Ann & Robert H. Lurie Childrens Hospital of Chicago Current CAP - PDF document

Ann & Robert H. Lurie Children’s Hospital of Chicago Current CAP RESEARCH PROJECTS – PhD Faculty Pritzker Department of Psychiatry and Behavioral Health Research Activities January 31, 2019 Research Grants (current, and last 3 years) Chen, D. (PI), Finlayson, C., & Gordon, E. (2018-2020). Fertility Decision-Making in Youth and Young Adults . Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, R01 HD 097459. Total award: $435,169 Chen, D. (PI) (2018-2019). Neurocognitive correlates of pubertal suppression treatment among transgender youth. Lurie Children’s Foundation Research Grant, Ann & Robert H. Lurie Children’s Hospital of Chicago. Total award: $96,972 Chen, D. (Co-Investigator; MPIs: Mimiaga, M. & Garofalo, M). (2016-2021). Adaptive intervention strategies trial for strengthening adherence to antiretroviral HIB treatment among youth. National Institute of Nursing Research, National Institutes of Health, R01NR017098. $3,121,783 Chen, D. (Primary Mentor), Kyweluck, M. (PI). Summer 2017. Freezing for the future: Culturally mediated fertility preservation decisions among trans youth and parents. The Sexualities Project at Northwestern (SPAN) Summer Grant Award. $2,355. Chen, D . (PI), Gordon, E., Johnson, E., Finlayson, C., Woodruff, T., Garofalo, R. (2017). Development of a Fertility-Related Decision Aid for Transgender Youth and Their Parents. The investigators will conduct a decisional needs assessment of peripubertal transgender youth and their parents in an effort to develop a patient-centered

Decision Aid About Fertility for Transgender Youth (DAAF-TY). Society of Pediatric Psychology, Targeted Research Grant. $20,000 Chen, D. (PI), Zelko, F. , Johnson, T., & Garofalo, R. (2017-2018). Structured pubertal suppression readiness assessment for gender dysphoric youth . Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, R21 HD087839. $427,439 Chen, D. (PI), Hidalgo, M., Leibowitz, S. (2014-2016). Informing parent-focused intervention for gender-variant children. Lurie Children’s Research Center/CAP clinical - translational pilot study program A mixed-method study to identify, describe, and develop clinical programming to address the behavioral health needs of a clinic- referred, pre-pubertal sample of gender-variant children and their parents. $24,083. Chen, D. (PI), Johnson, E. K., Finlayson, C., Gordon, E., Woodruff, T. K., Garofalo, R. (2016- 2017). Research Excellence Award from the Chairman (REACH), Department of Psychiatry and Behavioral Sciences, Northwestern University Feinberg School of Medicine. Development of a Fertility-Related Decision Aid for Transgender Youth and Their Parents. Clinical guidelines recommend counseling for transgender youth and their parents regarding fertility and reproductive options prior to initiating gender- affirming hormone treatment. The objective of this study is to conduct a decisional needs assessment of transgender youth and their parents in an effort to develop a patient-centered Decision Aid About Fertility for Transgender Youth (DAAF-TY). Total award, $25,000. Chen, D., (Co-Investigator; MPIs: R Garafalo, J. Olson-Kennedy, YM Chan; & S. Rosenthal) (2015-2020). NIH/NICHD R01-HD082554. The impact of early medical treatment in transgender youth. Multisite observational cohort study of psychosocial and anthropometric outcomes of peri-pubertal and pubertal youth seeking care in multidisciplinary academic medical settings. Total award $5.7 million (Lurie: $1.3 million Coyne, C (PI), Chen, D (Co-Investigator) (1/1/19-12/31/19). Collaborative Refinement of Group Curriculum for Transgender Youth with Social Anxiety Disorder. Society of Pediatric Psychology, Targeted Research Grant. Total award: $20,000 Ellis, D. (PI), Weissberg-Benchell, J. (Consortium PI), Evans, M. (Consortium Co-I) (2017- 2022). Effectiveness Trial of an E-Health Intervention To Support Diabetes Care in Minority Youth. R01DK110075-01A1 Direct Year 1 costs, $ 185,051. This is a

