Story ‘we developed a plan of what we wanted to achieve together and what we thought good would look like … nothing seems too much trouble … exactly the kind of support that is needed’ Kyle’s parents Enduring Disabilities and/or Disadvantages (EDD) Theme
Making a local impact Start of Government’s 2011 ‘Transforming Care’ programme Positive Behaviour Support (PBS) in 2015 NICE Guideline NG11 CLAHRC Fellowship award to 2015-2016 Roland Casson. (RC) RC seconded from CPFT to 2016-2018 Cambridgeshire Social Care Pilot PBS team established locally. Cambridgeshire County Council funding (CLAHRC EoE support) to PBS team 2019-2021 • maintain and develop service • extend to another part of county
Promoting successful impacts ❑ Explicit support from service users and/or their families ❑ Fit with local priorities ❑ Sustained support from local champion/s ❑ Supported by NICE guidelines, national policy, ‘good practice’ guidance ❑ Service change is at least part- funded by others ❑ Clear economic benefits to statutory services Enduring Disabilities and/or Disadvantages (EDD) Theme
For further information, please contact Isabel Clare: ichc2@medschl.cam.ac.uk Enduring Disabilities and/or Disadvantages (EDD) Theme
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