A"Pan&Canadian"ini*a*ve"in " - PowerPoint PPT Presentation

A"Pan&Canadian"ini*a*ve"in " cancer"survivorship" ! Margaret!Fitch! Chair!–!Cancer!Journey! ! !

Canadian"Partnership"Against"Cancer" ! We!are!a! partnership !of!cancer!experts,!charitable!organiza<ons,! governments,!pa<ents!and!survivors,!determined!to!bring!change!to!the! cancer!control!domain.!!! ! ! ! We!work!together!to!s<mulate!genera<on!of!new!knowledge!and! accelerate!the!implementa<on!of!exis<ng!knowledge!about!cancer!across! Canada.!

Cancer"Journey"Mandate" • To!provide!leadership! to!change!the!focus!of! cancer!care!so!that! pa<ents � ,!survivors � ! and!families � !needs!are! beDer!served.!

Ul*mate"Aim" " !quality!of!life!for! those!living!with!and!! aFer!being!diagnosed! with!cancer! ! # !burden!of!suffering! throughout!cancer! experience!

Vision"for"Cancer"Care" • A"comprehensive," coordinated,"person2 focused"cancer"system" that"responds"to"the" full"range"of"needs"of" all"Canadians"and"their" families"through"all" stages"of"the"cancer" experience."

Cancer"Journey"Leadership" Vision of person-centered care Improving the person ’ s experience throughout the cancer journey Survivorship Screening for Distress (6 th Vital Sign) • models & • care plans Navigation • return to work (professional, peer, on- Standards/Guidelines/Indicators line) Education Palliative Care Understanding/Knowledge • patient, family, survivor needs • interventions for care • best practices

Programma*c"strategies"" across"the"cancer"journey"" • Screening!for!Distress!(6 th !vital!sign)! – Implementa<on!in!9!jurisdic<ons! – Development!of!implementa<on!guides! – Development!of!tools!for!others!to!use! • Cancer!Pa<ent!Naviga<on! – Development!of!concepts/defini<ons! – Implementa<on!in!6!jurisdic<ons! – Development!of!implementa<on!guide!!

Resources"to"support"implementa*on" • EvidenceUbased!prac<ce!guidelines!and! algorithms!–!symptom!management! • Educa<onal!modules!(onUline)! – Screening!for!distress! – Sexuality! – Pallia<ve!care!

Survivorship"(post"ac*ve"treatment)" • Environmental!scan/na<onal!workshop!(2008)! • Priori<es!(not!rank!ordered)! – Establish!na<onal!standards!and!guidelines!for! survivorship!care! – Iden<fying!appropriate!models!of!care!delivery!to!meet! the!longUterm!needs!of!survivors! – Development!and!implemen<ng!survivorship!care!plans! – Promo<ng!survivorship!research! – Ensuring!effec<ve!knowledge!transla<on! – Facilita<ng!a!comprehensive!communica<ons!plan! – Promo<ng!a!consor<um!of!na<onal!cancer!advocacy! groups!

Standards"and"Guidelines"" • New!Guidelines!for!Psychosocial!Assessment! and!Care!of!Cancer!Pa<ents!across!the!cancer! trajectory!(includes!survivors)!–!posted!on! CAPO!webUsite! • Standards!for!FollowUup!Care!of!Cancer! Survivors!(development!by!panUCanadian!task! group)!–!posted!on!CPAC!webUsite!

Models"of"Care"Delivery" • Cancer!Transi<ons! – Partnership!with!Wellness!Community!(USA)! – Pilot!to!test!applicability!in!Canada!and!iden<fy!need!for!adapta<on! – Train!the!Trainer!Workshops!(2)/!programs!offered!locally! – Report!on!BCCA!webUsite! ! • Numerous!Discussions!in!Cancer!Care!Agencies! across!the!country! – FollowUup!cancer!care!challenges!(growing!numbers,!expecta<ons)! – Ques<ons!about!appropriate!role!of!cancer!agencies!in!survivorship! care! – Concerns!about!exper<se!available!for!long!term!survivorship!care! – Need!for!integra<on!with!primary!care!

Survivorship"Care"Plans" • Implemented!four!approaches!to!sustainable! programs!to!u<lize!survivorship!care!plans!and! understand!barriers!to!implementa<on!in!the! Canadian!health!care!environment! • Inten<onal!selec<on!of!different!types!of! organiza<ons!as!leaders! – Community!agency! – Cancer!care!agency! – Na<onal!survivor!organiza<on! – Coali<on!of!cancer!agency!and!survivors!organiza<ons!

On&line"Support" • Design/tes<ng!of!synchronous!onUline!support! for!cancer!pa<ents,!survivors,!and!caregivers! facilitated!by!professional!prac<<oners! • Cancer!Chat!Canada!

Communica*on"plan"and"na*onal" advocacy"groups" • Survivorship!conferences!in!several! provinces…!

Survivorship"Research" • Several!na<onal!workshops!held!to!explore!priori<es! for!survivorship!research! • Survey!of!Research!Investments!in!Canada! (2012)! – ! 8.1%!!!($30.1!million)!in!2005! – !10.2%!($55.9!million)!in!2009 ! • Several!na<onal!agencies!incorporated!survivorship! into!their!funding!priori<es! • Forma<on!of!a!consor<um!for!survivorship!research! is!well!underway!(e.g.,!networking,!holding!webU based!educa<on,!collabora<ons!for!research! proposals!emerging)!!!!

Return"to"Work" • Environmental!scan!of!programs!and! resources!to!facilitate!RTW!for!people!with! cancer!and!other!chronic!diseases! • Literature!review!and!consulta<on!about!RTW! concerns!faced!by!people!with!cancer!and! caregivers! • Workplace!support!for!people!with!cancer:! perspec<ves!of!employers,!insurers,!unions!

Future"Direc*ons" • Understanding!more!about!needs!of!survivors! • Increasing!awareness!on!the!part!of!health! care!providers!as!well!as!the!general!public! • Increasing!focus!on!self!care!management!and! rehabilita<on! • Promo<ng!research!regarding!survivorship! care/interven<ons/health!services!

! Ques<ons? ! ! www.partnershipagainstcancer.ca " www.partenariatcontrelecancer.ca " " "