Agenda Introduction to the Problem What is TNet? Why Adopt TNet? - PDF document

9/26/2018 Agenda Introduction to the Problem What is TNet? Why Adopt TNet? www.transplantnet.org ● admin@transplantnet.org How it Works Steps for Implementation Timeline 2 A look from Outer Space Greetings Earthlings Affirmation for Affirmation for Transplant Transplant Professionals Professionals 1

9/26/2018 Humans are dangerous! As if! List of Human Failings • Constant War • Has caused the extinction of thousands of species of animals • Destroying own planet • Spending billions on figuring out how to kill people while spending billions on how to save lives • Hunger in a time of wild excess • Has developed the capability of self annihilation by the push of a button • You elected who???? Like what??? “Shall I go on, human? Prepare for elmination” Affirmation for Affirmation for Transplant Transplant Professionals Professionals “But Wait!! Humans can do good things too!” Like What?? Wait, Transplant?? Great Things Humans Have Done • Domesticated Fire • Medical care • Invented the wheel • Surgical technique • Language/Writing/Music • Transplant medications • Photography/selfies • Transplant biology/science • Conceived of Evolution • Advanced Nursing Care • Physics—the origin of the universe, quantum • Pharmacy/SW/PT/OT/Support staff mechanics, relativity • OPO’s/logistics • Eradicated polio/Vaccines • Humans give organs to each other freely, of • Walked on the moon their own free will, only to help other • Transplantation humans Affirmation for Affirmation for Transplant Transplant Professionals Professionals 2

9/26/2018 Saved by Transplant! Circle of Giving?? Or one way street? OPO OPO Organs Organs DONOR DONOR Allocated Allocated ??? “ People just give organs to each other?? Transplant Transplant Affirmation for Donor Transplant Wowwww!! Totally rad, human. Awareness Professionals Earthling you are saved for now….please fix your Efforts, allocation system!” 10 Proposed Initiatives to “give back” How Do You Send a Letter?? ”I’m not sure” Numerous discussions/proposals around “Write a letter and give it to someone in clinic” the world to “incentivize” organ donation with financial incentives Paper letter (few instructions) given to providers/SWs to hand for review by transplant center for appropriateness—sent back ‐ funeral costs to patient for corrections if needed. The letter is then sent to ‐flat payment the appropriate OPO where the OPO reviews the letter and then Such proposals are highly controversial with questions of coercion, forwards to the donor family, unless there is a need for commodification, ethical challenges‐‐‐Would Gork approve?? correction—in which case it is sent back again to the patient. How about starting with a THANK YOU? Only about 1 in 5 recipients write thank you letters from UCSF!! Snail mail…. Therapeutic potential for donor families! How many of you have hand written a letter or typed one out outside of work in the last year? 5 years? 11 12 3

9/26/2018 TNET Development What is TNet? The System TNet System implemented in Donor A free online platform providing a streamlined, automated Network West and UCSF alternative to traditional correspondence between organ transplant recipients and donor families The Mission May 2014 Oct 2014 Now 2019 2020 • Provide an easy way for transplant recipients and their donor families to contact each other • Generate awareness of organ donation Received funding • Inspire visitors to become registered donors and living donors to initiate program 13 14 Why Adopt TNet? Benefits for OPOs and Transplant Centers Increased Efficiency Online System • Letters can be handled with the click of a button—saving time for the tx center! • Increase awareness‐published • Program automatically tracks number of letters exchanged letters • Make it easy for transplant Ensured Security and Confidentiality recipients to thank donor families • TNet portal forces encrypted connection (SSL) • Reaffirm families’ decision to donate • TNet administrators create accounts for OPOs & TCs • Information of users is only available to those who review their letter(s) • OPOs & TCs may still retain their own policies on the sharing of personal information Traditional mail Peace of Mind • Slower process • Email notifications are sent to OPOs and TCs when they receive a new letter • Letters get lost or forgotten • Email reminders are sent to OPOs and TCs if there are letters that have not been • Complicated; instructions not clear processed for two weeks in their inbox • Environmentally friendly alternative to paper correspondence process 15 16 4

9/26/2018 Benefits for Recipients and Donor Families Other Benefits of TNET Clear Instructions for Correspondence Understanding How to Increase Letter Writing • Posters on 9L • Can access comprehensive information on sending letters directly on one website • Stickers on back of medicine cards • If needed, users can get their questions answered quickly through TNet Support • Large Poster in waiting room • Writing guidelines and letter templates are provided on website and user portal Ensured Security and Confidentiality • Users must verify email address before they can log into their account • Provider Engagement • Web security best practices on the back‐end are employed Peace of Mind What can you do? • Length of correspondence process shortened immensely with online platform from • Ask patients if they have written a letter weeks/years to days • If not, ask them why? Explain how simple the system is…. • Users receive immediate updates on status of their letters in the forwarding process • We all owe our livelihoods to the generosity of donors and donor families….let’s • Letters cannot be lost make sure we show our gratitude! 17 18 How it Works Implementation Steps for OPOs and TCs • Transplant recipient or donor family creates an account Request a TNet account through contact form on website or email administrator directly Request a TNet account through contact form on website or email administrator directly Registration Registration in TNet user portal Contact form can be found on website or email admin@transplantnet.org • Users compose their electronic letters Writing & Writing & Receive new Coordinator Account with username and temporary password Receive new Coordinator Account with username and temporary password • Writing guidelines and letter template are provided Sending Letter Sending Letter • Users can choose to publish a public version of their letter User must set own password upon first login on TNet’s website Note: transplant centers can set up different accounts for each of its transplant programs • Coordinators at user’s transplant center (TC) or OPO Review & Review & process letters through TNet’s platform Forwarding Forwarding New user is automatically integrated into the system New user is automatically integrated into the system • TNet automatically updates users via email on status of their letters User is now an option under “Select transplant center” on transplant recipient registration page or “Select OPO” on donor family registration page New user should designate point person(s) in charge of TNet account Communication can be carried out afterward if Further Further users opt to share personal information Connection Connection 19 20 5

9/26/2018 The Two Goals Timeline TNet System 1. 100% of donor 1. 100% of donor implemented in Donor Marketing Expand nationally families receive a families receive a Network West and UCSF initiative to make across U.S. letter of thanks letter of thanks known to patients and donor families Some letters sent on Some letters sent on People become People become General public General public TNet are published, TNet are published, inspired to become inspired to become learns about organ learns about organ shared through shared through registered organ registered organ May 2014 Oct 2014 Now 2019 2020 donation donation social media social media donors donors 2. The organ donor 2. The organ donor Service expanded to Received funding shortage is shortage is eye and tissue to initiate program Affirmation for donor families and alleviated; lives are alleviated; lives are Transplant recipients saved saved Professionals 21 22 Tnet Site Tour http://transplantnet.org http://transplantnet.org Email us at admin@transplantnet.org to get started. Email us at admin@transplantnet.org to get started. 6