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Sep 28, 2022 •139 likes •190 views

How does health literacy impact the collection and interpretation of patient reported data/patient reported outcomes? Much of patient reported outcome measures focus on symptoms May be associated with accuracy of symptom attribution

  1. How does health literacy impact the collection and interpretation of patient reported data/patient reported outcomes?  Much of patient reported outcome measures focus on symptoms  May be associated with accuracy of symptom attribution  Cognitive/memory symptoms may be confused with symptoms of depression

  2. What approaches are used to collect patient reported data? How might these approaches be impacted by patient/family health literacy?  We use Audio-Computer Administered Survey Instruments (A-CASI)  Allow for a human voice to read questions/possible responses aloud  Maintains privacy for sensitive information  Comfort with computers/technology can be a limitation

  3. Are there optimal approaches/ tools for collecting patient reported data for patients with lower literacy?  A-CASI approaches can reduce limitations imposed by reading difficulty  Cognitive interviewing techniques (engaging participants to describe how they interpreted a question and the context from which they gave their answer) may aid obtaining valid information

  4. What approaches would you recommend in the future?  Field test questionnaires and data collection methods before enrollment  Use cognitive interview techniques  Multiple approaches/types of data collection may be necessary (e.g., objective and subjective measures, qualitative measures

  5. What additional research is needed in this area?  Validation of PROMIS measures among persons with low health literacy

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