CME TTR Amyloidosis Treating and Empowering the Patient Mo Mori rie A Gert rtz, z, MD MD: Ma Mayo Clinic
Treatment Options • Symptom relief • Liver transplantation • TTR stabilizers • Tafamidis • Diflunisal Tetramer Monomer Misfolded protein Amyloid fibrils • TTR production blockers • Inotersen • Patisiran
Managing TTR Amyloidosis is a Team Effort Educating Patients • Long-term management • Compliance Team approach to care • Cardiologists • Nephrologists • Neurologists • Gastrointestinal specialists • Ophthalmologists • Genetic counselors • General practitioners • Nurses
Amyloidosis Support Groups amyloidosissupport.org • Treatment centers • Local chapters • Events • New • Resources • Clinical trail Information • Amyloidosis information
Amyloidosis Research Consortium arci.org • Research • Events • Treatment centers • Patient support resources • Clinical trail Information • Amyloidosis information • My Amyloidosis Pathfinder (MAP)
Amyloidosis Foundation amyloidosis.org • Facts • Research • Toolkits • Webinars • Support material • Stories
Summary TTR Amyloidosis is: • No longer a death sentence • Manageable and treatable @moriegertz • Rare but not as rare as we assume • Awareness campaigns are available • Support is available
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