Amarpreet Kaur Wednesday 21 st August 14 th Conference of the - PowerPoint PPT Presentation

Amarpreet Kaur Wednesday 21 st August 14 th Conference of the European Sociological Association

§ Germline Genome Editing (GGE) is a technique through which specific parts of DNA in a egg, sperm or embryo can be added, removed or replaced § Heritable edits

§ Human Fertilisation and Embryology Act 2008 (HFE Act) § 14 –day rule § Prohibits implanting genetically modified cells/embryos into a woman § Human Fertilisation and Embryology Authority (HFEA) § Licenses research and treatment involving gamete and human embryos

§ Illegal in country of residence § Condition not licensed § Cheaper in another country § Better expertise § Research trials § Access/Monitoring § Support/Trust

§ Defined as transnational healthcare in the field of assisted reproduction § Inclusive of other terms such as ‘transnational reproduction’ and ‘cross-border reproductive care/services’ § Growing global phenomenon

§ Online survey – 521 participants § Findings report online § Interviews with professionals/experts § Interviews/focus groups with people affected by genetic disease

§ Cannot regulate practices in other countries § Could still be just as (if not more) expensive § Follow-up care could be more difficult § Hard to regulate/monitor

§ To eradicate ‘serious’ single-gene disorders from the human genome § To procreate without passing on a heritable disease § To prevent future generations having to face difficult decisions § To have genetically related offspring which belongs to themselves

§ BBC News, (2018). 'Gene-edited babies': China halts work of He Jiankui. [online]Available from: https://www.bbc.co.uk/news/world-asia-china-46382662 Accessed 18 th August 2019. § HFEA, (2018). About Us. [online] Available from: https://www.hfea.gov.uk/about-us/ Accessed: 18 th August 2019. Human Fertilisation and Embryology Authority. § Inhorn MC, (2015). Cosmopolitan Conceptions: IVF Sojourns in Global Dubai . Durham. Duke University Press. § Jasanoff S, and Hurlbut JB, (2018). A global observatory for gene editing. [online] Available from: https://www.nature.com/articles/d41586-018-03270-w Accessed 21 st August 2019. § Kaur A, (2019). Understandings of Genetic Editing and its Potential Uses within Human Reproduction Survey Report. [online] Available from: http://www.amarpreetkaur.co.uk/img/Final- Survey-Report.pdf Accessed: 18 th August 2019. § legislation.gov.uk, (2018). Human Fertilisation and Embryology Act 2008. [online] Available from: https://www.legislation.gov.uk/ukpga/2008/22 Accessed: 18 th August 2019. § Lovell-Badge R, (2019). CRISPR babies: a view from the centre of the storm. [online] Available from: http://dev.biologists.org/content/146/3/dev175778 Accessed 21 st August 2019. The Company of Biologists.

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