randomized effectiveness trial of a computer delivered brief intervention (“The 3Ms”) aimed at increasing parental motivation for supervision and monitoring of adolescent diabetes management. The intervention targets caregivers of young African American adolescents who are beginning to transition to independent self-care. The study investigates the effects of treatment dose on treatment outcomes and treatment effectiveness associated with adherence and metabolic control to determine the most effective conditions. Ford-Paz, R. E. (Co-PI), Day, G (Co-PI) (9/2016-2/2018). Evergreen Invitational Women’s Health Grant Initiative, Northwestern Memorial Foundation. Working on Womanhood (WOW): A Process Evaluation. Funding to conduct a process evaluation to assess fidelity and feasibility of implementation, acceptability, and utility/initial promise of newly refined curriculum for a multi-faceted school-based counseling program for girls. Total costs: $100,142. Hood, K., Barnard, K., Weissberg-Benchell, J., Laffel, L. (Co PI’s) (2015 -2019). Psychosocial Aspects of Artificial Pancreas (AP) Research Development and Validation of AP Specific Psychosocial Measures. Leona and Harry Helmsley Charitable Trust. This multi- site study will assess key stakeholders’ perc eptions regarding benefits and barriers to artificial pancreas systems and will develop consistent, reliable and valid measures that research teams can use to assess psychological benefits and barriers. $363,788. Johnson, N., Weissberg-Benchell, J., Hood , K. (Co PI’s) (2015 -2017). Training Psychology Post-Doctoral Fellows to become diabetes researchers and clinicians. Patterson Foundation/University of South Florida, Bringing Science Home. This multi-site training grant is designed to train and develop psychologists who are expert in both the clinical and research needs of individuals with type 1 diabetes. $157,500. Lowry, K . (PI) (03/1/14 – 08/312016). NUCATS. 3 rd Year Follow-up of a Longitudinal Study to Explore Behavioral Factors Associated with Obesity in Preschoolers (Project EAT). Grant funded to collect a 3 rd wave of data collection from participating families to continue the longitudinal data collection of Project EAT. Total direct costs: $30,168 Lowry, K. (2014-2016). Third-Year Follow-up of a Longitudinal Study to Explore Behavioral Factors Associated with Obesity in Preschoolers (Project EAT) Lurie Children’s Research Center/CAP clinical-translational pilot study program. Project EAT assessed 105 diverse parent-child dyads of 2- to 3-year-olds in their homes (objective height/weight measurements, questionnaires, videotaped mealtime observations) to examine parenting factors associated with child’s eating and weight status. This award extends the examination of the longitudinal nature of these parent-child interactions via a third wave of data collection. $30,168.

Malee, K. (2015-2020). Pediatric HIV/AIDS Adolescent Master Protocol (Site Co- Investigator). NIH 5U01HD052102-10. $149,269. Malee, K. (2015-2020). Surveillance Monitoring for ART Toxicities Study in HIV-Uninfected Children born to HIV-Infected Women. (Site Co-Investigator). NIH 5U01HD052102- 10. $323,490. Malee, K . Co-Investigator (2014-2018). Multidisciplinary NeuroAIDS Research Training to Improve HIV Outcomes in Nigeria, Center for Global Health. D43TW009608 (Taiwo, B.). Project will develop research capacity at the National Center for Excellence in Neurosciences and Infectious Diseases in Nigeria, the University of Ibadan. $24, 206. Malee, K. : Co-Investigator (2014-2019). Determinants of Resilience in Youth with HIV Infection and Youth Affected by HIV. 1R01MH102151-01(Ananworanich, J.) This study seeks to identify positive attributes associated with strengths in cognitive, emotional and behavioral functioning in youth with HIV infection and in HIV-affected youth in Asia, including Thailand and Cambodia. $29.415. Malee, K. Consultant (2016-2018). Neurodevelopmental and neuroanatomical outcomes in early antiretroviral treated young children with perinatally-acquired HIV infection (PHIV) compared to age-matched perinatally HIV-exposed uninfected children (PHEU). Collaborative Initiative for Paediatric HIV Education and Research (CIPHER) (Jantarabenjakul, W.). 7-1-2016-6-30-2018. Malee, K. Co-Investigator (2015-2020). Pediatric HIV/AIDS Adolescent Master Protocol (Site Co-Investigator). NIH/NICHD. Multi-site longitudinal study of effects of perinatally acquired HIV infection on children and adolescents. $467,972. Malee, K. Co-Investigator (2015-2020). Surveillance Monitoring for ART Toxicities Study in HIV-Uninfected Children born to HIV-Infected Women. (Site Co-Investigator). NIH/NICHD. Multi-site longitudinal prospective study examining the effects of HIV exposure, antiretroviral medication and HIV infection on infants, children and adolescents, and young adults. $450,211. Malee, K. (2019-2020). The International Maternal Pediatric Adolescent AIDS Clinical Trials (IMPAACT) Network monitors investigations to decrease HIV incident infection including mother-to-child transmission (MTCT) of HIV and to decrease mortality/morbidity associated with HIV infection, co-infections, and co- morbidities in pregnant/postpartum women, children (including infants), and adolescents worldwide. (Scientific Leadership Group; IMPAACT 2015 psychologist). Malee, K. (2018-2023). I ntensive C ombination A pproach to R ollback the E pidemic in