Cari Caring ng to to the the Bea Beat: Expr Expressi essing ng - PowerPoint PPT Presentation

Cari Caring ng to to the the Bea Beat: Expr Expressi essing ng the the end end of of lif life ca care re and and support support needs needs of of Pa Pacific ol older der adul adults ts and and their their family ily care ca regive vers Dr Ofa Dewes Maurice Wilkins Centre for Molecular Biodiscovery, Department of Molecular Medicine & Pathology, and School of Nursing The University of Auckland 1

Pa Pacific Pe Peoples: a New New Ze Zealand vie viewpoin point Three of the groups of islands are either NZ territory or states in free association with NZ. Sources : Statistics New Zealand Ethnicity classification; Google Maps 2

Living Living in in Coun Countr try and and Living Living in in New New Ze Zealand More people live in NZ than in the islands for Niue, Tokelau and the Cook Islands. People from these three countries are New Zealand citizens. Data Sources : Statistics New Zealand Census data, NZStat; List of countries and dependencies by population, Wikipedia. 3

Pr Projecte ted Ag Ageing eing of of Dea Deaths hs of of Pa Pacific Pe Peoples The projected ageing of deaths over the period 2016 ‐ 2038 is significant. Deaths of Pacific Peoples age 75 and over are projected to increase from 38% in 2016 to 61% of all deaths by 2038. Data Source : National and DHB Projections provided to the Ministry of Health, 2015 update. 4

Pr Projecte ted Ag Ageing eing of of Dea Deaths hs of of Pa Pacific Pe Peoples The projected ageing of deaths over the period 2016 ‐ 2038 is significant. Projected to be more deaths at older ages and fewer deaths at younger ages. Potentially more deaths with multi ‐ morbidity, frailty and dementia. This is expected to challenge communities and models of delivery. Data Source : National and DHB Projections provided to the Ministry of Health, 2015 update. 5

T ā ping pinga ‘a Maam Maama: a: Pa Pacific Li Life & Dea Death in in Adv Advanced nced Age Age Aim: Research the end of life circumstances of Pacific people dying at > 75 year of age and experiences of family carers during end of life period and after bereavement Using qualitative methods, we planned to: Interview 32 family carers and conduct 3 stakeholder focus group interviews and collect information on: Unmet needs, knowledge of publicly ‐ funded services, priorities for end of life care and enabling factors or barriers to meeting these priorities, implications for health and social service providers and policy makers, and produce digital stories to extend the reach of the study findings in addition to community meetings, scientific conferences and publications. 6

My My di digi gital sto story: Thank Thank yo you fo for ev ever erythi hing ng 7

Re Research Activities Activities Fe February – J – July 2017 2017 • 31 participant interviews (Samoan, Tongan, Cook Is Maori & Other Pacific) • Four participant digital stories, and music video • Preliminary data analysis • Key findings: high levels of mobility and interactions with health professionals and community groups, raise awareness, want to be with family, children, especially grandchildren • Implications to inform culturally ‐ and people ‐ centred service provision, facilitate health communication, and develop training resources for family carers and professional staff, and connect families with end of life care services 8

Pl Planned anned Activities Activities Augus August – N – November 2017: 2017: • Three stakeholder focus group interviews • One more individual interview • Launch four participant digital stories • Complete full thematic and narrative analysis of data • Disseminate study findings • Present final results at Te Ā rai Palliative Care and End of Life Annual Conference and National Science Challenge for Ageing Well Impact Conference 9

Our Our mu music video: video: I’ll I’ll ca care re fo for yo you 10

Ackno Acknowledg ledgem emen ents: ts: • Study participants, families and stakeholders • Malia Hamani and staff at Treasuring Older Adults, and Research Advisory Group • The Valiant Boys • Ministry for Business, Innovation and Employment • Professor David Baxter and the team, University of Otago, as lead agency for the National Science Challenge for Ageing Well • Research team including members of the Te Arai Palliative Care and End of Life Research Group at the School of Nursing, and the Media and Communications Department, University of Auckland 11

CONTACT US AT: wearethepacificocean.com EMAIL: o.dewes@auckland.ac.nz @wearethepacificocean @Pasifik_Ocean @we.are.the.pacific.ocean 12